Patient-Patient Centered Outcomes Research

Papers
(The median citation count of Patient-Patient Centered Outcomes Research is 2. The table below lists those papers that are above that threshold based on CrossRef citation counts [max. 250 papers]. The publications cover those that have been published in the past four years, i.e., from 2021-11-01 to 2025-11-01.)
ArticleCitations
Development of Patient and Caregiver Conceptual Models Investigating the Health-Related Quality of Life Impacts of Malignant Pleural Mesothelioma34
Fighting to Breathe and Fighting for Health-Related Quality of Life: Measuring the Impact of Being Dependent on Technology for Breathing on the Child and Their Caregiver30
Exploring the Preferences of the Australian Public for Antibiotic Treatments: A Discrete Choice Experiment30
Preferences of Patients with Amyotrophic Lateral Sclerosis for Intrathecal Drug Delivery: Choosing between an Implanted Drug-Delivery Device and Therapeutic Lumbar Puncture27
Perspectives of Pediatric Rheumatologists on Initiating and Tapering Biologics in Patients with Juvenile Idiopathic Arthritis: A Formative Qualitative Study26
Prosocial Behaviour and Antibiotic Resistance: Evidence from a Discrete Choice Experiment25
Acknowledgement to Referees24
Developing a Conceptual Framework for Socioeconomic Impact Research in European Cancer Patients: A ‘Best-Fit’ Framework Synthesis23
Exploring the Impact of a Context-Adapted Decision Aid and Online Training About Shared Decision Making About Goals of Care with Elderly Patients in the Intensive Care Unit: A Mixed-Methods Study20
Eliciting Patient Preferences for the Hospital at Home Programme in Singapore; A Discrete Choice Experiment18
15th Meeting of the International Academy of Health Preference Research17
Adverse Event Reporting in Cancer Clinical Trials: Incorporating Patient-Reported Methods. A Systematic Scoping Review17
Exit Interviews to Understand Meaningful Change from the Patient Perspective in a Clinical Study of Dupilumab for the Treatment of Chronic Inducible Cold Urticaria17
Evaluation Tools for Patient and Public Involvement (PPI) in Health Research: A Scoping Review16
A Standard Set of Value-Based Patient-Centered Outcomes and Measures of Overall Health in Adults16
Gauging Incentive Values and Expectations (G.I.V.E.) among Blood Donors for Nonmonetary Incentives: Developing a Preference Elicitation Instrument through Qualitative Approaches in Shandong, China16
Developing Tools for the Efficient Design of Health Preference Studies: Taxonomy of Attributes and Prototype of an Attribute Library15
Patient and Public Preferences for Coordinated Care in Switzerland: Development of a Discrete Choice Experiment15
What Matters for Evaluating the Quality of Mental Healthcare? Identifying Important Aspects in Qualitative Focus Groups with Service Users and Frontline Mental Health Professionals15
Getting Everyone on Board to Break the Cycle of Bacterial Vaginosis (BV) Recurrence: A Qualitative Study of Partner Treatment for BV14
Long-Term Improvement in the Patient-Reported Outcomes of Rectal Bleeding, Stool Frequency, and Health-Related Quality of Life with Tofacitinib in the Ulcerative Colitis OCTAVE Clinical Program14
Acknowledgement to Referees13
Patient Experience of Treatment with Tirzepatide for Weight Management: Exit Interviews from SURMOUNT-413
Challenges in Using Recommended Quality of Life Measures to Assess Fluctuating Health: A Think-Aloud Study to Understand How Recall and Timing of Assessment Influence Patient Responses13
14th Meeting of the International Academy of Health Preference Research11
Correction to: Do Cash-For-Care Schemes Increase Care Users’ Experience of Empowerment? A Systematic Review11
How do Design Characteristics Affect Respondent Engagement? Assessing Attribute Non-attendance in Discrete Choice Experiments Valuing the EQ-5D-5L10
Time to See the Difference: Video Capture for Patient-Centered Clinical Trials10
Preferences for the Societal Impacts of a Pandemic when it Transitions into an Endemic: A Discrete Choice Experiment10
What Aspects of Quality of Life are Important from Palliative Care Patients’ Perspectives? A Framework Analysis to Inform Preference-Based Measures for Palliative and End-of-Life Settings9
A Novel Approach to Computing Preference Estimates for Different Treatment Pathways: An Application in Oncology9
Unravelling the Self-Report Versus Proxy-Report Conundrum for Older Aged Care Residents: Findings from a Mixed-Methods Study9
Physical Activity Preferences of People Living with Brain Injury: Formative Qualitative Research to Develop a Discrete Choice Experiment9
Patient-Reported Outcomes for Fully Vaccinated COVID-19 Patients Over 6 Weeks: The Experiences of Clinical Breakthrough Cases9
A Systematic Literature Review of Preference Studies in Migraine Treatments9
The Role of Patient-Reported Outcomes to Measure Treatment Satisfaction in Drug Development9
Patients’ Needs and Preferences for Cardiac Pacemaker Implantation: A Qualitative Study on Disease and Medical Device Characteristics to Inform a Quantitative Preference Study9
Determining the Content Validity of the EQ-5D-5L, EQ-5D-Y-3L, and CHU9D Instruments for Assessing Generic Child and Adolescent Health-Related Quality of Life: A Qualitative Study9
Considering Clinical Implementation of Polygenic Scores in Hereditary Cancer Risk Assessment: Recipients’ Perspectives on Influencing Factors and Strategies8
Improving Interpretation of Evidence Relating to Quality of Life in Health Technology Assessments of Rare Disease Treatments8
Correction: Exploring Consumers’ Motivations and Experiences of Engaging as Partners in Cancer Research8
Meaningful Improvement in General Health Outcomes with Guselkumab Treatment for Psoriatic Arthritis: Patient-Reported Outcomes Measurement Information System-29 Results from a Phase 3 Study7
Patients as Partners in Sickle Cell Disease Research in Africa: A Framework for Equitable Patient-Engaged Health Research7
Quality of Life in Adults with Chronic Cough: A Mixed Methods Study Informing the Development of a Quantitative Patient Preference Study7
Patient-Centered Clinical Trial Design for Heart Failure Devices via Bayesian Decision Analysis7
Measuring Patient Preferences to Inform Clinical Trial Design: An Example in Rheumatoid Arthritis7
So You Want to Build Your Disease’s First Online Patient Registry: An Educational Guide for Patient Organizations Based on US and European Experience7
Evaluating Comprehensibility of 157 Patient-Reported Outcome Measures (PROMs) in the Nationwide Dutch Outcome-Based Healthcare Program: More Attention for Comprehensibility of PROMs is Needed7
Discrete Choice Experiment Versus Best–Worst Scaling: An Empirical Comparison in Eliciting Young People’s Preferences for Web-Based Mental Health Interventions7
Acknowledgement to Referees7
Preferences of Recent Mums in Remote and Rural Areas for Type of Intrapartum Care: A Discrete Choice Experiment7
Correction to: How Does the Public Evaluate Vaccines for Low‑Incidence, Severe‑Outcome Diseases? A General‑Population Choice Experiment7
Content Validity Assessment of the Insomnia Daytime Symptoms and Impacts Questionnaire (IDSIQ) Among Adults with Insomnia and Nocturia6
How Do People with Experience of Infertility Value Different Aspects of Assistive Reproductive Therapy? Results from a Multi-Country Discrete Choice Experiment6
Stated Preferences of At-Risk Populations for the Treatment of Osteoporosis: A Systematic Review6
Using Patient Preferences in Health Technology Assessment: Evaluating Quality-Adjusted Survival Equivalents (QASE) for the Quantification of Non-health Benefits6
16th Meeting of the International Academy of Health Preference Research6
Systematic Review of the Effect of a One-Day Versus Seven-Day Recall Duration on Patient Reported Outcome Measures (PROMs)6
A Best–Worst Scaling Study of the General Population's Preferences for Activities in Living Arrangements for Persons With Dementia6
Discrete Choice Experiments to Elicit Patient Preferences for the Treatment of Major Depressive Disorder: A Systematic Review6
Validity and Responsiveness of EQ-5D in Asthma: A Systematic Review and Meta-analysis6
Determining Commonalities in the Experiences of Patients with Rare Diseases: A Qualitative Analysis of US Food and Drug Administration Patient Engagement Sessions6
The Pogo-ization of Post-Pandemic Vaccine Policy5
Eliciting Older Cancer Patients’ Preferences for Follow-Up Care to Inform a Primary Healthcare Follow-Up Model in China: A Discrete Choice Experiment5
Including Young Children in the Development and Testing of Patient Reported Outcome (PRO) Instruments: A Scoping Review of Children’s Involvement and Qualitative Methods5
Patient Preferences in Diagnostic Imaging: A Scoping Review5
FDA Guidance on Selecting, Developing, or Modifying Fit-for-Purpose Clinical Outcome Assessments: Old Wine in a New Bottle?5
Methods to Summarize Discrete-Choice Experiments in a Systematic Review: A Scoping Review5
Exit Interviews Examining the Patient Experience in Clinical Trials of Tirzepatide for Treatment of Type 2 Diabetes5
Treatment Preference Research in Atopic Dermatitis: A Systematic Review of Quantitative Studies5
A New Framework for Co-Creating Telehealth for Cancer Care with the Patient Community5
Patients’ Experiences of Atopic Dermatitis and Nemolizumab Treatment: An In-Trial Interview Study Embedded in a Phase 3 Clinical Trial (ARCADIA)5
Concerns about the Responsiveness of Generic Measures and the Search for a “Minimally” Important Change: Today’s PRO Red Herrings5
Comparing Outcomes of a Discrete Choice Experiment and Case 2 Best-Worst Scaling: An Application to Neuromuscular Disease Treatment5
Patient Preferences for Multi-Cancer Early Detection (MCED) Screening Tests5
Development of an Item Bank to Assess Patient-Reported Outcomes: Signs, Symptoms, and Impacts of COVID-195
Patient Preferences in the Management of Hidradenitis Suppurativa: Results of a Multinational Discrete Choice Experiment in Europe5
Current Practices and Challenges When Submitting Patient Experience Data for Regulatory Decisions by the US Food and Drug Administration: An Industry Survey5
Improvements to Survey Design from Pilot Testing a Discrete-Choice Experiment of the Preferences of Persons Living with HIV for Long-Acting Antiretroviral Therapies5
A Qualitative Exploration of Patient and Staff Experiences of the Receipt and Delivery of Specialist Weight Management Services in the UK4
Patients’ Preferences for Systemic Lupus Erythematosus Treatments—A Discrete Choice Experiment4
A Foundation for Patient-Centered Core Impact Sets: Key Learnings from Past and Existing Approaches4
Constructing Health State Descriptions for Low-Risk Thyroid Cancer: Stakeholder Engagement and Formative Qualitative Research4
Correction: Patients’ Needs and Preferences for Cardiac Pacemaker Implantation: A Qualitative Study on Disease and Medical Device Characteristics to Inform a Quantitative Preference Study4
Measuring and Demonstrating the Value of Patient Engagement Across the Medicines Lifecycle: A Patient Engagement Impact Measurement Framework4
Preferences for Adjuvant Immunotherapy in Adults with Resected Stage III Melanoma—A Discrete Choice Experiment4
Evaluating the Preferences and Willingness-to-Pay for Oral Antidiabetic Drugs Among Patients with Type 2 Diabetes Mellitus in China: A Discrete Choice Experiment4
Studying How Patient Engagement Influences Research: A Mixed Methods Study4
Community Preferences for the Care of Older People at the End of Life: How Important is the Disease Context?4
Research Priorities to Increase Confidence in and Acceptance of Health Preference Research: What Questions Should be Prioritized Now?4
Preferences for the Use of Artificial Intelligence for Breast Cancer Screening in Australia: A Discrete Choice Experiment4
Identifying and Managing Fraudulent Respondents in Online Stated Preferences Surveys: A Case Example from Best–Worst Scaling in Health Preferences Research3
Patient Preferences for Pharmacy Services: A Systematic Review of Studies Based on Discrete Choice Experiments3
Decision Making About Disease-Modifying Treatments for Relapsing-Remitting Multiple Sclerosis: Stated Preferences and Real-World Choices3
A Review of the Use of EQ-5D for Clinical Outcome Assessment in Health Technology Assessment, Regulatory Claims, and Published Literature3
The Limitations of EQ-5D as a Clinical Outcome Assessment Tool3
Co-designing Healthcare Interventions with Users: A Discrete Choice Experiment to Understand Young People’s Preferences for Sexual and Reproductive Health Services in Lusaka, Zambia3
How Does the Public Evaluate Vaccines for Low-Incidence, Severe-Outcome Diseases? A General-Population Choice Experiment3
Which Factors Influence Decisions to Withdraw from Eculizumab: A Qualitative Study of Patients Diagnosed with aHUS3
Impact of Difelikefalin on the Health-Related Quality of Life of Haemodialysis Patients with Moderate-To-Severe Chronic Kidney Disease-Associated Pruritus: A Single-Arm Intervention Trial3
Putting the Choice in Choice Tasks: Incorporating Preference Elicitation Tasks in Health Preference Research3
Cancer Survivor Preferences for Models of Breast Cancer Follow-Up Care: Selecting Attributes for Inclusion in a Discrete Choice Experiment3
What Do People Want from an AI-Assisted Screening App for Sexually Transmitted Infection-Related Anogenital Lesions: A Discrete Choice Experiment3
Subcutaneous Infusion of Benzathine Penicillin G Is Acceptable and Preferred Over Intramuscular Injections for Syphilis in Western Australian Sexual Health Clinic Attendees: A Mixed Methods Sub-study3
Women’s Willingness to Accept Risks of Medication for Inflammatory Bowel Disease During Pregnancy3
Design and Administration of Patient-Centred Outcome Measures: The Perspectives of Children and Young People with Life-Limiting or Life-Threatening Conditions and Their Family Members3
Increasing the Patient-Centeredness of Predictive Analytics Tools3
What is the Most Valid and Reliable Compassion Measure in Healthcare? An Updated Comprehensive and Critical Review2
Qualitative Research Informing a Preference Study on Selecting Cannabis for Cancer Survivor Symptom Management: Design of a Discrete Choice Experiment2
Qualitative In-trial Interviews: Methods, Challenges, and Best Practice2
Practical considerations towards the collection of patient reported outcome data among hematopoietic cell transplant recipients 2
Content Validity of the EQ-HWB in Caregivers of Children with Health Conditions2
Preferences of People Living with HIV for Long-Acting Antiretroviral Treatment in Germany: Evidence from a Discrete Choice Experiment2
What Next for the Science of Patient Preference? Interoperability, Standardization, and Transferability2
Preferences for Neurodevelopmental Follow-Up Care for Children: A Discrete Choice Experiment2
Long COVID Citizen Scientists: Developing a Needs-Based Research Agenda by Persons Affected by Long COVID2
Using Best–Worst Scaling Survey to Investigate the Relative Importance of Attributes Associated with Public Hospital Outpatient Appointments2
Attribute Development and Level Selection for a Discrete Choice Experiment to Elicit Care Preferences of Older Adults and Informal Caregivers Aging in Place in The Netherlands2
Patient-Reported Meaningful Change in Symptoms and Impacts of Paroxysmal Nocturnal Hemoglobinuria (PNH) in Three Phase III Clinical Trials of Iptacopan2
The Application of Preference Elicitation Methods in Clinical Trial Design to Quantify Trade-Offs: A Scoping Review2
A Framework to Promote Implementation of Patient-Reported Outcomes in Institutions Caring for Vulnerable and Underserved Cancer Populations2
The Patient Voice: Exploring Treatment Preferences in Participants with Mild Cognitive Concerns to Inform Regulatory Decision Making2
An Overview of Data Collection in Health Preference Research2
Taking the Shortcut: Simplifying Heuristics in Discrete Choice Experiments2
Who Prefers Death to Life in Composite Time Trade-off Interviews, and Why? A Mixed-Methods Study among Asians in Singapore2
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