OOIR: Observatory of International Research

Papers

(The TQCC of Journal of Applied Research in Intellectual Disabilities is 5. The table below lists those papers that are above that threshold based on CrossRef citation counts [max. 250 papers]. The publications cover those that have been published in the past four years, i.e., from 2020-05-01 to 2024-05-01.)

Article	Citations
Effect of the COVID‐19 pandemic on the mental health of carers of people with intellectual disabilities	181
Looking back, looking forward: Methodological challenges and future directions in research on persons with profound intellectual and multiple disabilities	52
Parents' knowledge of their child with profound intellectual and multiple disabilities: An interpretative synthesis	50
Experiences and needs of direct support staff working with people with intellectual disabilities during the COVID‐19 pandemic: A thematic analysis	48
The experiences of mothers of children and young people with intellectual disabilities during the first COVID‐19 lockdown period	47
Trauma experiences of people with an intellectual disability and their implications: A scoping review	38
Factors influencing access to early intervention for families of children with developmental disabilities: A narrative review	36
A comparison of the prevalence of health problems among adults with and without intellectual disability: A total administrative population study	27
The impact of self‐advocacy organizations on the subjective well‐being of people with intellectual disabilities: A systematic review of the literature	27
eHealth in the support of people with mild intellectual disability in daily life: A systematic review	26
Evidence of continued reduction in the age‐at‐death disparity between adults with and without intellectual and/or developmental disabilities	23
A qualitative study on parents’ concerns about adult children with intellectual disabilities amid the COVID‐19 pandemic in South Korea	23
The role of mobile technology in promoting social inclusion among adults with intellectual disabilities	22
Effectiveness of active video game usage on body composition, physical activity level and motor proficiency in children with intellectual disability	21
People with intellectual disability in Ireland are still dying young	20
Last months of life of people with intellectual disabilities: A UK population‐based study of death and dying in intellectual disability community services	19
Employment for persons with intellectual disability in the Nordic countries: A scoping review	19
Social support as a mediator of stress and life satisfaction for people with intellectual or developmental disabilities during the COVID‐19 pandemic	19
Physical activity patterns in adults with Down Syndrome	19
Approaches to and outcomes of future planning for family carers of adults with an intellectual disability: A systematic review	18
The value of competitive employment: In‐depth accounts of people with intellectual disabilities	17
Evaluation of the National Task Group‐Early Detection Screen for Dementia: Sensitivity to ‘mild cognitive impairment’ in adults with Down syndrome	17
People with intellectual disabilities living in care facilities engaging in virtual social contact: A systematic review of the feasibility and effects on well‐being	16
Impact of COVID‐19 on the burden of care of families of people with intellectual and developmental disabilities	16
Social networks and people with intellectual disabilities: A systematic review	16

Social inclusion of LGBTQ and gender diverse adults with intellectual disability in disability services: A systematic review of the literature	16
‘It's been adapted rather than impacted’: A qualitative evaluation of the impact of Covid‐19 restrictions on the positive behavioural support of people with an intellectual disability and/or autism	15
Effects of physical activity on behaviour and emotional problems, mental health and psychosocial well‐being in children and adolescents with intellectual disability: A systematic review	15
Proxy‐report in individuals with intellectual disability: A scoping review	15
Group Cognitive Behavioural Treatment for Anxiety in Autistic Adolescents with Intellectual Disability: A Pilot and Feasibility Study	15
Deaths of people with intellectual disabilities: Analysis of deaths in England from COVID‐19 and other causes	15
How can care settings for people with intellectual disabilities embed health promotion?	15
Staff member's views and attitudes to supporting people with an Intellectual Disability: A multi‐method investigation of intimate relationships and sexuality	14
Barriers and facilitators of physical activity in adolescents with intellectual disabilities: An analysis informed by the COM‐B model	14
The impact of competitive integrated employment on economic, psychological, and physical health outcomes for individuals with intellectual and developmental disabilities	14
Anxiety characteristics in individuals with Williams syndrome	13
Outcomes and costs of skilled support for people with severe or profound intellectual disability and complex needs	13
The ADaptive Ability Performance Test (ADAPT): A new instrument for measuring adaptive skills in people with intellectual disabilities and borderline intellectual functioning	13
Exploring parents' experiences of promoting physical activity for their child with intellectual disabilities	13
Postural balance problems in people with intellectual disabilities: Do not forget the sensory input systems	12
Detection and prevention of abuse of adults with intellectual and other developmental disabilities in care services: A systematic review	12
Homelessness and people with intellectual disabilities: A systematic review of the international research evidence	12
The nature and quality of friendship for older adults with an intellectual disability in Ireland	12
Static postural balance between male athletes with intellectual disabilities and their sedentary peers: A comparative study	12
Psychological eHealth interventions for people with intellectual disabilities: A scoping review	12
The neglected puzzle of dementia in people with severe/profound intellectual disabilities: A systematic literature review of observable symptoms	11
A person‐centred approach to implementation of psychosocial interventions with people who have an intellectual disability and dementia—A participatory action study	11
Mediating effects of family functioning on the relationship between care burden and family quality of life of caregivers of children with intellectual disabilities in Mongolia	11
Community participation in adults with autism: A systematic review	11
Does talking about end of life with adults with intellectual disability cause emotional discomfort or psychological harm?	10
Effectiveness of the online mindset intervention ‘The Growth Factory’ for adolescents with intellectual disabilities	10
Experience sampling method and the everyday experiences of adults with intellectual disability: A feasibility study	10
Estimating sexual knowledge of people with mild intellectual disability through a valid and reliable assessment scale: The ISK‐ID	10
Predictors of worker mental health in intellectual disability services during COVID‐19	10
Belonging and reciprocity amongst people with intellectual disabilities: A systematic methodological review	10
Feeling of grief and loss in parental caregivers of adults diagnosed with intellectual disability	9
Attitudes towards sexuality and related caregiver support of people with intellectual disabilities: A systematic review on the perspectives of people with intellectual disabilities	9
Factors facilitating or hindering meaningful staff–client interactions in people with intellectual disabilities and challenging behaviour: A systematic mixed studies review using thematic synthesis	9
Factors influencing the opportunities of supporting staff to promote a healthy diet in adults with intellectual disabilities	9
A qualitative study of the needs of older adults with intellectual disabilities	9
Diet quality among people with intellectual disabilities and borderline intellectual functioning	9
Parental perspectives on research for Down syndrome	9
What is good service quality? Day service staff's perspectives about what it looks like and how it should be monitored	9
The prevalence and health status of people with developmental disabilities in provincial prisons in Ontario, Canada: A retrospective cohort study	9
Piloting the use of global health measures in a Down syndrome clinic	9
United States Medicaid home and community‐based services for people with intellectual and developmental disabilities: A scoping review	9
Facilitating the inclusion of adults with intellectual disability as direct respondents in research: Strategies for fostering trust, respect, accessibility and engagement	9
Parenting girls with Rett syndrome: An investigation on self‐perceived levels of stress	8
People with intellectual disabilities as business owners: A systematic review of peer‐reviewed literature	8
Behavioural, psychiatric and psychosocial factors associated with aggressive behaviour in adults with intellectual disabilities: A systematic review and narrative analysis	8
Using community‐based interventions to reduce public stigma of children with disabilities: A feasibility study	8
Homeward bound: Exploring the motives of mothers who brought their offspring with intellectual disabilities home from residential settings during the COVID‐19 pandemic	8
Dimensions of group home culture as predictors of quality of life outcomes	8
A systematic review and narrative synthesis of inclusive health and social care research with people with intellectual disabilities: How are co‐researchers involved and what are their experiences?	8
Using a kinect‐based game to teach oral hygiene in four elementary students with intellectual disabilities	8

Community participation of families of children with profound intellectual and multiple disabilities in South Africa	8
The experiences of psychologists working with people with intellectual disabilities during the COVID‐19 crisis	8
Development and psychometric properties of an instrument for the Assessment of Sexual Behaviour and Knowledge of people with Intellectual Disability	8
Dementia in people with severe or profound intellectual (and multiple) disabilities: Focus group research into relevance, symptoms and training needs	8
Mitigating the impact of the ‘silos’ between the disability and aged‐care sectors in Australia: Development of a Best Practice Framework	8
Reproductive and pregnancy health care for women with intellectual and developmental disabilities: A scoping review	7
Straight from the horse's mouth: Increasing self‐report in mental health assessment in individuals with intellectual disability	7
Risk factors for falls among adults with intellectual disabilities: A narrative review	7
‘The cure for us is a lot of things’: How young people with Prader‐Willi syndrome view themselves and future clinical trials	7
Supporting people with an intellectual disability and dementia: A constructivist grounded theory study exploring care providers’ views and experiences in the UK	7
Development and psychometric properties of a self‐report instrument for the assessment of sexual behaviour and concerns of people with mild intellectual disabilities (SEBECOMID‐S)	7
Changes over time in the management of long‐term conditions in primary health care for adults with intellectual disabilities, and the healthcare inequality gap	7
Group climate, aggressive incidents and coercion in a secure forensic setting for individuals with mild intellectual disability or borderline intellectual functioning: A multilevel study	7
Robot‐mediated therapy to reduce worrying in persons with visual and intellectual disabilities	7
Screening for intellectual disability in Dutch psychiatrically disturbed detainees: Assessing the psychometric properties of the Screener for Intelligence and Learning Disability (SCIL)	6
An 8‐year study of admissions and discharges to a specialist intellectual disability inpatient unit	6
Where to next? Experiences of adults with intellectual disability after they complete a university program	6
Intellectual/developmental disabilities among people incarcerated in federal correctional facilities in Ontario, Canada: Examining prevalence, health and correctional characteristics	6
Inventory of assessment practices in people with profound intellectual and multiple disabilities in three European countries	6
The experiences and views of adults with intellectual disabilities accessing digital mental health interventions: A qualitative systematic review and thematic synthesis	6
Relationships between feeding problems, eating behaviours and parental feeding practices in children with Down syndrome: A cross‐sectional study	6
Assessment of dementia in a clinical sample of persons with intellectual disability	6
Transition of adolescents with intellectual disability from schools for learners with special educational needs: Parents views for the preparedness	6
“Look, all our hard work is paying off”: A qualitative evaluation of a system‐wide, workforce development model to promote positive behavioural support	6
Exploring chronic disease prevalence in people with intellectual disabilities in primary care settings: A scoping review	6
An exploration of lifestyle/obesity programmes for adults with intellectual disabilities through a realist lens: Impact of a ‘context, mechanism and outcome’ evaluation	6
Oral health and oral health behaviour of adolescents with mild or borderline intellectual disabilities compared with a national representative sample of 17‐year‐olds in the Netherlands	6
Construct validity of the Actiwatch‐2 for assessing movement in people with profound intellectual and multiple disabilities	6
The relationship between adverse interpersonal experiences and self‐esteem in people with intellectual disabilities: The role of shame, self‐compassion and social support	6
Development of a questionnaire to assess the quality of service trajectories in autism spectrum disorder from families' perspective	6
What are the experiences of clinical psychologists working with people with intellectual disabilities during the COVID‐19 pandemic?	6
Screening of dementia indicating signs in adults with intellectual disabilities	6
Using a think‐aloud methodology to understand online physical activity information search experiences and preferences of parents of children and youth with disabilities	6
“They don't think I can cope, because I have got a learning disability…”: Experiences of stigma in the lives of parents with learning disabilities	6
‘Standing up for Myself’ (STORM): Development and qualitative evaluation of a psychosocial group intervention designed to increase the capacity of people with intellectual disabilities to manage and r	6
Intervention effects on professionals’ attitudes towards the participation of adults with visual and severe or profound intellectual disabilities	6
A Photovoice Study: The life experiences of middle‐aged adults with intellectual disabilities in Korea	6
Psychotropic drugs intake in people aging with intellectual disability: Prevalence and predictors	6
Benefits and cultural adaptations of psychosocial interventions for parents and their children with intellectual disabilities in low‐and middle‐income countries: A systematic review	6
Employment preferences of individuals with intellectual and developmental disabilities: An evaluation of gender and age differences	5
Healthcare providers’ role in providing sexual and reproductive health information to people with intellectual and developmental disabilities: A qualitative study	5
A systematic review of community psychosocial group interventions for adults with intellectual disabilities and mental health conditions	5
Staff perceptions following a training programme about reducing psychotropic medication use in adults with intellectual disability: The need for a realistic professional practice framework	5
A systematic review of photovoice research methods with people with intellectual disabilities	5
Gender and racial/ethnic differences in food selectivity in children with intellectual disabilities	5
‘Love makes me feel good inside and my heart is fixed’: What adults with intellectual disabilities have to say about love and relationships	5
How people with intellectual and developmental disabilities on collaborative research teams use technology: A rapid scoping review	5
What difficulties do people with mild intellectual disabilities experience when seeking medical help from their GP? A qualitative study	5
Indicators of health in Down syndrome: A virtual focus group study with patients and their parents	5
Early positive approaches to support (E‐PAtS): Qualitative experiences of a new support programme for family caregivers of young children with intellectual and developmental disabilities	5
Parents' satisfaction with a Canadian pilot clinic to reduce waiting lists for the assessment and diagnosis of autism spectrum disorder and intellectual disability in young children	5
Responding to safe care: Healthcare staff experiences caring for a child with intellectual disability in hospital. Implications for practice and training	5
Virtual reality to foster empathy in disability workers: A feasibility study during COVID‐19	5
Association between employment status and quality of life for individuals with intellectual or developmental disability	5
The adaptive ability performance test (ADAPT): A factor analytic study in clients with intellectual disabilities	5
A quantitative evaluation of a regional Positive Behavioural Support workforce development approach	5
The feasibility of daily monitoring in adolescents and young adults with mild intellectual disability or borderline intellectual functioning	5
Consensus on a conversation aid for shared decision making with people with intellectual disabilities in the palliative phase	5
Internet use among adults with intellectual and developmental disabilities in South Korea	5
Linked data analysis of learning disability health checks and emergency hospital admissions in the Kent Integrated Dataset	5
Psychometric properties of the Neuropsychiatric Inventory for adults with intellectual disability	5
Proposed diagnostic criteria for mild cognitive impairment in Down syndrome population	5
The experience of being a father of a son or daughter with an intellectual disability: Older fathers’ perspectives	5
Comparing everyday autonomy and adult identity in young people with and without intellectual disabilities	5
Thriving with Down syndrome: A qualitative multiple case study	5
‘More together than apart’: The evaluation of a virtual course to improve mental health and well‐being of adults with intellectual disabilities during the COVID‐19 pandemic	5
Use of behaviour change techniques by direct support professionals to support healthy lifestyle behaviour for people with moderate to profound intellectual disabilities	5
Modelling triadic relationships in families of children with intellectual disability	5
Odour detection in children and young people with profound intellectual and multiple disabilities	5
Expecting the unexpected: measures, outcomes and dying trajectories for expected and unexpected death in adults with intellectual disabilities in social care settings in the UK	5
Destination unknown: Parents and healthcare professionals' perspectives on transition from paediatric to adult care in Down syndrome	5
Positive behavioural support for children and young people with developmental disabilities in special education settings: A systematic review	5
Stressed parents, happy parents. An assessment of parenting stress and family quality of life in families with a child with Phelan‐McDermid syndrome	5