OOIR: Observatory of International Research

Papers

(The TQCC of Journal of Intellectual Disability Research is 5. The table below lists those papers that are above that threshold based on CrossRef citation counts [max. 250 papers]. The publications cover those that have been published in the past four years, i.e., from 2020-05-01 to 2024-05-01.)

Article	Citations
Examining the impact of COVID‐19 in ethnically diverse families with young children with intellectual and developmental disabilities	223
Changes in access to educational and healthcare services for individuals with intellectual and developmental disabilities during COVID‐19 restrictions	183
The use of online support by people with intellectual disabilities living independently during COVID‐19	58
COVID‐19 impact on psychological outcomes of parents, siblings and children with intellectual disability: longitudinal before and during lockdown design	49
Perceptions of people with intellectual and developmental disabilities about COVID‐19 in Spain: a cross‐sectional study	46
Impact of the initial response to COVID‐19 on long‐term care for people with intellectual disability: an interrupted time series analysis of incident reports	41
Weight status and associated comorbidities in children and adults with Down syndrome, autism spectrum disorder and intellectual and developmental disabilities	38
Supporting individuals with intellectual and developmental disability during the first 100 days of the COVID‐19 outbreak in the USA	37
Cause of death in adults with intellectual disability in the United States	34
A meta‐analysis of the executive function components inhibition, shifting, and attention in intellectual disabilities	33
Exploring the experiences of siblings of adults with intellectual/developmental disabilities during the COVID‐19 pandemic	30
Experiences of mothers caring for a child with an intellectual disability during the COVID‐19 pandemic in the Netherlands	28
The impact of COVID‐19 on the social inclusion of older adults with an intellectual disability during the first wave of the pandemic in Ireland	28
Mortality of people with intellectual disabilities during the 2017/2018 influenza epidemic in the Netherlands: potential implications for the COVID‐19 pandemic	28
The association between challenging behaviour and symptoms of post‐traumatic stress disorder in people with intellectual disabilities: a Bayesian mediation analysis approach	23
Participation in sport and physical activity in adults with intellectual disabilities	23
A systematic review of the behaviours associated with depression in people with severe–profound intellectual disability	21
A randomised clinical pilot trial to test the effectiveness of parent training with video modelling to improve functioning and symptoms in children with autism spectrum disorders and intellectual disa	20
Polypharmacy and psychotropic polypharmacy in adults with intellectual disability: a cross‐sectional total population study	20
The effect of 8 weeks of freestyle swim training on the functional fitness of adults with Down syndrome	15
Correlates of physical activity in children and adolescents with intellectual disabilities: a systematic review	15
Beliefs regarding COVID‐19 vaccines among Canadian workers in the intellectual disability sector prior to vaccine implementation	15
Non‐pharmacological interventions for challenging behaviours of adults with intellectual disabilities: A meta‐analysis	15
Development, behaviour and sensory processing in Marshall–Smith syndrome and Malan syndrome: phenotype comparison in two related syndromes	14
Behavioural change in Prader–Willi syndrome during COVID‐19 pandemic	14

Evaluating working memory outcome measures for children with Down syndrome	13
Shedding light on light exposure in elderly with intellectual disabilities	12
Sensory processing profiles and autistic symptoms as predictive factors in autism spectrum disorder and Williams syndrome	12
Latent profiles of autism symptoms in children and adolescents with Down syndrome	12
Diagnostic yield of whole‐exome sequencing in non‐syndromic intellectual disability	12
Cancer diagnoses among older people with intellectual disability compared with the general population: a national register study	12
Language and executive functioning in young adults with Down syndrome	12
Anthropometry does not fully explain low fitness among adults with Down syndrome	12
Shared decision‐making with people with intellectual disabilities in the last phase of life: A scoping review	12
Overweight/obesity and chronic health conditions in older people with intellectual disability in Ireland	11
Concordance of the Adaptive Behavior Assessment System, second and third editions	11
The impact of the COVID‐19 pandemic on the health of adults with intellectual impairment: evidence from two longitudinal UK surveys	11
Using linked administrative data to determine the prevalence of intellectual disability in adult prison in New South Wales, Australia	11
Co‐occurring medical and behavioural conditions in children with Down syndrome with or without ADHD symptom presentation	11
Medical conditions of children and young people with Down syndrome	11
Executive functions and their relationship with intellectual capacity and age in schoolchildren with intellectual disability	11
Advances in the assessment of self‐determination: internal structure of a scale for people with intellectual disabilities aged 11 to 40	10
The impact of emotional development in people with autism spectrum disorder and intellectual developmental disability	10
Psychotropic medications use and side effects of individuals with intellectual and developmental disabilities	10
The effect of the adapted soccer programme on motor learning and psychosocial behaviour in adolescents with Down syndrome	10
Exposure to challenging behaviours and burnout symptoms among care staff: the role of psychological resources	10
Efficacy and safety of methylphenidate on attention deficit hyperactivity disorder in children with Down syndrome	10
Exploration of diet, physical activity, health knowledge and the cardiometabolic profile of young adults with intellectual disability	10
Psychosocial and cultural needs of children with intellectual disability and their families among the Syrian refugee population in Turkey	10
Cognitive profile of young children with Williams syndrome	10
Changes in community and hospital‐based health care use during the COVID‐19 pandemic for adults with and without intellectual and developmental disabilities	9
Factor structure of the professional quality of life scale among direct support professionals: factorial validity and scale reliability	9
A socio‐emotional analysis of technology use by people with intellectual disabilities	9
Using behavioural skills training via telehealth to increase teachers use of communication interventions and increase student use of speech‐generating devices in a high school functional skills classr	9
A distinct cognitive profile in individuals with 3q29 deletion syndrome	9
How do multimorbidity and lifestyle factors impact the perceived health of adults with intellectual disabilities?	9
Down syndrome caregivers' support needs: a mixed‐method participatory approach	9
Mental health and COVID‐19: The impact of a virtual course for family caregivers of adults with intellectual and developmental disabilities	9
The willingness of UK adults with intellectual disabilities to take COVID‐19 vaccines	9
Family‐based social capital of emerging adults with and without mild intellectual disability	8
Prevalence of psychotropic medication and factors associated with antipsychotic treatment in adults with intellectual disabilities: a cross‐sectional, epidemiological study in Germany	8
Comparative analysis of self‐injurious behaviour topographies in young children with and without developmental delay	8
Reconciling communication repertoires: navigating interactions involving persons with severe/profound intellectual disability, a classic grounded theory study	8
The LEDs move pilot study: the Light Curtain and physical activity and well‐being among people with visual and intellectual disabilities	8
Feasibility of a syndrome‐informed micro‐intervention for infants with Down syndrome	8
Metabolic syndrome and its components in people with intellectual disability: a meta‐analysis	8
Reactivity to accelerometer measurement of youth with moderate and severe intellectual disabilities	8
Mental ill‐health in mothers of people with intellectual disabilities compared with mothers of typically developing people: a systematic review and meta‐analysis	8
Coercive parenting: modifiable and nonmodifiable risk factors in parents of children with developmental disabilities	8
Executive functions and adaptive behaviour in individuals with Down syndrome	7
Feasibility and reliability of the Assessing Levels of Physical Activity health‐related fitness test battery in adults with intellectual disabilities	7
Changes in physical activity across a 6‐month weight loss intervention in adolescents with intellectual and developmental disabilities	7
Electroencephalographic functional connectivity is altered in persons with Down syndrome and Alzheimer's disease	7
A systematic review of relationships and sex education outcomes for students with intellectual disability reported in the international literature	7
Family quality of life among Taiwanese children with developmental delay before and after early intervention	7

Goal‐directed action planning in infants with Down syndrome	7
Validation of the Japanese version of the Dementia Screening Questionnaire for Individuals with Intellectual Disabilities	7
Healthcare utilisation and unmet health needs in children with intellectual disability: a propensity score matching approach using longitudinal cohort data	7
Executive function and intellectual disability: innovations, methods and treatment	7
An exploratory study of self‐reported complicated grief symptoms in parentally bereaved adults with intellectual disability	7
Social and community inclusion outcomes for adults with autism with and without intellectual disability in Australia	6
Relationships among gastrointestinal symptoms, sleep problems, challenging behaviour, comorbid psychopathology and autism spectrum disorder symptoms in children and adolescents with 15q duplication sy	6
Promoting self‐determination of persons with severe or profound intellectual disabilities: a systematic review and meta‐analysis	6
Trends and predictions for survival and mortality in individuals with Down syndrome in Brazil: A 21‐year analysis	6
Infant precursors of executive function in Down syndrome	6
Comparing the fundamental movement skill proficiency of children with intellectual disabilities and typically developing children: a systematic review and meta‐analysis	6
Physical activity and sedentary behaviour among children and adolescents with intellectual disabilities during the COVID‐19 lockdown in China	6
Diagnostic yield of microarrays in individuals with non‐syndromic developmental delay and intellectual disability	6
A systematic review of behaviour analytic interventions for young children with intellectual disabilities	6
Physical activity, sedentary behaviour and screen time among youths with Down syndrome during the COVID‐19 pandemic	6
Cognitive assessment using the Rapid Assessment for Developmental Disabilities, Second Edition (RADD‐2)	6
Identifying dementia in Down syndrome with the Severe Impairment Battery, Brief Praxis Test and Dementia Scale for People with Learning Disabilities	6
Neurocognitive functioning of children with mild to borderline intellectual disabilities and psychiatric disorders: profile characteristics and predictors of behavioural problems	6
Involving adolescents with intellectual disability in the adaptation of self‐reported subjective well‐being measures: participatory research and methodological considerations	6
Comparison of forward and backward gait in males with and without intellectual disabilities	6
Risk of anticholinergic burden in adults with intellectual disabilities: a Scottish retrospective cohort study of n = 17 220	6
Association of BDNF levels with IQ: comparison of S100B and BDNF levels in typically developing children and subjects with neurologically normal nonsyndromic intellectual disability	6
Caregiver knowledge of obstructive sleep apnoea in Down syndrome	6
Light up: an intervention study of the effect of environmental dynamic lighting on sleep–wake rhythm, mood and behaviour in older adults with intellectual disabilities	5
Factors associated with the reporting of Down syndrome as the underlying cause of death on US death certificates	5
Hyperactive behaviour in Angelman syndrome: the association with sleep problems and age of epilepsy onset	5
Updated profiles of everyday executive function in youth with Down syndrome using the BRIEF‐2	5
A preliminary study of cerebral blood flow, aging and dementia in people with Down syndrome	5
Racial‐ethnic differences in educational trajectories for individuals with intellectual disability	5
Effects of running exercises on reaction time and working memory in individuals with intellectual disability	5
Effects of classroom‐based active breaks on cognition, sitting and on‐task behaviour in children with intellectual disability: a pilot study	5
Borderline intellectual functioning: an increased risk of severe psychiatric problems and inability to work	5
Intellectual disabilities moderate sex/gender differences in autism spectrum disorder: a systematic review and meta‐analysis	5
Nutrient adequacy, dietary patterns and diet quality among children with and without intellectual disabilities	5
Intrapersonal, interpersonal and environmental correlates of moderate to vigorous physical activity and sedentary time in adolescents with intellectual and developmental disabilities	5
Oral health care and service utilisation in individuals with Rett syndrome: an international cross‐sectional study	5
Health in Down syndrome: creating a conceptual model	5
Individual and contextual predictors of retention in Special Olympics for youth with intellectual disability: who stays involved?	5
A survey study of the attitudes and experiences of adults with intellectual disability regarding participation in research	5
Working memory training in children with borderline intellectual functioning and neuropsychiatric disorders: a triple‐blind randomised controlled trial	5
Parent perceptions regarding literacy instruction for students with intellectual disability	5
A pilot randomised controlled trial of befriending by volunteers in people with intellectual disability and depressive symptoms	5