OOIR: Observatory of International Research

Papers

(The TQCC of Palliative Medicine is 9. The table below lists those papers that are above that threshold based on CrossRef citation counts [max. 250 papers]. The publications cover those that have been published in the past four years, i.e., from 2021-09-01 to 2025-09-01.)

Article	Citations
A tribute to Derek Doyle and Cynthia Goh	256
Assessing the suitability of the Carer Support Needs Assessment Tool (CSNAT-Paediatric) for use with parents of children with a life-limiting condition: A qualitative secondary analysis	80
Facilitators and barriers in using comics to support family caregivers of patients receiving palliative care at home: A qualitative study	55
Resilience in advanced cancer caregiving. A systematic review and meta-synthesis	54
Posttraumatic growth in palliative care settings: A scoping review of prevalence, characteristics and interventions	52
Complexity and function of family involvement in advance care planning: A qualitative study of perspectives from people living with advanced cancer, family members and healthcare professionals	51
Neuropalliative care for progressive neurological diseases: A scoping review on models of care and priorities for future research	51
What are we planning, exactly? The perspectives of people with intellectual disabilities, their carers and professionals on end-of-life care planning: A focus group study	47
Mixed methods process evaluation of an advance care planning intervention among nursing home staff	43
Use of long term aprepitant as a treatment for refractory nausea following oesophageal stent insertion – a case report	39
Palliative care volunteering: Pressing challenges in research	37
“Walk me through the final day”: A thematic analysis study on the family caregiver experience of the Medical Assistance in Dying procedure day	37
Prevalence of grief disorders in bereaved families of cancer patients: A meta-analysis	36
Effect of continuous deep sedation on survival in the last days of life of cancer patients: A multicenter prospective cohort study	30
Maybe for unbearable suffering: Diverse racial, ethnic and cultural perspectives of assisted dying. A scoping review	29
Living experiences of people with advance cancer with low socioeconomic status: A systematic review of qualitative evidence	28
Views of patients with progressive illness and carers about the role of digital advance care planning systems to record and share information: A qualitative study	27
The experiences, perceptions, and support needs among family caregivers of patients with advanced cancer and eating problems: An integrative review	27
Preserving the integrity of personhood in people with advanced cancer: An in-depth qualitative study among patients, relatives, and care professionals	25
The 13th World Research Congress of the European Association for Palliative Care	25
Utilizing intricate care networks: An ethnography of patients and families navigating palliative care in a resource-limited setting	25
A rapid review of end-of-life needs in the LGBTQ+ community and recommendations for clinicians	24
Identifying, exploring and integrating the spiritual dimension in proactive care planning: A mixed methods evaluation of a communication training intervention for multidisciplinary palliative care tea	24
Corrigendum to Updating international consensus on best practice in care of the dying: A Delphi study	24
Differences in palliative care needs between cancer patients and non-cancer patients at the start of specialized palliative care: A nationwide register-based study	24

Facilitating equitable access to hospice care in socially deprived areas: A mixed methods multiple case study	24
Parents’ experiences of being involved in medical decision-making for their child with a life-limiting condition: A systematic review with narrative synthesis	23
The experience of nurses when providing care across acts that may be perceived as death hastening: A qualitative evidence synthesis	23
The utility of the surprise question: A useful tool for identifying patients nearing the last phase of life? A systematic review and meta-analysis	22
Using the Delphi technique to achieve consensus on bereavement care in palliative care in Europe: An EAPC White Paper	22
What is the role of paramedics in palliative and end of life care?	22
How best to capture the impact of complementary therapies in palliative care: A systematic review to identify and assess the appropriateness and validity of multi-domain tools	21
Adaptation and continuous learning: integrative review of coping strategies of palliative care professionals	21
‘Sadly I think we are sort of still quite white, middle-class really’ – Inequities in access to bereavement support: Findings from a mixed methods study	21
Support from healthcare professionals in empowering family carers to discuss advance care planning: A population-based survey	21
Palliative care integration for patients with advanced chronic obstructive pulmonary disease (COPD): Identifying essential components using participatory action research	20
Improving palliative care for people with intellectual disabilities: Communication is key	20
A peripherally acting μ-opioid receptor antagonist for treating opioid-associated tinnitus: A case report	20
The management of absolute iron deficiency anaemia in the palliative care population: A reply to Neoh et al.	20
What outcomes do studies use to measure the impact of prognostication on people with advanced cancer? Findings from a systematic review of quantitative and qualitative studies	20
How much information is ‘reasonable’? A qualitative interview study of the prescribing practices of palliative care professionals	20
Barriers and facilitators influencing referral and access to palliative care for children and young people with life-limiting and life-threatening conditions: a scoping review of the evidence	19
C-reactive protein and white blood cell count are adverse prognostic markers for patients with advanced cancer on parenteral nutrition in a palliative care unit setting: A retrospective cohort study	19
Delirium prevention in hospices: Opportunities and limitations – A focused ethnography	19
An emergency department nurse led intervention to facilitate serious illness conversations among seriously ill older adults: A feasibility study	19
Machine learning models to detect social distress, spiritual pain, and severe physical psychological symptoms in terminally ill patients with cancer from unstructured text data in electronic medical r	18
Education modalities for serious illness communication training: A scoping review on the impact on clinician behavior and patient outcomes	18
Integrating lived experiences of out-of-hours health services for people with palliative and end-of-life care needs with national datasets for people dying in Scotland in 2016: A mixed methods, multi-	18
Medical communication and decision-making about assisted hydration in the last days of life: A qualitative study of doctors experienced with end of life care	17
Factors associated with hospitalisations of patients with chronic heart failure approaching the end of life: A systematic review	17
Capturing what matters: A retrospective observational study of advance care planning documentation at an academic medical center during the COVID-19 pandemic	17
‘How long do you think?’ Unresponsive dying patients in a specialist palliative care service: A consecutive cohort study	17
Re: Tan et al., Subcutaneous sodium valproate in palliative care: A systematic review	17
Using advance and emergency care plans during transfer decisions: A grounded theory interview study with care home staff	16
Bridging cultures in palliative care: A qualitative study of the care of Indigenous Australians with advanced illness	16
Nurse perspectives on the psychosocial care of patients with urinary incontinence in home hospice: A qualitative study	16
“ I think that she would have wanted. . .” : Qualitative interviews with bereaved caregivers reveal complexity in measuring goal-concordant care at the end of life	16
Pharmacological treatment of pain, dyspnea, death rattle, fever, nausea, and vomiting in the last days of life in older people: A systematic review	16
Implementation of an acute palliative care unit for COVID-19 patients in a tertiary hospital: Qualitative data on clinician perspectives	16
Engagement of specialized palliative care services with the general public: A population-level survey in three European countries	15
A systematic review on the impact of financial insecurity on the physical and psychological well-being for people living with terminal illness	15
The 19th World Congress of the European Association for Palliative Care 29 – 31 May 2025 Helsinki, Finland	15
Enhancing the wellbeing of refugees living with advanced life-limiting illness in high-income resettlement countries: A systematic review	15
International consensus on occupational therapy interventions for people with palliative care needs: A European Association for Palliative Care Group Concept Mapping study	15
‘So being here is. . . I feel like I’m being a social worker again, at the hospice’: Using interpretative phenomenological analysis to explore social workers’ experiences of hospice work	15
Effectiveness of transmural team-based palliative care in prevention of hospitalizations in patients at the end of life: A systematic review and meta-analysis	15
Exploring “good days” with advanced cancer: A pilot daily diary study	15
The perspectives of people with dementia and their supporters on advance care planning: A qualitative study with the European Working Group of People with Dementia	14
Hypertonic packs to reverse blindness caused by facial lymphoedema in the setting of head and neck cancer – A case report	14
Impact of expected parental death on the health of adolescent and young adult children: A systematic review of the literature	14
Systematic review of conceptual and theoretical frameworks used in palliative care and end-of-life care research studies	14
Memory-making interventions for children with life-threatening or life-limiting conditions and their families: A systematic review of evidence and implications for practice	14
Measurement equivalence of the paper-based and electronic version of the Integrated Palliative care Outcome Scale (IPOS): A randomised crossover trial	14
EAPC2023 Abstract Book	14
Caring toward end of life through acute hospital and community partnerships: A scoping review	14

Deaths at home, area-based deprivation and the effect of the Covid-19 pandemic: An analysis of mortality data across four nations	13
Definition and recommendations of advance care planning: A Delphi study in five Asian sectors	13
The spiritual dimension of parenting a child with a life-limiting or life-threatening condition: A mixed-methods systematic review	13
Health care professional recruitment of patients and family carers to palliative care randomised controlled trials: A qualitative multiple case study	13
Thanks to Reviewers	13
When a dying patient is asked to participate in a double-blind, placebo-controlled clinical trial on symptom control: The decision-making process and experiences of relatives	13
Advance care planning and quality of life: A qualitative interview study in people with young-onset dementia and their family caregivers	13
Supporting best practice in reflexive thematic analysis reporting in Palliative Medicine: A review of published research and introduction to the Reflexive Thematic Analysis Reporting Guideli	13
Healthy siblings’ perspectives about paediatric palliative care: A qualitative systematic review and meta-synthesis	13
What can patient safety science do for palliative care? Bridging the gap	13
Telehealth requires improved evidence to achieve its full potential in palliative care	12
Exercise interventions for advanced cancer palliative care patients: A systematic literature review and descriptive evidence synthesis of randomized controlled trials	12
Motor neurone disease: A point-prevalence study of patient reported symptom prevalence, severity and palliative care needs	12
Where to for core outcome sets for best care for the dying person?	12
Reducing unnecessary hospital admissions for end-of-life patients in lower and middle-income countries	12
Coming to terms with dying: Advance care planning as a conduit between clinicians, patients, and conversations about death and dying – a qualitative interview study	11
The ideal path to a good death: An international meta-synthesis of rural residents’ perspectives	11
A peripheral opioid antagonist for treating urinary retention induced by opioids: A case report	11
Peer review and Palliative Medicine : Guiding reviewers’ contributions to ensuring high quality publications	11
Loneliness, its effect on mental and physical health, and the dying	11
Implementation of clinical guidelines in specialized palliative care—results from a national improvement project: A national register-based study	11
Effects of advance care planning in care dependent community-dwelling older persons (STADPLAN): A cluster-randomised controlled trial	11
Tensions in advance care planning with dementia: Time for a good-enough laid-back approach?	11
Perspectives of inpatients with palliative care needs, their families, clinicians and key stakeholders on measuring quality of hospital care via patient experience measures: A qualitative study	11
An electronic pre-visit agenda-setting questionnaire in ambulatory palliative care is feasible and acceptable to patients, care partners, and clinicians: A mixed methods evaluation	11
Closing the health equity gap in palliative care: The time for action is now	11
Palliative and end-of-life care needs, experiences, and preferences of LGBTQ+ individuals with serious illness: A systematic mixed-methods review	11
The spiritual care intervention “In dialogue with your life story”: Results of a longitudinal study on palliative clients’ spiritual wellbeing	11
Strategies and checklist for designing and conducting palliative care research with family carers: EAPC international expert elicitation study	11
Palliative care and neuro-oncological care: Better integration is needed	11
Masculinity and ethnicity in intersection: Implications for men’s health and palliative care services	11
Moral distress amongst palliative care doctors working during the COVID-19 pandemic: A narrative-focussed interview study	10
A rapid review of the evidence for online interventions for bereavement support	10
COVID-19 in pediatric palliative care patients: Multicenter, retrospective cohort study	10
‘I couldn’t live without hope’: A qualitative study using reflexive thematic analysis on approaches to hope and prognostic awareness among people with advanced disease	10
Revised recommendations on standards and norms for palliative care in Europe from the European Association for Palliative Care (EAPC): A Delphi study	10
Practice review: Evidence-based and effective management of anaemia in palliative care patients	10
End of life care for people with severe mental illness: Mixed methods systematic review and thematic synthesis (the MENLOC study)	10
What are the triggers for palliative care referral in burn intensive care units? Results from a qualitative study based on healthcare professionals’ views, clinical experiences and practices	10
Effectiveness and safety of opioids on breathlessness and exercise endurance in patients with chronic obstructive pulmonary disease: A systematic review and meta-analysis of randomised controlled tria	10
The development of the ADO-SQ model to predict 1-year mortality in patients with COPD	10
Iatrogenic suffering at the end of life: An ethnographic study	10
Reducing inequity in the provision of children’s palliative care in low- and middle- income countries: A focus on education and research	10
‘My life is a mess but I cope’: An analysis of the language children and young people use to describe their own life-limiting or life-threatening condition	10
Co-designing a culturally-sensitive theory-driven advance care planning game with Chinese older adults and healthcare providers	10
Serious health-related suffering experienced by children with disability and their families living in Bangladesh: A scoping review	9
An easier way to die?—A qualitative interview study on specialist palliative care team members’ views on dying under sedation	9
‘That just doesn’t feel right at times’ – lone working practices, support and educational needs of newly employed Healthcare Assistants providing 24/7 palliative care in the community: A qualitative i	9
Do learners implement what they learn? Commitment-to-change following an interprofessional palliative care course	9
Paramedics delivering palliative and end-of-life care in community-based settings: A systematic integrative review with thematic synthesis	9
Unwelcome memento mori or best clinical practice? Community end of life anticipatory medication prescribing practice: A mixed methods observational study	9
Understanding parent experiences of end-of-life care for children: A systematic review and qualitative evidence synthesis	9
Shared decision-making in palliative cancer care: A systematic review and metasynthesis	9
Developing a Theory of Change and Implementation Plan to implement a novel child- and family-centred outcome measure in paediatric palliative care	9
A feasibility study of a decision aid to support family carers of people with severe dementia or those towards the end-of-life	9
The impact on emotional well-being of being a palliative care volunteer: An interpretative phenomenological analysis	9
Palliative paramedicine: An interrupted time series analysis of pre-hospital guideline efficacy	9
More than the sum of its parts—A constructivist grounded-theory study on specialist palliative care during crises like the COVID pandemic	9
Practice review: Pharmacological management of severe chronic breathlessness in adults with advanced life-limiting diseases	9
Trapped in a double cage: How patients’ partners experience the diagnosis of advanced cancer in times of the COVID-19 pandemic: An interpretative phenomenological analysis	9
Investigating the benefits and harms of hypodermoclysis of patients in palliative care: A consecutive cohort study	9
Long-term bereavement outcomes in family members of those who died in acute care hospitals before and during the first wave of COVID-19: A cohort study	9
Risk factors associated with poorer experiences of end-of-life care and challenges in early bereavement: Results of a national online survey of people bereaved during the COVID-19 pandemic	9
Pharmacovigilance in hospice/palliative care: Net effect of amitriptyline or nortriptyline on neuropathic pain: UTS/IMPACCT Rapid programme international consecutive cohort	9
Risk factors for delirium in adult patients receiving specialist palliative care: A systematic review and meta-analysis	9
Preferences of patients with palliative care needs and their families for engagement with service improvement work within the hospital setting: A qualitative study	9
Measuring the quality of patient-provider relationships in serious illness: A scoping review	9
The connections of physical and psychosocial symptoms among patients with terminal illnesses: A network analysis	9
Lived experiences of family caregivers of those with advanced illnesses: A secondary qualitative data analysis	9