Patient-Patient Centered Outcomes Research

Papers
(The TQCC of Patient-Patient Centered Outcomes Research is 7. The table below lists those papers that are above that threshold based on CrossRef citation counts [max. 250 papers]. The publications cover those that have been published in the past four years, i.e., from 2020-05-01 to 2024-05-01.)
ArticleCitations
Conducting Qualitative Research Online: Challenges and Solutions69
United States COVID-19 Vaccination Preferences (CVP): 2020 Hindsight41
Shared Decision Making in Surgery: A Meta-Analysis of Existing Literature37
The Use of Patient-Reported Outcome Measures in Rare Diseases and Implications for Health Technology Assessment33
Development of a Patient-Reported Outcome Measure for Non-Alcoholic Steatohepatitis (NASH-CHECK): Results of a Qualitative Study33
Respondent Understanding in Discrete Choice Experiments: A Scoping Review30
Eliciting Preferences for HIV Prevention Technologies: A Systematic Review30
Patient-Reported Outcomes Through 1 Year of an HIV-1 Clinical Trial Evaluating Long-Acting Cabotegravir and Rilpivirine Administered Every 4 or 8 Weeks (ATLAS-2M)28
Measurement Properties of the EQ-5D-5L and EQ-5D-3L in Six Commonly Diagnosed Cancers26
Patient- and Caregiver-Reported Burden of Transfusion-Dependent β-Thalassemia Measured Using a Digital Application23
Developing a Framework for Public Involvement in Mathematical and Economic Modelling: Bringing New Dynamism to Vaccination Policy Recommendations23
Exploring the Trade-Off Between Economic and Health Outcomes During a Pandemic: A Discrete Choice Experiment of Lockdown Policies in Australia23
Time for Tele-TTO? Lessons Learned From Digital Interviewer-Assisted Time Trade-Off Data Collection22
Perceived Utility of Genomic Sequencing: Qualitative Analysis and Synthesis of a Conceptual Model to Inform Patient-Centered Instrument Development22
Involving Patients in Health Economics Research: “The PACTS Principles”22
Use of Patient Preferences in Health Technology Assessment: Perspectives of Canadian, Belgian and German HTA Representatives21
The Perspectives of Patients with Chronic Diseases and Their Caregivers on Self-Management Interventions: A Scoping Review of Reviews20
Stakeholder-Engaged Derivation of Patient-Informed Value Elements19
Development and Validation of the Insomnia Daytime Symptoms and Impacts Questionnaire (IDSIQ)18
A Systematic Review of Discrete Choice Experiments in Oncology Treatments17
QALYs for COVID-19: A Comparison of US EQ-5D-5L Value Sets17
Patient and Public Involvement in Health Economics and Outcomes Research17
What Factors Influence Non-Participation Most in Colorectal Cancer Screening? A Discrete Choice Experiment16
Identifying Unmet Care Needs and Important Treatment Attributes in the Management of Hidradenitis Suppurativa: A Qualitative Interview Study15
Utilising Patient and Public Involvement in Stated Preference Research in Health: Learning from the Existing Literature and a Case Study15
Patient Engagement Partnerships in Clinical Trials: Development of Patient Partner and Investigator Decision Aids15
Health Literacy: The Common Denominator of Healthcare Progress14
Benefit–Risk or Risk–Benefit Trade-Offs? Another Look at Attribute Ordering Effects in a Pilot Choice Experiment13
Quantitative Preferences for Lung Cancer Treatment from the Patients’ Perspective: A Systematic Review13
Women’s Experiences of and Perspectives on Transvaginal Mesh Surgery for Stress Urine Incontinency and Pelvic Organ Prolapse: A Qualitative Systematic Review13
Outcome-Based Payment Schemes: What Outcomes Do Patients with Cancer Value?12
Patient-Powered Research Networks of the Autoimmune Research Collaborative: Rationale, Capacity, and Future Directions12
How Do Respondents Interpret and View the EQ-VAS? A Qualitative Study of Three Asian Populations12
Public Preferences for Allocating Ventilators in an Intensive Care Unit: A Discrete Choice Experiment12
Long COVID Citizen Scientists: Developing a Needs-Based Research Agenda by Persons Affected by Long COVID12
The Successful Return-To-Work Questionnaire for Cancer Survivors (I-RTW_CS): Development, Validity and Reproducibility12
Patient-Reported Experience and Outcome Measures in People Living with Diabetes: A Scoping Review of Instruments12
Patient and Public Involvement (PPI) in Health Economics Methodology Research: Reflections and Recommendations11
A Systematic Review of Discrete Choice Experiments and Conjoint Analysis on Genetic Testing11
What is the Most Valid and Reliable Compassion Measure in Healthcare? An Updated Comprehensive and Critical Review11
Designing Discrete Choice Experiments Using a Patient-Oriented Approach11
Mapping the Chinese Version of the EORTC QLQ-BR53 Onto the EQ-5D-5L and SF-6D Utility Scores11
Shared Decision Making in a Youth Mental Health Service Design and Research Project: Insights From the Pan-Canadian ACCESS Open Minds Network10
Patient and Family Caregiver Considerations When Selecting Early Breast Cancer Treatment: Implications for Clinical Pathway Development10
Patient Perceptions Regarding Multiple Myeloma and Its Treatment: Qualitative Evidence from Interviews with Patients in the United Kingdom, France, and Germany10
Patient Experiences with Avelumab in Treatment-Naïve Metastatic Merkel Cell Carcinoma: Longitudinal Qualitative Interview Findings from JAVELIN Merkel 200, a Registrational Clinical Trial10
Attributes Used for Cancer Screening Discrete Choice Experiments: A Systematic Review9
Patient-Centered Core Impact Sets: What They are and Why We Need Them9
Opportunities to Improve Long COVID Care: Implications from Semi-structured Interviews with Black Patients9
Rethinking Patient Engagement in Cancer Research9
Perceived Benefits and Facilitators and Barriers to Providing Psychosocial Interventions for Informal Caregivers of People with Rare Diseases: A Scoping Review9
Increasing the Patient-Centeredness of Health Economics and Outcomes Research Through Patient Engagement in Core Outcome Set Development9
An Evidence-Based Theory About PRO Use in Kidney Care: A Realist Synthesis9
Mobilising the Next Generation of Stated-Preference Studies: the Association of Access Device with Choice Behaviour and Data Quality9
Challenges in Using Recommended Quality of Life Measures to Assess Fluctuating Health: A Think-Aloud Study to Understand How Recall and Timing of Assessment Influence Patient Responses8
Taking the Shortcut: Simplifying Heuristics in Discrete Choice Experiments8
Methodological Priorities for Patient Preferences Research: Stakeholder Input to the PREFER Public–Private Project8
Should I Have Adjuvant Immunotherapy? An Interview Study Among Adults with Resected Stage 3 Melanoma and Their Partners8
Patient Preferences for Multi-Cancer Early Detection (MCED) Screening Tests8
Comparing Patient Preferences for Antithrombotic Treatment During the Acute and Chronic Phases of Myocardial Infarction: A Discrete-Choice Experiment8
Designing HIV Testing and Self-Testing Services for Young People in Nigeria: A Discrete Choice Experiment8
The Impact of Patient Support Programs in Europe: A Systematic Literature Review8
Valuing End-of-Life Care for Older People with Advanced Cancer: Is Dying at Home Important?8
What Author Instructions Do Health Journals Provide for Writing Plain Language Summaries? A Scoping Review8
Comparing the Preferences of Patients and the General Public for Treatment Outcomes in Type 2 Diabetes Mellitus8
Patient Commentary: Added Value and Validity to Research Outcomes Through Thoughtful Multifaceted Patient-Oriented Research8
Exploring the Comparability of Face-to-Face Versus Video Conference-Based Composite Time Trade-Off Interviews: Insights from EQ-5D-Y-3L Valuation Studies in Belgium and Spain8
Exit Interviews Examining the Patient Experience in Clinical Trials of Tirzepatide for Treatment of Type 2 Diabetes7
A Standard Set of Value-Based Patient-Centered Outcomes and Measures of Overall Health in Adults7
Understanding Attributes that Influence Physician and Caregiver Decisions About Neurotechnology for Pediatric Drug-Resistant Epilepsy: A Formative Qualitative Study to Support the Development of a Dis7
Beliefs and Values About Gene Therapy and In-Utero Gene Editing in Patients with Hemophilia and Their Relatives7
Don’t Forget the Caregivers! A Discrete Choice Experiment Examining Caregiver Views of Integrated Youth Services7
Utility Values for the CP-6D, a Cerebral Palsy-Specific Multi-Attribute Utility Instrument, Using a Discrete Choice Experiment7
Improvements to Survey Design from Pilot Testing a Discrete-Choice Experiment of the Preferences of Persons Living with HIV for Long-Acting Antiretroviral Therapies7
Willingness to Wait for a Vaccine Against COVID-19: Results of a Preference Survey7
Patient Preferences in Rare Diseases: A Qualitative Study in Neuromuscular Disorders to Inform a Quantitative Preference Study7
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