OOIR: Observatory of International Research

Papers

(The TQCC of Palliative Medicine is 9. The table below lists those papers that are above that threshold based on CrossRef citation counts [max. 250 papers]. The publications cover those that have been published in the past four years, i.e., from 2021-04-01 to 2025-04-01.)

Article	Citations
Where to for core outcome sets for best care for the dying person?	108
Assessing the suitability of the Carer Support Needs Assessment Tool (CSNAT-Paediatric) for use with parents of children with a life-limiting condition: A qualitative secondary analysis	70
Palliative care for teenagers and young adults - the need for more evidence	61
WITHDRAWAL – Administrative Duplicate Publication: Tribute to Derek Doyle and Cynthia Goh	51
A therapist-supported internet-based intervention for bereaved siblings: A randomized controlled trial	50
Practice review: Evidence-based and effective management of fatigue in patients with advanced cancer	48
Inequities of palliative care availability and access to opioids in low- and middle-income countries	47
Over a third of palliative medicine physicians meet burnout criteria: Results from a survey study during the COVID-19 pandemic	46
Motor neurone disease: A point-prevalence study of patient reported symptom prevalence, severity and palliative care needs	46
A tribute to Derek Doyle and Cynthia Goh	46
Development of a palliative paramedicine framework to standardise best practice: A Delphi study	45
Recognising dying in motor neurone disease: A scoping review	45
Translation and cross-cultural adaptation of the Integrated Palliative Care Outcome Scale in Hindi: Toward capturing palliative needs and concerns in Hindi speaking patients	45
A good death in the child with life shortening illness: A qualitative multiple-case study	42
Effects of advance care planning in care dependent community-dwelling older persons (STADPLAN): A cluster-randomised controlled trial	40
Evaluation of the integration of palliative care in a fragile setting amongst host and refugee communities: Using consecutive rapid participatory appraisals	39
Integration of primary care and palliative care services to improve equality and equity at the end-of-life: Findings from realist stakeholder workshops	39
Combining realist evaluation and transformative evaluation to advance research in palliative care: The case of end of life companionship	38
The potential of experience sampling methods in palliative care	34
End of life skin care – Research informing theory to traverse between Scylla and Charybdis?	33
Perceptions and experiences of clinicians and correctional officers facilitating palliative care for people in prison: A systematic review and meta-synthesis	32
Health professionals’ experiences of rapport during telehealth encounters in community palliative care: An interpretive description study	32
Variation in end-of-life care and hospital palliative care among hospitals and local authorities: A preliminary contribution of big data	32
Telehealth requires improved evidence to achieve its full potential in palliative care	30
‘You have a little human being kicking inside you and an unbearable pain of knowing there will be a void at the end’: A meta-ethnography exploring the experience of parents whose baby is diagnosed ant	29

Components of home-based palliative and supportive care for adults with heart failure: A scoping review	29
Prognostic performance of the Karnofsky Performance Status for predicting in-hospital mortality among unselected patients who receive palliative care consultations	28
Subcutaneous sodium valproate in palliative care: A systematic review	28
The cost of providing care by family and friends (informal care) in the last year of life: A population observational study	28
‘It feels it’s wasting whatever time I’ve got left’: A qualitative study of living with treatable but not curable cancer during the COVID-19 pandemic	27
Healthy siblings’ perspectives about paediatric palliative care: A qualitative systematic review and meta-synthesis	27
Applied patient-level palliative care interventions designed to meet the needs of sexual and gender minorities: A scoping review and qualitative content analysis of how to support sexual and gender mi	26
Call for emergency action to limit global temperature increases, restore biodiversity, and protect health: Wealthy nations must do much more, much faster	25
More than 3 years of teleconsultations: A retrospective cohort study in specialized outpatient palliative care	24
Development of a research-based classification of approaches to paediatric palliative medicine service provision within children’s and young adults’ hospices: A mixed methods study	23
Neuropalliative care for progressive neurological diseases: A scoping review on models of care and priorities for future research	23
Interpersonal energy: New and bold directions in palliative care health professions education research	23
Changes and predictors of resilience among wife and husband caregivers of patients with advanced cancer: A longitudinal study	23
Prospective case series of neuropathic cancer pain in patients treated with an EGFR-inhibitor	22
Thanks to Reviewers: 2022	22
What can patient safety science do for palliative care? Bridging the gap	21
Nationwide evaluation of palliative care (Q-PAC study) provided by specialized palliative care teams using quality indicators : Large variations in quality of care	21
Re: Liu et al., Effectiveness and safety of opioids on breathlessness and exercise endurance in patients with chronic obstructive pulmonary disease: A systematic review and meta-analysis of randomised	20
Dying in times of COVID-19: Experiences in different care settings – An online questionnaire study among bereaved relatives (the CO-LIVE study)	20
Psychological health in Palliative Care: Thematic analysis of a psychiatrist’s and an art therapist’s clinical reflexive journals	20
Facilitators and barriers in using comics to support family caregivers of patients receiving palliative care at home: A qualitative study	20
Parenting through grief: A cross-sectional study of recently bereaved adults with minor children	20
Good medicines management: From describing problems to a vision for change	19
Views on advance care planning of family members of older adults with Turkish and Moroccan backgrounds: An exploratory interview study	19
Updating international consensus on best practice in care of the dying: A Delphi study	18
‘It was like taking an inner bath’: A qualitative evaluation of a collaborative advance care planning-approach	18
Thanks to Reviewers	18
What do we do with all the evidence for symptoms in palliative care?	18
Coming to terms with dying: Advance care planning as a conduit between clinicians, patients, and conversations about death and dying – a qualitative interview study	18
Self-care towards the end of life: A systematic review and narrative synthesis on access, quality and cost	18
When a dying patient is asked to participate in a double-blind, placebo-controlled clinical trial on symptom control: The decision-making process and experiences of relatives	17
Co-production in practice: A qualitative study of the development of advance care planning workshops for South Asian elders	17
The spiritual dimension of parenting a child with a life-limiting or life-threatening condition: A mixed-methods systematic review	16
Symptom burden and lived experiences of patients, caregivers and healthcare professionals on the management of malignant bowel obstruction: A qualitative systematic review	16
Outcomes and measures of delirium interventional studies in palliative care to inform a core outcome set: A systematic review	16
Posttraumatic growth in palliative care settings: A scoping review of prevalence, characteristics and interventions	16
The health of mothers of children with a life-limiting condition: A qualitative interview study	15
Motivations and experiences of patients with advanced cancer participating in Phase 1 clinical trials: A qualitative study	15
Advance care planning and quality of life: A qualitative interview study in people with young-onset dementia and their family caregivers	15
Complexity and function of family involvement in advance care planning: A qualitative study of perspectives from people living with advanced cancer, family members and healthcare professionals	15
Revised European Association for Palliative Care (EAPC) recommended framework on palliative sedation: An international Delphi study	15
Development of the TIFFIN recommendations for co-producing palliative and end-of-life care research with individuals with lived experience of homelessness: A qualitative study	15
Systematic adaptation of public health palliative care interventions across settings using ADAPT guidance: Methodological learnings from the EU NAVIGATE project	15
Creating ‘safe spaces’: A qualitative study to explore enablers and barriers to culturally safe end-of-life care	15
More time in a community setting: A service evaluation of the impact of intrathecal drug delivery systems on place of care of patients with cancer pain	15
The effect of an integrated palliative care intervention on quality of life and acute healthcare use in patients with COPD: Results of the COMPASSION cluster randomized controlled trial	15
Patient perspectives on states worse than death: A qualitative study with implications for patient-centered outcomes and values elicitation	15
Exercise interventions for advanced cancer palliative care patients: A systematic literature review and descriptive evidence synthesis of randomized controlled trials	15
COP27 Climate Change Conference: Urgent action needed for Africa and the world	14
What does effective end-of-life care at home for children look like? A qualitative interview study exploring the perspectives of bereaved parents	14

How palliative care professionals develop coping competence through their career: A grounded theory	14
Models of care for people with dementia approaching end of life: A rapid review	14
The experiences of family members witnessing the diminishing drinking of a dying relative in hospital: A narrative inquiry	14
The importance of methodology to palliative care research: A new article type for Palliative Medicine	14
Efficacy of medicinal cannabis for appetite-related symptoms in people with cancer: A systematic review	14
Opportunities for computational tools in palliative care: Supporting patient needs and lowering burden	14
Palliative care referral criteria and application in pediatric illness care: A scoping review	13
LGBT+ partner bereavement and appraisal of the Acceptance-Disclosure Model of LGBT+ bereavement: A qualitative interview study	13
The experiences, perceptions, and support needs among family caregivers of patients with advanced cancer and eating problems: An integrative review	13
Resilience in advanced cancer caregiving. A systematic review and meta-synthesis	13
Palliative and end-of-life care needs, experiences, and preferences of LGBTQ+ individuals with serious illness: A systematic mixed-methods review	13
Strategies and checklist for designing and conducting palliative care research with family carers: EAPC international expert elicitation study	13
Bereavement outcomes in family members of those who died in acute care hospitals before and during the first wave of COVID-19: A cohort study	13
Description of patient reported experience measures (PREMs) for hospitalised patients with palliative care needs and their families, and how these map to noted areas of importance for quality care: A	13
Safety of subcutaneous plastic cannulas in patients with severe thrombocytopenia: Findings from a retrospective analysis	13
‘Constipation’: One word, many meanings amongst persons with cancer: An observational study	13
What are we planning, exactly? The perspectives of people with intellectual disabilities, their carers and professionals on end-of-life care planning: A focus group study	13
The impact of COVID-19 on palliative care social work: An online survey by a European Association of Palliative Care Task Force	13
Definition and recommendations of advance care planning: A Delphi study in five Asian sectors	13
Identifying barriers and facilitators to palliative care integration in the management of hospitalized patients with COVID-19: A qualitative study	13
A qualitative service evaluation of patient and caregiver experiences of CAR-T therapy: Recommendations for service development and implications for palliative care teams	13
Palliative care for people who use drugs during communicable disease epidemics and pandemics: A scoping review on access, policies, and programs and guidelines	12
Views of patients with progressive illness and carers about the role of digital advance care planning systems to record and share information: A qualitative study	12
Perceptions of prognosis and end-of-life care outcomes in patients with advanced lung and gastrointestinal cancer	12
Associations between physicians’ personal preferences for end-of-life decisions and their own clinical practice: PROPEL survey study in Europe, North America, and Australia	12
Understanding the role and deployment of volunteers within specialist palliative care services and organisations as they have adjusted to the COVID-19 pandemic: A multi-national EAPC volunteer taskfor	12
Inadequate human resources, equipment and training: A qualitative assessment of the objectives of the NUHELP end-of-life care programme in the context of the COVID-19 pandemic	12
The impact of digital health interventions on the psychological outcomes of patients and families receiving paediatric palliative care: A systematic review and narrative synthesis	12
Improving family grief outcomes: A scoping review of family-based interventions before and after the death of a child	12
Determining massage dose-response to improve cancer-related symptom cluster of pain, fatigue, and sleep disturbance: A 7-arm randomized trial in palliative cancer care	12
Effect of continuous deep sedation on survival in the last days of life of cancer patients: A multicenter prospective cohort study	11
Perspectives of inpatients with palliative care needs, their families, clinicians and key stakeholders on measuring quality of hospital care via patient experience measures: A qualitative study	11
Strategies for recruiting the dependent children of patients with a life-limiting illness as research participants	11
Role and response of primary healthcare services in community end-of-life care during COVID-19: Qualitative study and recommendations for primary palliative care delivery	11
Cannabinoids for the treatment of refractory neuropathic pruritus in amyotrophic lateral sclerosis: A case report	11
Validating the socio-spiritual items of the Utrecht Symptom Diary—4 Dimensional: Content and construct validity	11
Non-steroidal anti-inflammatory drugs (NSAIDs) in cancer pain: A database analysis to determine recruitment feasibility for a clinical trial	11
Serious illness care quality during COVID-19: Identifying improvement opportunities in narrative reports from a National Bereaved Family Survey	11
Understanding the experiences of mothers receiving perinatal palliative care: A qualitative study	11
Arts engagement facilitated by artists with individuals with life-limiting illness: A systematic integrative review of the literature	11
Culture in the spotlight—cultural adaptation and content validity of the integrated palliative care outcome scale for dementia: A cognitive interview study	11
Closing the health equity gap in palliative care: The time for action is now	10
End of life care for people with severe mental illness: Mixed methods systematic review and thematic synthesis (the MENLOC study)	10
Area-Based Compassionate Communities: A systematic integrative review of existing initiatives worldwide	10
“Walk me through the final day”: A thematic analysis study on the family caregiver experience of the Medical Assistance in Dying procedure day	10
Primary palliative care in low- and middle-income countries: A systematic review and thematic synthesis of the evidence for models and outcomes	10
The most important components of out-of-hours community care for patients at the end of life: A Delphi study of healthcare professionals’ and patient and family carers’ perspectives	10
Use of long term aprepitant as a treatment for refractory nausea following oesophageal stent insertion – a case report	10
The double awareness of the wish to hasten death and the will to live: A secondary analysis of outlier patients from a mixed-methods study	10
Experiences of transitioning between settings of care from the perspectives of patients with advanced illness receiving specialist palliative care and their family caregivers: A qualitative interview	10
Professionals’, patients’ and families’ views on the use of opioids for chronic breathlessness: A systematic review using the framework method and pillar process	10
Pain assessment tools in paediatric palliative care: A systematic review of psychometric properties and recommendations for clinical practice	10
‘Life became slow down’: A descriptive qualitative study of the experiences of cancer-related fatigue amongst people with advanced lung cancer	10
Time estimates in prognostic discussions: A conversation analytic study of hospice multidisciplinary team meetings	10
“They were here, and they still matter”: A qualitative study of bereaved parents legacy experiences and perceptions	10
How do people in prison access palliative care? A scoping review of models of palliative care delivery for people in prison in high-income countries	10
Implementation of clinical guidelines in specialized palliative care—results from a national improvement project: A national register-based study	9
Moral distress amongst palliative care doctors working during the COVID-19 pandemic: A narrative-focussed interview study	9
‘It’s tough. It is hard’: A qualitative interview study of staff and volunteers caring for hospice in-patients with delirium	9
Facilitating family needs and support at the end of life in hospital: A descriptive study	9
A peripheral opioid antagonist for treating urinary retention induced by opioids: A case report	9
Understanding advance care planning in care homes throughout the COVID-19 pandemic: A critical realist review and synthesis	9
Palliative care volunteering: Pressing challenges in research	9
Mixed methods process evaluation of an advance care planning intervention among nursing home staff	9
Prevalence of grief disorders in bereaved families of cancer patients: A meta-analysis	9
Preserving the integrity of personhood in people with advanced cancer: An in-depth qualitative study among patients, relatives, and care professionals	9
How to enhance advance care planning research?	9
A rapid review of the evidence for online interventions for bereavement support	9
Measuring quality of dying, death and end-of-life care for children and young people: A scoping review of available tools	9
An electronic pre-visit agenda-setting questionnaire in ambulatory palliative care is feasible and acceptable to patients, care partners, and clinicians: A mixed methods evaluation	9
Co-design and prototype development of the ‘Ayzot App’: A mobile phone based remote monitoring system for palliative care	9
Virtual home-based palliative care during COVID-19: A qualitative exploration of the patient, caregiver, and healthcare provider experience	9
Trends in quality of care and dying perceived by family caregivers of nursing home residents with dementia 2005–2019	9
What does ‘good’ palliative care look like for children and young people? A qualitative study of parents’ experiences and perspectives	9