OOIR: Observatory of International Research

Papers

(The TQCC of Dementia-International Journal of Social Research and Practice is 6. The table below lists those papers that are above that threshold based on CrossRef citation counts [max. 250 papers]. The publications cover those that have been published in the past four years, i.e., from 2021-08-01 to 2025-08-01.)

Article	Citations
Doing relationship-centered dementia care: Learning from each other for better dementia support	44
The role and impact of therapeutic counselling on the emotional experience of adults living with dementia: A systematic review	43
Influential factors of spousal relationship quality in couples living with dementia – A narrative synthesis systematic review	37
Framing dementia experiences in a positive light: Conversational practices in one couple living with dementia	28
The influence of Alzheimer’s disease stigma on pain assessment in older persons	24
Peer support for people living with rare or young onset dementia: An integrative review	23
Resonating moments: Exploring socio-material connectivity through artistic encounters with people living with dementia	23
The Role of Reminiscence in Arts-Based Interventions for Dementia Care: A Scoping Review	22
Embodied meaning-making in the experiences and behaviours of persons with dementia	22
Population Attributable Fraction of Modifiable Risk Factors for Dementia in Turkey	21
Chinese diaspora caregivers’ experiences in dementia care in high-income countries: A systematic review	21
Connecting Today: Feasibility and acceptability of a remote visiting program for people living with dementia in long-term care homes	20
Understanding dementia care pathways for policy development and service planning in Kenya	20
‘I want every minute to be worthwhile now’: The views and experiences of people living with dementia and their care partners about returning to in-person group meetings after COVID-19 lockdown restric	20
Informal dementia care: The carer’s lived experience at the divides between policy and practice	20
A qualitative meta-synthesis of common and unique preferences for supportive services among persons with young onset dementia and their caregivers	19
Co-designing a dementia-specific education and training program for home care workers: The ‘Promoting Independence Through Quality Dementia Care at Home’ project	18
Interprofessional collaboration in palliative dementia care through the eyes of informal caregivers	18
Pad cultures: An ethnography of continence care and its consequences for people living with dementia during a hospital admission	18
Examining the mediating effect of psychosocial resources on the relationship between ambivalent feelings and depression among Israeli Arab family caregivers of people with dementia	18
A pilot study of an intergenerational program for people in residential aged care with cognitive impairment and children from a co-located early learning centre during COVID-19	18
Olfactory stimulation for people with dementia: A rapid review	18
Book Review: Understanding young onset dementia: Evaluation, needs and care	18
Dementia Risk Reduction Education Programs and Resources for Indigenous Peoples of Canada, Aotearoa New Zealand, United States of America and Australia: A Scoping Review	17
The use of technology for arts-based activities in older adults living with mild cognitive impairment or dementia: A scoping review	17

“We will tell everyone!” Capturing the impact of public and patient involvement in music therapy and dementia research through songwriting	16
My experience of person-centered and personalized care in early-stage primary progressive aphasia	16
Experiences of people with dementia and their caregivers during the COVID-19 pandemic in India: A mixed-methods study	16
Themes describing social isolation in family caregivers of people living with dementia: A scoping review	15
Self-report instruments measuring aspects of self for people living with dementia: A systematic literature review of psychosocial interventions	14
Exploring the effectiveness and experiences of people living with dementia interacting with digital interventions: A mixed methods systematic review	14
Views of healthcare professionals on their relationships with families of people living with dementia: A qualitative study	14
A comparison of written case notes and the delivery of care in dementia specialist mental health wards	14
Needs of older people living with dementia in low and middle-income Asian countries: A scoping review	14
A scoping review of dementia education programs to assess for the inclusion of culture	13
Beliefs and attitudes of family caregivers of People with dementia toward advance care planning: A Q methodology study	13
The impact of participatory dementia research on researchers: A systematic review	13
Creative support: Enhancing well-being in mild and moderate cognitive impairment through museum interventions	13
Book Review: And every morning the way home gets longer and longer: A book review And every morning the way home gets longer and longer: A book review. By BackmanFredrik. Atria Books, 2016, 96 pp. ISB	13
A mixed method study exploring gender differences in dementia caregiving	12
A qualitative study of unpaid caregivers of persons living with dementia and their interactions with health and community-based services and providers	12
“It’s almost like not existing”: Adult children’s experiences of not being recognized and their perceptions of being forgotten by their parents with dementia	12
Time perception among people living with and without dementia: A scoping review	12
Participation of persons living with dementia in research: A means to address epistemic injustice	12
How do care partners overcome the challenges associated with falls of community-dwelling older people with dementia? A qualitative study	12
Peer support through video meetings: Experiences of people with young onset dementia	12
Using Twitter to understand perspectives and experiences of dementia and caregiving at the beginning of the COVID-19 pandemic	12
The relationship at the heart of the experience of daughter caregivers of a parent with dementia: An interpretative phenomenological analysis	11
Exploring why “memory loss” is a misleading descriptor of people living with dementia and can lead to dysfunctional care	11
Journey to Diagnosis of Young-Onset Dementia: A Qualitative Study of People with Young-Onset Dementia and their Family Caregivers in Australia	11
Dementia and sexuality in long-term care: Incompatible bedfellows?	11
A scoping review: Sensory interventions for older adults living with dementia	11
Book Review: Joan Colnbrook's Dementia Painting	11
Evolving dementia care: An explorative study on the lived experience of older adults living with dementia in nursing homes using observational and biometric sensor data	10
Brothers and sisters sharing in the care of a parent with dementia	10
Use of adapted or modified methods with people with dementia in research: A scoping review	10
Informal caregiver experiences at the end-of-life of individuals living with dementia with Lewy bodies: An interview study	10
Strategies and factors to enhance active participation of family caregivers of people with dementia in psychoeducation: A scoping review	10
Cultural adaptations of the WHO iSupport for dementia: A scoping review	10
Cognitive assessment of nursing home residents: Survey data on tools used and perceptions of use among social service professionals in one U.S. state	10
Better spiritual support for people living with early stage dementia: Developing the diamond conversation model	10
“Review of ‘Walk with me: Musings through the dementia fog’ by Peter Berry and Deb Bunt”	10
Competency development for a volunteer navigation program to support caregivers of people living with dementia: A modified e-Delphi method	10
‘Do I have the capacity to make capacity judgements?’ Researcher reflections from a person-centred dementia support study	10
Validation and expansion of a behavioral framework for dementia care partner resilience (CP-R)	10
Navigating memory problems and mild cognitive impairment in later life: A qualitative secondary data analysis	9
Exploring perceived helpfulness of health services in men and women with dementia and care partners: A cross-sectional analysis	9
The experience of lived body as expressed by people with dementia: A systematic meta-synthesis	9
Understanding, experiences and attitudes of dementia in India: A qualitative study	9
Caring for an older person with dementia: Behavioral problems in the eyes of family caregivers and migrant home care workers	9
The care experience of people with diagnosed or suspected dementia living in prison: A case study approach	9
Blogging with dementia: Writing about lived experience of dementia in the public domain	9
Long-term care staff ’s positive experiences of caring for people living with dementia: Narratives’ content and lessons learned	9
Understanding Capacity and Optimizing Meaningful Engagement among Persons Living with Dementia	9
Young onset dementia: implications for employment and finances	9

What will happen to my mom? A grounded theory on nurses’ support of relatives’ end-of-life decision-making process for residents living with dementia in long-term care homes	9
Network analysis approach for exploring dementia representations in the Slovak media	9
Living with Dementia in Aotearoa (LiDiA): A Feasibility Study for a Dementia Prevalence Study in Māori and Non-Māori Living in New Zealand	8
Management of Co-existing Dementia and Hearing Loss in Social Care Settings: A Focus Group Study	8
The art of friendliness: Organiser perspectives on curating dementia friendly cultural events	8
Book Review: Wendy Mitchell, Somebody I used to know	8
Accessing Dementia Care in Brazil: An Analysis of Case Vignettes	8
Effectiveness of digital technologies to engage and support the wellbeing of people with dementia and family carers at home and in care homes: A scoping review	8
Enabling work for people with dementia - Recommendations for interventions: A mixed-methods review	8
Comparing two caregiver-delivered music listening interventions for community-dwelling people with dementia: A randomised controlled crossover pilot trial	8
Threats to personhood from within the family? A study of family caregivers of people with dementia in the Chinese context	8
Out-of-home participation among people living with dementia: A study in four countries	8
Exploring outcome measures with cognitive stimulation therapies and how these relate to the experiences of people with dementia: A narrative literature review	7
Embedding patient and public involvement in dementia research: Reflections from experiences during the ‘Journeying through Dementia’ randomised controlled trial	7
Carers’ experiences of caring for a friend or family member with dementia during the Covid-19 pandemic	7
A culturally and linguistically tailored Community-Engaged Dementia Education Program (CEDEP) for the Houston Vietnamese American community	7
The impact of social isolation and loneliness on the well-being of carers of a person with dementia in aotearoa New Zealand	7
Pathways to care for people with dementia in India: An exploratory study using case vignettes	7
Online support groups for carers of people living with dementia: An investigation of videoconferencing support groups in lockdown	7
The experiences and perceptions of young people and older people living with dementia of participating in intergenerational programmes: A qualitative evidence synthesis	7
Living with dementia: Why I am thinking of ‘death’	7
Animal-assisted and robotic animal-assisted interventions within dementia care: A systematic review	7
Qualitative evaluation of My Life Today - A co-produced personal tool from the IDEAL programme to help people with dementia monitor valued aspects of their lives	7
Understanding the impact of dementia on spousal relationships: A qualitative study with female spousal carers of people living with dementia	7
‘I feel more part of the world’: Participatory action research to develop post-diagnostic dementia support	7
Anticipated suicidal and death ideation in response to an imagined dementia diagnosis: A qualitative study	7
Understanding the lived experiences of family caregivers of individuals with dementia in Soweto, a South African Township	7
Family members’ reasoning in relation to pleasant environments in nursing homes	7
Real-world occupational therapy interventions for early-stage dementia: Characteristics and contextual barriers	7
The experience of long-term care staff caring for people with dementia in low- and middle-income Countries (LMICs): A qualitative evidence synthesis	7
Conceptualizing access to community-based supports from the perspectives of people living with young onset dementia, family members and providers	7
Patient-reported experience measures for people living with dementia: A scoping review	6
A mixed methods evaluation of the music and psychology and social connections (MAPS) pilot – A dyadic intervention for couples affected by young-onset dementia	6
Effectiveness of interventions to prevent abuse in people living with dementia in community settings: A systematic review	6
Dementia education in a primary school classroom: A pedagogical perspective	6
Efficacy and impact of spousal support groups in enhancing the well-being of caring in early onset dementia: Lessons learned from the ACE Alzheimer center Barcelona	6
The meaning and experience of gratitude for people living with dementia	6
Navigating the coronavirus pandemic 2 years on: Experiences of people with dementia from the British IDEAL cohort	6
On becoming a dementia-friendly community: An empirical study of the individual factors that predict openness towards dementia-friendly communities	6
The quality of family relationships in dementia: Mixed methods to unravel mixed feelings	6
Implementing reablement for community dwelling people with dementia: A formative evaluation using single-case experimental design	6
Transforming dementia research into policy change: A case study of the multi-country STRiDE project	6
Music in Mind Training: Producing a theory of change model to evaluate the implementation of an improvisation-based music-making training programme for care home staff working with people with dementi	6
Shared decision-making in persons living with dementia: A scoping review	6
A multicomponent psychosocial intervention among people with early-stage dementia involving physical exercise, cognitive stimulation therapy, psychoeducation and counselling: Results from a mixed-meth	6
‘What are nurses’ and healthcare workers’ cultural understandings of dementia?’ An integrative literature review	6
Meeting own needs and supporting ability to care: Family caregivers’ and health care professionals’ perspectives on professional support provided through a potential mobile application	6
Accessibility of health care experienced by persons with dementia from ethnic minority groups and formal and informal caregivers: A scoping review of European literature	6
Experiences of People With Dementia and Their Family Caregivers After Earthquakes: A Qualitative Study	6
Exploring the interplay between dementia, multiple health conditions and couplehood: A qualitative evidence review and meta-ethnography	6
Book Review: Dementia and place: Practices, experiences and connections	6