OOIR: Observatory of International Research

Papers

(The TQCC of Journal of Intellectual & Developmental Disability is 4. The table below lists those papers that are above that threshold based on CrossRef citation counts [max. 250 papers]. The publications cover those that have been published in the past four years, i.e., from 2020-05-01 to 2024-05-01.)

Article	Citations
Dedifferentiation and people with intellectual disabilities in the Australian National Disability Insurance Scheme: Bringing research, politics and policy together	29
Ensuring the reproductive rights of women with intellectual disability	20
Deconstructing the co-production ideal: Dilemmas of knowledge and representation in a co-design project with people with intellectual disabilities	17
“I hope I’ll outlive him”: A qualitative study of parents’ concerns about being outlived by their child with profound intellectual and multiple disabilities	16
Siblings’ and parents’ perspectives on the future care for their family member with profound intellectual and multiple disabilities: A qualitative study	16
A survey of Registered Nurses’ educational experiences and self-perceived capability to care for people with intellectual disability and/or autism spectrum disorder	15
A process of decision-making support: Exploring supported decision-making practice in Canada	14
Shadowing as a qualitative research method for intellectual disability research: Opportunities and challenges	13
Creating opportunities for convivial encounters for people with intellectual disabilities: “It looks like an accident”	12
Parental strategies that support adults with intellectual disabilities to explore decision preferences, constraints and consequences	11
Struggling with sameness and strangeness: (Non)-encounters between people with and without intellectual disabilities in two Dutch neighbourhoods	10
Elementary school students’ attitudes towards peers with disabilities: The role of personal and contextual factors	9
Micro-recognition, invisibility and hesitation: Theorising the non-encounter in the social inclusion of people with intellectual and developmental disabilities	9
Long-term outcomes following Fetal Alcohol Spectrum Disorder (FASD) diagnosis in adulthood	8
A systematic review of emotion regulation measurement in children and adolescents diagnosed with intellectual disabilities	8
Mortality, predictors and causes among people with intellectual disabilities: A systematic narrative review supplemented by machine learning	8
Psychomotor, cognitive, and socio-emotional developmental profiles of children with Rubinstein-Taybi Syndrome and a severe intellectual disability	8
As if living like others: An idealisation of life in group homes for people with intellectual disability	8
Post-traumatic stress disorder symptom manifestations in an autistic man with severe intellectual disability following coercion and scalding	8
“Continuously struggling for balance”: The lived experiences of Dutch parents caring for children with profound intellectual and multiple disabilities	8
“It’s ignorant stereotypes”: Key stakeholder perspectives on stereotypes associated with fetal alcohol spectrum disorder, alcohol, and pregnancy	7
Dedifferentiation and difference: People with profound intellectual and multiple disabilities and the National Disability Insurance Scheme (NDIS)	7
Passing laws is not enough to change staff practice: The case of legally mandated “incident” reporting in Sweden	7
A qualitative investigation of support workers’ experiences of the impact of the COVID-19 pandemic on Dutch migrant families who have children with intellectual disabilities	7
Challenges of online learning for children with special educational needs and disabilities during the COVID-19 pandemic: A scoping review	6

Growing up with a brother or sister with Down syndrome: Adult siblings’ perceptions of their childhood relationships	6
Occupational stress, coping and wellbeing among registered psychologists working with people with intellectual disabilities during the COVID-19 pandemic in the United Kingdom	6
Possibility and risk in encounter between people with and without intellectual disability	6
Expressions of stress of people with severe intellectual disabilities and sensitive caregiving to regulate stress: A qualitative study	6
Prevalence and risk factors of choking in older adults with intellectual disability: Results from a national cross-sectional study	6
Childhood experience, family support and parenting by people with intellectual disability	6
Barriers to the NDIS for people with intellectual disability and/or complex support needs involved with the criminal justice systems: The current state of literature	6
The need to include intellectual/developmental disability in medical school curriculum: The perspective of a student advocate	5
COVID-19 and people with intellectual disabilities	5
Forming and supporting circles of support for people with intellectual disabilities – a comparative case analysis	5
Performance, purpose, and creation of encounter between people with and without intellectual disabilities	5
The Attachment Strengths and Needs Interview for parents of children with severe or profound intellectual disabilities: An acceptability and feasibility study	5
Identifying important persons in the promotion of positive behaviour support (PBS) in disability services: A social network analysis	4
Reducing restrictive measures in complex long-term care for people with intellectual disabilities: Implementation interventions through the lens of normalisation process theory	4
Examining potential predictors of attention training outcomes in children with intellectual and developmental disorders	4
Obstacles to the transition to adulthood of people with severe to profound intellectual disability and potential solutions: Perspectives of professionals in one region of Quebec	4
The role of professionals in strengthening social relations of adults with a disability in independent supported living: Practices and influencing factors	4
Perspectives of people with intellectual disability about their family networks: A comparison study with key support worker proxy reports	4
Parents of children with developmental disorders: Family hardiness and resilience	4
Susceptibility to peer influence in adolescents with mild-to-borderline intellectual disability: Investigating links with inhibition, Theory of Mind and negative interpretation bias	4
Perspectives of adults with intellectual disabilities and key individuals on community participation in inclusive settings: A Canadian exploratory study	4
Development of a personalised substance use disorder treatment for people with mild intellectual disabilities or borderline intellectual functioning: An intervention mapping approach	4
Pregnancies and births in women with Down syndrome – An analysis based on the Medical Statistics of Swiss Hospitals	4
Being in control: Choice and control of support received in supported living. A study based on the narratives of people with intellectual disability and support staff	4