OOIR: Observatory of International Research

Papers

(The TQCC of Palliative Medicine is 10. The table below lists those papers that are above that threshold based on CrossRef citation counts [max. 250 papers]. The publications cover those that have been published in the past four years, i.e., from 2022-08-01 to 2026-08-01.)

Article	Citations
Neuropalliative care for progressive neurological diseases: A scoping review on models of care and priorities for future research	767
What are we planning, exactly? The perspectives of people with intellectual disabilities, their carers and professionals on end-of-life care planning: A focus group study	94
Assessing the suitability of the Carer Support Needs Assessment Tool (CSNAT-Paediatric) for use with parents of children with a life-limiting condition: A qualitative secondary analysis	55
Posttraumatic growth in palliative care settings: A scoping review of prevalence, characteristics and interventions	54
Complexity and function of family involvement in advance care planning: A qualitative study of perspectives from people living with advanced cancer, family members and healthcare professionals	45
“Walk me through the final day”: A thematic analysis study on the family caregiver experience of the Medical Assistance in Dying procedure day	44
Living experiences of people with advance cancer with low socioeconomic status: A systematic review of qualitative evidence	44
REstoring Sleep and Energy using a mulTimodal non-pharmacological intervention in advanced Cancer: A feasibility study (RESET-C)	43
‘Saying goodbye’. . . A systematic integrative review of palliative caregiving in intergenerational living contexts	43
Maybe for unbearable suffering: Diverse racial, ethnic and cultural perspectives of assisted dying. A scoping review	36
Preserving the integrity of personhood in people with advanced cancer: An in-depth qualitative study among patients, relatives, and care professionals	33
Views of patients with progressive illness and carers about the role of digital advance care planning systems to record and share information: A qualitative study	33
Mistletoe extract in patients with advanced pancreatic cancer: Health-related quality of life in a double-blind, randomized, placebo-controlled trial (MISTRAL)	33
Mixed methods process evaluation of an advance care planning intervention among nursing home staff	32
Propofol for palliative sedation: A systematic review of clinical outcomes, safety, and ethical implications	30
Parents’ experiences of being involved in medical decision-making for their child with a life-limiting condition: A systematic review with narrative synthesis	29
Utilizing intricate care networks : An ethnography of patients and families navigating palliative care in a resource-limited setting	29
Differences in palliative care needs between cancer patients and non-cancer patients at the start of specialized palliative care: A nationwide register-based study	28
End-of-life experience patterns among older adults and their association with pain near death: A population-based study	28
The 13th World Research Congress of the European Association for Palliative Care	26
Corrigendum to Updating international consensus on best practice in care of the dying: A Delphi study	26
Identifying, exploring and integrating the spiritual dimension in proactive care planning: A mixed methods evaluation of a communication training intervention for multidisciplinary palliative care tea	26
The experience of nurses when providing care across acts that may be perceived as death hastening: A qualitative evidence synthesis	25
Facilitating equitable access to hospice care in socially deprived areas: A mixed methods multiple case study	25
‘Sadly I think we are sort of still quite white, middle-class really’ – Inequities in access to bereavement support: Findings from a mixed methods study	24

Delirium prevention in hospices: Opportunities and limitations – A focused ethnography	23
How best to capture the impact of complementary therapies in palliative care: A systematic review to identify and assess the appropriateness and validity of multi-domain tools	23
Advance Care Planning in structurally vulnerable populations: A scoping review of barriers, facilitators, and interventions	23
A peripherally acting μ-opioid receptor antagonist for treating opioid-associated tinnitus: A case report	23
The management of absolute iron deficiency anaemia in the palliative care population: A reply to Neoh et al.	22
What outcomes do studies use to measure the impact of prognostication on people with advanced cancer? Findings from a systematic review of quantitative and qualitative studies	22
Education modalities for serious illness communication training: A scoping review on the impact on clinician behavior and patient outcomes	21
Enhancing identification of potential palliative care needs in older adults: An umbrella review of screening instruments	21
Re: Tan et al., Subcutaneous sodium valproate in palliative care: A systematic review	20
Support from healthcare professionals in empowering family carers to discuss advance care planning: A population-based survey	20
Trauma-informed palliative care: A systematic scoping review of evidence sources describing concepts relevant to an emerging field of practice	20
Barriers and facilitators influencing referral and access to palliative care for children and young people with life-limiting and life-threatening conditions: a scoping review of the evidence	20
Prevalence, risk factors and management of pressure injuries and their implications for palliative care: A rapid overview of reviews	20
An emergency department nurse led intervention to facilitate serious illness conversations among seriously ill older adults: A feasibility study	20
Bridging cultures in palliative care: A qualitative study of the care of Indigenous Australians with advanced illness	19
Economic evaluations in the palliative and end-of-life care settings: A systematic review of existing evidence, methods and quality	19
‘How long do you think?’ Unresponsive dying patients in a specialist palliative care service: A consecutive cohort study	19
Factors associated with hospitalisations of patients with chronic heart failure approaching the end of life: A systematic review	19
A systematic review on the impact of financial insecurity on the physical and psychological well-being for people living with terminal illness	18
The perspectives of people with dementia and their supporters on advance care planning: A qualitative study with the European Working Group of People with Dementia	18
EAPC2023 Abstract Book	18
Effectiveness of and implementation requirements for telehealth in palliative care patients with advanced cancer: A systematic review and meta-analysis	18
Effectiveness of transmural team-based palliative care in prevention of hospitalizations in patients at the end of life: A systematic review and meta-analysis	18
‘So being here is. . . I feel like I’m being a social worker again, at the hospice’: Using interpretative phenomenological analysis to explore social workers’ experiences of hospice work	18
A narrow view of palliative care and assisted dying	18
International consensus on occupational therapy interventions for people with palliative care needs: A European Association for Palliative Care Group Concept Mapping study	18
Deaths at home, area-based deprivation and the effect of the Covid-19 pandemic: An analysis of mortality data across four nations	18
Health care professional recruitment of patients and family carers to palliative care randomised controlled trials: A qualitative multiple case study	17
Caring toward end of life through acute hospital and community partnerships: A scoping review	17
Exploring “good days” with advanced cancer: A pilot daily diary study	17
Models, components and outcomes of palliative and end-of-life care provided to adults living at home: A systematic umbrella review of reviews	17
Enhancing the wellbeing of refugees living with advanced life-limiting illness in high-income resettlement countries: A systematic review	17
Systematic review of conceptual and theoretical frameworks used in palliative care and end-of-life care research studies	17
Pharmacological treatment of pain, dyspnea, death rattle, fever, nausea, and vomiting in the last days of life in older people: A systematic review	17
The 19th World Congress of the European Association for Palliative Care 29 – 31 May 2025 Helsinki, Finland	17
Supporting best practice in reflexive thematic analysis reporting in Palliative Medicine : A review of published research and introduction to the	16
Thanks to Reviewers	16
Memory-making interventions for children with life-threatening or life-limiting conditions and their families: A systematic review of evidence and implications for practice	16
Measurement equivalence of the paper-based and electronic version of the Integrated Palliative care Outcome Scale (IPOS): A randomised crossover trial	16
Telehealth requires improved evidence to achieve its full potential in palliative care	16
‘Adrift in a sea of just absolute unknowableness’: A multimethod qualitative study exploring patient, carer and healthcare professional experiences of communicating about future uncertainty in multimo	16
Motor neurone disease: A point-prevalence study of patient reported symptom prevalence, severity and palliative care needs	16
Where to for core outcome sets for best care for the dying person?	15
Response to letters about “Palliative care and assisted dying: Uneasy bedfellows”	15
Coming to terms with dying: Advance care planning as a conduit between clinicians, patients, and conversations about death and dying – a qualitative interview study	15
Advance care planning and quality of life: A qualitative interview study in people with young-onset dementia and their family caregivers	15
The value of rehabilitation specialists to team-based palliative care	15
Social determinants of death anxiety in patients with advanced cancer receiving outpatient palliative care	15
Reducing unnecessary hospital admissions for end-of-life patients in lower and middle-income countries	15
Effects of advance care planning in care dependent community-dwelling older persons (STADPLAN): A cluster-randomised controlled trial	15

What can patient safety science do for palliative care? Bridging the gap	15
Specialist palliative care improves patient experience, reduces bed days and saves money: An economic modelling study of home- and hospital-based care	14
Caregivers’ perspectives on family meetings and preparedness for imminent death: A qualitative descriptive study in a palliative care setting	14
An electronic pre-visit agenda-setting questionnaire in ambulatory palliative care is feasible and acceptable to patients, care partners, and clinicians: A mixed methods evaluation	14
Palliative care and neuro-oncological care: Better integration is needed	14
Healthy siblings’ perspectives about paediatric palliative care: A qualitative systematic review and meta-synthesis	14
Exercise interventions for advanced cancer palliative care patients: A systematic literature review and descriptive evidence synthesis of randomized controlled trials	14
The spiritual dimension of parenting a child with a life-limiting or life-threatening condition: A mixed-methods systematic review	14
Peer review and Palliative Medicine : Guiding reviewers’ contributions to ensuring high quality publications	14
Iatrogenic suffering at the end of life: An ethnographic study	14
Definition and recommendations of advance care planning: A Delphi study in five Asian sectors	14
Palliative and end-of-life care needs, experiences, and preferences of LGBTQ+ individuals with serious illness: A systematic mixed-methods review	14
Memory making during bereavement care following the death of a child: A survey exploring parental experiences	14
Tensions in advance care planning with dementia: Time for a good-enough laid-back approach?	14
The ideal path to a good death: An international meta-synthesis of rural residents’ perspectives	14
When a dying patient is asked to participate in a double-blind, placebo-controlled clinical trial on symptom control: The decision-making process and experiences of relatives	14
A peripheral opioid antagonist for treating urinary retention induced by opioids: A case report	13
A rapid review of the evidence for online interventions for bereavement support	13
Implementation of clinical guidelines in specialized palliative care—results from a national improvement project: A national register-based study	13
Masculinity and ethnicity in intersection: Implications for men’s health and palliative care services	13
Strategies and checklist for designing and conducting palliative care research with family carers: EAPC international expert elicitation study	13
Certified nursing assistants’ perspectives on their role in advance care planning for older persons: A qualitative study	13
Closing the health equity gap in palliative care: The time for action is now	13
Perspectives of inpatients with palliative care needs, their families, clinicians and key stakeholders on measuring quality of hospital care via patient experience measures: A qualitative study	13
Reducing inequity in the provision of children’s palliative care in low- and middle- income countries: A focus on education and research	13
The spiritual care intervention “In dialogue with your life story”: Results of a longitudinal study on palliative clients’ spiritual wellbeing	13
Loneliness, its effect on mental and physical health, and the dying	12
COVID-19 in pediatric palliative care patients: Multicenter, retrospective cohort study	12
Digital patient-reported outcome measures in palliative home care: A feasibility study	12
Fever in a palliative care setting: Clinical insights and implications from a prospective observational cohort study	12
‘I couldn’t live without hope’: A qualitative study using reflexive thematic analysis on approaches to hope and prognostic awareness among people with advanced disease	12
Co-designing a culturally-sensitive theory-driven advance care planning game with Chinese older adults and healthcare providers	12
Feeling groovy? The present and future of psychedelic research in palliative care	12
What are the triggers for palliative care referral in burn intensive care units? Results from a qualitative study based on healthcare professionals’ views, clinical experiences and practices	12
‘That just doesn’t feel right at times’ – lone working practices, support and educational needs of newly employed Healthcare Assistants providing 24/7 palliative care in the community: A qualitative i	11
Developing a Theory of Change and Implementation Plan to implement a novel child- and family-centred outcome measure in paediatric palliative care	11
Long-term bereavement outcomes in family members of those who died in acute care hospitals before and during the first wave of COVID-19: A cohort study	11
Effectiveness and safety of opioids on breathlessness and exercise endurance in patients with chronic obstructive pulmonary disease: A systematic review and meta-analysis of randomised controlled tria	11
Serious health-related suffering experienced by children with disability and their families living in Bangladesh: A scoping review	11
An easier way to die?—A qualitative interview study on specialist palliative care team members’ views on dying under sedation	11
Sexual health at the end of life in patients with advanced cancer and their partners. Results of a Dutch prospective longitudinal study (eQuiPe)	11
Palliative paramedicine: An interrupted time series analysis of pre-hospital guideline efficacy	11
‘My life is a mess but I cope’: An analysis of the language children and young people use to describe their own life-limiting or life-threatening condition	11
How and in what circumstances does facilitation work for residential aged care staff in the implementation of palliative care interventions? A realist review	11
Lived experiences of family caregivers of those with advanced illnesses: A secondary qualitative data analysis	10
Understanding parent experiences of end-of-life care for children: A systematic review and qualitative evidence synthesis	10
More than the sum of its parts—A constructivist grounded-theory study on specialist palliative care during crises like the COVID pandemic	10
Unrepresented, unheard and discriminated against: A qualitative exploration of relatives’ and professionals’ views of palliative care experiences of people of African and Caribbean descent during the	10
Measuring the quality of patient-provider relationships in serious illness: A scoping review	10
Patients’ dignity in palliative care: An integrative review of lived experiences and family perspectives across cultures	10
Shared decision-making in palliative cancer care: A systematic review and metasynthesis	10
Cancer pain: Results of a prospective study on prognostic indicators of pain intensity including pain syndromes assessment	10
What are the symptoms and concerns of young adults living with life-limiting conditions and how well are they captured by patient reported outcome measures? A mixed-methods systematic review and frame	10
Feasibility and acceptability of the brief patient-reported experience measure consideRATE within the hospital setting for patients with palliative care needs, their families/carers and clinicians	10
A feasibility study of a decision aid to support family carers of people with severe dementia or those towards the end-of-life	10
The connections of physical and psychosocial symptoms among patients with terminal illnesses: A network analysis	10
“Never waste a good crisis”: A qualitative study of the impact of COVID-19 on palliative care in seven hospitals using the Dynamic Sustainability Framework	10
Practice review: Pharmacological management of severe chronic breathlessness in adults with advanced life-limiting diseases	10