Dementia-International Journal of Social Research and Practice

Article	Citations
Informal dementia care: The carer’s lived experience at the divides between policy and practice	53
Doing relationship-centered dementia care: Learning from each other for better dementia support	36
The Role of Reminiscence in Arts-Based Interventions for Dementia Care: A Scoping Review	32
Population Attributable Fraction of Modifiable Risk Factors for Dementia in Turkey	29
Understanding dementia care pathways for policy development and service planning in Kenya	26
The influence of Alzheimer’s disease stigma on pain assessment in older persons	26
The role and impact of therapeutic counselling on the emotional experience of adults living with dementia: A systematic review	25
Influential factors of spousal relationship quality in couples living with dementia – A narrative synthesis systematic review	25
Chinese diaspora caregivers’ experiences in dementia care in high-income countries: A systematic review	24
Peer support for people living with rare or young onset dementia: An integrative review	24
‘I want every minute to be worthwhile now’: The views and experiences of people living with dementia and their care partners about returning to in-person group meetings after COVID-19 lockdown restric	23
Book Review: Understanding young onset dementia: Evaluation, needs and care	23
Co-designing a dementia-specific education and training program for home care workers: The ‘Promoting Independence Through Quality Dementia Care at Home’ project	22
Interprofessional collaboration in palliative dementia care through the eyes of informal caregivers	22
Olfactory stimulation for people with dementia: A rapid review	22
A pilot study of an intergenerational program for people in residential aged care with cognitive impairment and children from a co-located early learning centre during COVID-19	20
Examining the mediating effect of psychosocial resources on the relationship between ambivalent feelings and depression among Israeli Arab family caregivers of people with dementia	20
The use of technology for arts-based activities in older adults living with mild cognitive impairment or dementia: A scoping review	20
Pad cultures: An ethnography of continence care and its consequences for people living with dementia during a hospital admission	20
Emotional Intelligence and Cognitive Flexibility are Key Influences in Enabling Staff to Uphold Human Rights Values for People Living With Dementia in Care Homes	18
Connecting Today: Feasibility and acceptability of a remote visiting program for people living with dementia in long-term care homes	17
‘Everyone Needs a Hug’: A Lifeworld-Led Approach to Recognise and Maintain the Person of Care Recipients Living With Advanced Dementia	17
“We will tell everyone!” Capturing the impact of public and patient involvement in music therapy and dementia research through songwriting	16
Creative support: Enhancing well-being in mild and moderate cognitive impairment through museum interventions	16
Dementia Risk Reduction Education Programs and Resources for Indigenous Peoples of Canada, Aotearoa New Zealand, United States of America and Australia: A Scoping Review	16

Beliefs and attitudes of family caregivers of People with dementia toward advance care planning: A Q methodology study	15
Exploring the effectiveness and experiences of people living with dementia interacting with digital interventions: A mixed methods systematic review	15
A comparison of written case notes and the delivery of care in dementia specialist mental health wards	15
My experience of person-centered and personalized care in early-stage primary progressive aphasia	15
Views of healthcare professionals on their relationships with families of people living with dementia: A qualitative study	15
Self-report instruments measuring aspects of self for people living with dementia: A systematic literature review of psychosocial interventions	15
Book Review: And every morning the way home gets longer and longer: A book review And every morning the way home gets longer and longer: A book review. By BackmanFredrik. Atria Books, 2016, 96 pp. ISB	15
A scoping review of dementia education programs to assess for the inclusion of culture	14
Time perception among people living with and without dementia: A scoping review	14
The impact of participatory dementia research on researchers: A systematic review	14
A mixed method study exploring gender differences in dementia caregiving	14
How do care partners overcome the challenges associated with falls of community-dwelling older people with dementia? A qualitative study	14
Needs of older people living with dementia in low and middle-income Asian countries: A scoping review	14
“It’s almost like not existing”: Adult children’s experiences of not being recognized and their perceptions of being forgotten by their parents with dementia	13
Using Twitter to understand perspectives and experiences of dementia and caregiving at the beginning of the COVID-19 pandemic	13
Peer support through video meetings: Experiences of people with young onset dementia	13
A qualitative study of unpaid caregivers of persons living with dementia and their interactions with health and community-based services and providers	13
The relationship at the heart of the experience of daughter caregivers of a parent with dementia: An interpretative phenomenological analysis	12
Exploring why “memory loss” is a misleading descriptor of people living with dementia and can lead to dysfunctional care	12
Journey to Diagnosis of Young-Onset Dementia: A Qualitative Study of People with Young-Onset Dementia and their Family Caregivers in Australia	12
Participation of persons living with dementia in research: A means to address epistemic injustice	12
Evolving dementia care: An explorative study on the lived experience of older adults living with dementia in nursing homes using observational and biometric sensor data	12
A scoping review: Sensory interventions for older adults living with dementia	12
Validation and expansion of a behavioral framework for dementia care partner resilience (CP-R)	12
Book Review: Joan Colnbrook's Dementia Painting	12
Competency development for a volunteer navigation program to support caregivers of people living with dementia: A modified e-Delphi method	12
Exploring perceived helpfulness of health services in men and women with dementia and care partners: A cross-sectional analysis	11
“Review of ‘Walk with me: Musings through the dementia fog’ by Peter Berry and Deb Bunt”	11
Better spiritual support for people living with early stage dementia: Developing the diamond conversation model	11
Delayed Access to Dementia Services: The Experiences of the African Caribbean Community in the UK	11
Navigating memory problems and mild cognitive impairment in later life: A qualitative secondary data analysis	11
Strategies and factors to enhance active participation of family caregivers of people with dementia in psychoeducation: A scoping review	10
Blogging with dementia: Writing about lived experience of dementia in the public domain	10
Cognitive assessment of nursing home residents: Survey data on tools used and perceptions of use among social service professionals in one U.S. state	10
‘Do I have the capacity to make capacity judgements?’ Researcher reflections from a person-centred dementia support study	10
Perceptions and Experiences of Dementia-Friendly Education Among Youth in Macao: A Qualitative Study	10
Understanding Capacity and Optimizing Meaningful Engagement among Persons Living with Dementia	10
Use of adapted or modified methods with people with dementia in research: A scoping review	9
Young onset dementia: implications for employment and finances	9
The experience of lived body as expressed by people with dementia: A systematic meta-synthesis	9
Management of Co-existing Dementia and Hearing Loss in Social Care Settings: A Focus Group Study	9
Cultural adaptations of the WHO iSupport for dementia: A scoping review	9
Understanding, experiences and attitudes of dementia in India: A qualitative study	9
Network analysis approach for exploring dementia representations in the Slovak media	9
What will happen to my mom? A grounded theory on nurses’ support of relatives’ end-of-life decision-making process for residents living with dementia in long-term care homes	9
Long-term care staff ’s positive experiences of caring for people living with dementia: Narratives’ content and lessons learned	9
Caring for an older person with dementia: Behavioral problems in the eyes of family caregivers and migrant home care workers	9
Brothers and sisters sharing in the care of a parent with dementia	9
Accessing Dementia Care in Brazil: An Analysis of Case Vignettes	9
Living with Dementia in Aotearoa (LiDiA): A Feasibility Study for a Dementia Prevalence Study in Māori and Non-Māori Living in New Zealand	9

The care experience of people with diagnosed or suspected dementia living in prison: A case study approach	9
Comparing two caregiver-delivered music listening interventions for community-dwelling people with dementia: A randomised controlled crossover pilot trial	8
Exploring Ethical Dilemmas and Concerns in Caring for Persons With Dementia: Insights From Formal Caregivers in Albania	8
Exploring outcome measures with cognitive stimulation therapies and how these relate to the experiences of people with dementia: A narrative literature review	8
The experiences and perceptions of young people and older people living with dementia of participating in intergenerational programmes: A qualitative evidence synthesis	8
The Impact of E-Learning Platforms on Dementia Knowledge Acquisition Among General Public: A Systematic Review	8
Threats to personhood from within the family? A study of family caregivers of people with dementia in the Chinese context	8
Out-of-home participation among people living with dementia: A study in four countries	8
Understanding the lived experiences of family caregivers of individuals with dementia in Soweto, a South African Township	8
Animal-assisted and robotic animal-assisted interventions within dementia care: A systematic review	8
Anticipated suicidal and death ideation in response to an imagined dementia diagnosis: A qualitative study	8
Effectiveness of digital technologies to engage and support the wellbeing of people with dementia and family carers at home and in care homes: A scoping review	8
The art of friendliness: Organiser perspectives on curating dementia friendly cultural events	8
Enabling work for people with dementia - Recommendations for interventions: A mixed-methods review	8
Care Experiences of Family Caregivers of People with Dementia: A Nationwide Survey Study Comparing Caregivers with Migrant and Native Backgrounds	8
Embedding patient and public involvement in dementia research: Reflections from experiences during the ‘Journeying through Dementia’ randomised controlled trial	8
The experience of long-term care staff caring for people with dementia in low- and middle-income Countries (LMICs): A qualitative evidence synthesis	7
Efficacy and impact of spousal support groups in enhancing the well-being of caring in early onset dementia: Lessons learned from the ACE Alzheimer center Barcelona	7
Real-world occupational therapy interventions for early-stage dementia: Characteristics and contextual barriers	7
Carers’ experiences of caring for a friend or family member with dementia during the Covid-19 pandemic	7
The impact of social isolation and loneliness on the well-being of carers of a person with dementia in aotearoa New Zealand	7
Online support groups for carers of people living with dementia: An investigation of videoconferencing support groups in lockdown	7
Experiences of People With Dementia and Their Family Caregivers After Earthquakes: A Qualitative Study	7
Family members’ reasoning in relation to pleasant environments in nursing homes	7
A culturally and linguistically tailored Community-Engaged Dementia Education Program (CEDEP) for the Houston Vietnamese American community	7
Qualitative evaluation of My Life Today - A co-produced personal tool from the IDEAL programme to help people with dementia monitor valued aspects of their lives	7
Living with dementia: Why I am thinking of ‘death’	7
Book Review: Dementia and place: Practices, experiences and connections	7
Exploring the interplay between dementia, multiple health conditions and couplehood: A qualitative evidence review and meta-ethnography	7
‘I do Things that I don’t Really Want to do …’: Understanding the Everyday Lives of Family Carers of People With Dementia	7
‘I feel more part of the world’: Participatory action research to develop post-diagnostic dementia support	7
Supporting the Well-Being of People Living With Dementia and Their Family Carers Through Concurrent Arts and Well-Being Community Programs: Qualitative Perspectives of Participants and Facilitators	7
Conceptualizing access to community-based supports from the perspectives of people living with young onset dementia, family members and providers	6
Music in Mind Training: Producing a theory of change model to evaluate the implementation of an improvisation-based music-making training programme for care home staff working with people with dementi	6
Dementia education in a primary school classroom: A pedagogical perspective	6
A mixed methods evaluation of the music and psychology and social connections (MAPS) pilot – A dyadic intervention for couples affected by young-onset dementia	6
Cultural variability in dementia caregiver motivations: Unraveling unique and common drivers	6
‘What are nurses’ and healthcare workers’ cultural understandings of dementia?’ An integrative literature review	6
Implementing reablement for community dwelling people with dementia: A formative evaluation using single-case experimental design	6
Pathways to care for people with dementia in India: An exploratory study using case vignettes	6
Shared decision-making in persons living with dementia: A scoping review	6
The quality of family relationships in dementia: Mixed methods to unravel mixed feelings	6
Cultural and Linguistic Adaptation of the iSupport for Dementia Program: Perspectives From Vietnamese Carers in Australia	6
‘Unalloyed, Uncomplicated Joy’: A Qualitative Study to Understand Dementia Care Partners’ Experiences of Dance/Movement Therapy	6
Transforming dementia research into policy change: A case study of the multi-country STRiDE project	6
Understanding the impact of dementia on spousal relationships: A qualitative study with female spousal carers of people living with dementia	6
Navigating the coronavirus pandemic 2 years on: Experiences of people with dementia from the British IDEAL cohort	6
On becoming a dementia-friendly community: An empirical study of the individual factors that predict openness towards dementia-friendly communities	6
Effectiveness of interventions to prevent abuse in people living with dementia in community settings: A systematic review	6
A qualitative analysis of virtues and strengths in persons living with early stage dementia informed by the values in action framework	5
Post-diagnostic support in Australia: Perspectives of people recently diagnosed with dementia and their carers	5
Book Review: Psychodynamic approaches to the experience of dementia	5
Vigilance, risk, and service use among caregivers of people living with dementia	5
Roles and usages of neuro service dogs for caregivers living at home with persons with dementia: An exploratory comparative case study	5
Book Review: Dementia Caregiving East and West: Issues of Communication	5
Characterizing diagnostic disclosure communication strategies and challenges in dementia care: A qualitative study of interprofessional clinicians across three systems	5
Childhood perspectives of parental young onset dementia: A qualitative data synthesis	5
A conceptual model of the impact of including carers in museum programmes for people with dementia	5
Patient-reported experience measures for people living with dementia: A scoping review	5
Effects of a Reminiscence Therapy Program on Neuropsychiatric Symptoms and Quality of Life in People With Dementia: A Pilot Study Comparing Immersive Virtual Reality and Non-immersive Approaches	5
Care needs of people with dementia in Tanzania and associated impact on carers: A cross-sectional, observational study	5
Dementia-Friendly Communities: Exploring Terms used to Describe Dementia, Attitudes and Reactions Towards People with Dementia in Ilembe District, South Africa	5
Embodied leisure experiences of nature-based activities for people living with dementia	5
Ethical Challenges in the Dementia Care Triad: A Qualitative Study From a Danish Day Care Center	5
Meeting own needs and supporting ability to care: Family caregivers’ and health care professionals’ perspectives on professional support provided through a potential mobile application	5
Implementing Montessori approaches after training: A mixed methods study to examine staff understanding and movement toward action	5
Book Review: From Dementia to Rementia: A Guide to Personal Rehabilitation Strategies	5
Assessment of dementia knowledge in Indian speech-language pathology students	5
Unpaid carers of people with dementia and information communication technology: Use, impact and ideas for the future	4
Supporting Continued Employment for Individuals With Young-Onset Dementia: Insights From a Qualitative Study Into Key Stakeholders’ Roles and Perspectives	4
Montessori mealtimes for dementia: A pathway to person-centred care	4
Psychodrama with persons with dementia on zoom: Proof of concept	4
Art box deliveries: The experiences of people with dementia and their carers during the Covid 19 lockdown	4
Navigating the diagnosis and treatment of primary progressive aphasia: Lived experience of a rural patient	4
Book Review: Finding the Right Words: A Story of Literature, Grief, and the Brain	4
The context, mechanisms and outcomes of intergenerational programmes involving people living with dementia in scotland: A realist, qualitative study	4
Communication in dementia care: Experiences and needs of carers	4
The digitalisation of finance management skills in dementia since the COVID-19 pandemic: A qualitative study	4
Emotion-focused dyadic coping styles used by family carers of people with dementia during the COVID-19 pandemic	4
Use of tangible, educational and psychological support services among Chinese American dementia caregivers	4

Ethical issues associated with assistive technologies for persons living with dementia and their caregivers – An overview of reviews	4
Impact of the Diagnosis of Dementia in Older Care-recipients on Their Family Caregivers’ Depressive Symptoms and Quality of Life	4
Predictors of Final Place of Care in People With Advanced Dementia Receiving Home-Based Palliative Care in Singapore: A Multivariate Regression Analysis	4
The life of people with dementia who have multiple children in rural China: A phenomenological case study	4
Increased community engagement of Indigenous Peoples in dementia research leads to higher context relevance of results	4
Dementia-friendliness – Inclusion or exclusion: A critical discourse analysis	4
Emotion work and feeling rules: Coping strategies of family caregivers of people with end stage dementia in Israel—A qualitative study	4
Participation in everyday activities among young adult relatives of parents with dementia – A qualitative study	4
Truth, hope and the disclosure of a dementia diagnosis: A scoping review of the ethical considerations from the perspective of the person, carer and clinician	4
Transformative Namaste Care: An Intervention Study Enhancing Quality of Life for People Living With Advanced Dementia	4
An ethnography of mealtime care for people living with dementia in care homes	4
Health and Social Care System Preparedness for Dementia Care in Mexico: Current Status and Recommendations to Achieve Optimal Care	4
Expanding the conversation: A Person-centred Communication Enhancement Model	4
Meaningful co-production to bring meaningful change: Developing the Allied Health Professionals Dementia Framework for Wales together	3
The Use of Mental Capacity and Mental Health Laws in the Care of People Living With Dementia in Residential and Hospital Settings: A Systematic Review of the Literature	3
Reparations for people living with dementia: Recognition, accountability, change, now!	3
Dementia in South Africa: A Situational Analysis	3
Let the Good Times Grow: Exploring What is Important to Couples Living With Dementia Surrounding Leisure Activities	3
UTI risk factors in older people living with dementia: A conceptual framework and a scoping review	3
Agitation in individuals with Alzheimer’s disease: An assessment of behaviors using the cohen-mansfield agitation inventory in community-dwellers and impact on caregiver experience	3
Barriers and Facilitators to Implementing Non-Pharmacological Dementia Therapies in Residential Aged Care: A Systematic Review	3
A qualitative study of the benefits and challenges of different models of extra care housing for residents living with dementia	3
Pilot of a multicomponent program for people with dementia and their care partners: Health services staff expectations, experiences and observations	3
Development of a communication curriculum for family care partners of persons living with dementia	3
The experiences of caring for someone with dementia and a learning disability: A qualitative systematic review	3
Metaphor as methodology: Methodological reflections on visualizing the dementia journey	3
Spousal Caregiver Resilience in A Nutshell: A Directed Content Analysis in the Context of Dementia Caregiving in Vietnam	3
Beyond instrumental support: Mobile application use by family caregivers of persons living with dementia	3
Partners in progress: Advancing dementia research through collaboration	3
Reflections of Buddhist priests who started a dementia carers’ café in Japan	3
Graduate nurses caring for people living with dementia: A scoping review	3
How do family carers and care-home staff manage refusals when assisting a person with advanced dementia with their personal care?	3
Comparing the stigma experiences and comfort with disclosure in Dutch and English populations of people living with dementia	3
Spiritual Coping Among Palestinian Muslim Family Caregivers of People With Dementia: A Qualitative Study	3
Vascular cognitive impairment: When memory loss is not the biggest challenge	3
Patient safety for people experiencing advanced dementia in hospital: A video reflexive ethnography	3
“I forgot she used to make chocolate cake”: Digital storytelling supporting person-focussed dementia care: A qualitative thematic analysis	3
Living alone with dementia: Supportive care for dementia, a replicable model for support and lessons learned	3
Understanding the subjective experiences of memory concern and MCI diagnosis: A scoping review	3
Application, understanding, and appropriation of the Montessori method for persons with dementia: A qualitative pilot study	3
A suite of evaluation resources for Dementia Friendly Communities: Development and guidance for use	3
Practical and emotional preparation for death: A mixed methods study investigating experiences of family carers of people with dementia	3
Implementing Gentle Persuasive Approaches dementia education for staff on in-patient medicine units: A program evaluation	3
Online Singing Groups for People With Dementia: Adaptation and Resilience in the Face of the COVID-19 Pandemic	3
Practice of end-of-life care for patients with advanced dementia by hospital physicians and nurses: Comparison between medical and surgical wards	3
Book Review: Ageing, dementia and time in film – Temporal performances	2
Patient- and Caregiver-Identified Goals for Advance Care Planning in Patients With Dementia or Cognitive Impairment	2
A scoping review of psychosocial interventions to enhance the relationship of couples living with dementia	2
“How can you think about losing your mind?”: A reflexive thematic analysis of adapting the LivDem group intervention for couples and families living with dementia	2
A ‘personhood paradox’: Care partners’ experiences supporting people with dementia and incontinence	2
Analysing the use of music to facilitate social interaction in care home residents with dementia: Narrative synthesis systematic review	2
Potential of the Job Demands and Accommodation Planning Tool for Individuals Working With Mild Cognitive Impairment or Dementia	2
Estimating the number of people living with dementia at different stages of the condition in India: A Delphi process	2
Relating to the end of life through advance care planning: Expectations and experiences of people with dementia and their family caregivers	2
Findings From a Photovoice Project to Identify Services and Support for People Living With Young Onset Dementia and Their Families	2
Communication Strategies Used in Primary Progressive Aphasia: A Scoping Review	2
Needs of carers participating in support groups and caring for a person with dementia: A focused ethnographic study	2
Understanding the Dementia Care Triad: Findings From a Longitudinal Qualitative Study With People Living With Dementia, Their Carers, and Their Healthcare Professionals	2
Attitudes to Brain Health and Dementia Amongst the Chinese Population Living in the UK	2
Understanding how community-dwelling persons with early dementia perceive health and community services: Informing the dementia strategy of Newfoundland and Labrador, Canada	2
Community health workers supporting diverse family caregivers of persons with dementia: Preliminary qualitative results from a randomized home-based study	2
Identity change metaphors in public blogs written by people living with dementia and their care partners	2
“There is always a reason why someone is doing something”: The importance of life history and personhood when supporting people with dementia to “wander” in care homes	2
Book Review: Dementia: The International Journal of Social Research and Practice	2
Behind closed doors. A case study exploring the lived experiences of a family of a person with the behavioral variant of frontotemporal dementia	2
Exploring the use of digital media to support meaningful activities for people living with dementia: A qualitative study	2
The Importance of the Social Environment for People Living With Dementia and Their Carers: Qualitative Evidence From DETERMIND and PriDem on the Impact of COVID-19 Service Changes and Restrictions in	2
Book Review: Book Reviews Williams What Happens to Faith When Christians Get Dementia	2
Designing a mobile application to promote physical activity in spousal care partners of persons living with dementia and their care-recipient	2
Perceived and unmet needs for health and social services among families coping with dementia in China: A descriptive study	2
Experiences of Formal and Informal Support Among Adult-Daughter Caregivers of People With Dementia in Sweden: A Qualitative Study	2
Book Review: Dementia: Current perspectives in research and treatment	2
Recognizing Structural and Social Determinants of Health in the Diagnosis and Care of Dementia	2
Impact of adult day service on long-term care placement: A scoping review	2
Development of a Pilot Specialist Dementia Nurse at a Tertiary Victorian Hospital	2
Ethical issues in dementia guidelines for people with dementia and informal caregivers in Denmark: A qualitative thematic synthesis	2
Implementing global positioning system trackers for people with dementia who are at risk of wandering	2
Beliefs around help-Seeking and Support for Dementia in the Australian Arabic Speaking Community	2
The effect of choir-singing on self-reported embodied cognition in persons with dementia. A pilot study	2
Understanding dementia in minority ethnic communities: The perspectives of key stakeholders interviewed as part of the IDEAL programme	2
Living in uncertainty while a spouse is undergoing a cognitive assessment: Voices of women care partners	2
Do clinical guidelines support person-centred care for women affected by dementia: A content analysis	2
The experiences of people living with dementia and their care partners participating in an online therapeutic songwriting program	2
Stressors and coping strategies in Chinese family caregivers of people with dementia in long-term care facilities: A qualitative descriptive study	2
Enhancing engagement in meaningful occupation in a dementia town: A qualitative evaluation of MOED – The meaningful occupational engagement intervention for people with dementia	2
iSupport-Brasil: Cross-cultural adaptation of the content included in the iSupport program for caregivers of people who have dementia	2
Frameworks for cultural adaptation of psychosocial interventions: A systematic review with narrative synthesis	2
“You’re a Nobody:” An Ethnographic Analysis of the Black and African American Adult Male Perspective on Alzheimer’s Disease and the Social Determinants of Health	2
Connecting, learning, supporting: Caregivers’ experiences of a stress and distress biopsychosocial group intervention	2
Dilemmas and support strategies in dementia care: Experiences of case managers in Taiwan	2
“Am I entitled to take a break in caregiving?”: Perceptions of leisure activities of family caregivers of loved ones with dementia in China	2