OOIR: Observatory of International Research

Papers

(The TQCC of Dementia-International Journal of Social Research and Practice is 5. The table below lists those papers that are above that threshold based on CrossRef citation counts [max. 250 papers]. The publications cover those that have been published in the past four years, i.e., from 2021-04-01 to 2025-04-01.)

Article	Citations
Understanding dementia care pathways for policy development and service planning in Kenya	40
Social representations of dementia. A qualitative inquiry into perspectives of people with dementia, professionals, and informal caregivers	32
Development and prima facie validation of the Dementia-Specific Ethical Self-Efficacy scale for professional caregivers	29
Chinese diaspora caregivers’ experiences in dementia care in high-income countries: A systematic review	27
Long-term care staff ’s positive experiences of caring for people living with dementia: Narratives’ content and lessons learned	22
Beyond the project: Building a strategic theory of change to address dementia care, treatment and support gaps across seven middle-income countries	21
Book Review: A critical history of dementia studies	21
A scoping review of psychosocial interventions to enhance the relationship of couples living with dementia	20
Resonating moments: Exploring socio-material connectivity through artistic encounters with people living with dementia	19
Emotion-focused dyadic coping styles used by family carers of people with dementia during the COVID-19 pandemic	19
Montessori mealtimes for dementia: A pathway to person-centred care	19
Wandering the Wards: An Ethnography of Hospital Care and its Consequences for People Living with Dementia	19
The impact of dementia family caregiving on adolescent well-being: A scoping review	18
Peer support for people living with rare or young onset dementia: An integrative review	17
Specific support needs and experiences of carers of people with frontotemporal dementia: A systematic review	17
‘We must have a new VIPS meeting soon!’ Barriers and facilitators for implementing the VIPS practice model in primary health care	17
The life of people with dementia who have multiple children in rural China: A phenomenological case study	17
The influence of Alzheimer’s disease stigma on pain assessment in older persons	17
Accessing Dementia Care in Brazil: An Analysis of Case Vignettes	17
Dementia Without Borders: Building community connections to reduce stigma and foster inclusion	16
The MINDSET Study: Co-Designing Training for Interpreters in Dementia and Cognitive Assessments	16
“How can you think about losing your mind?”: A reflexive thematic analysis of adapting the LivDem group intervention for couples and families living with dementia	15
Photo-elicited conversations about meetings with a therapy dog as a tool for communication in dementia care: An observational study	15
Association of Comorbidity With Healthcare Utilization in People Living With Dementia, 2010–2019: A Population-Based Cohort Study	15
The experience of lived body as expressed by people with dementia: A systematic meta-synthesis	15

Needs-appropriate services for people with young onset dementia: The perspectives of healthcare professionals	15
The change of intimate relationship between people with Alzheimer’s disease and their adult child caregivers: An interpretative phenomenological analysis	14
Informal dementia care: The carer’s lived experience at the divides between policy and practice	14
An ethnography of mealtime care for people living with dementia in care homes	13
Book Review: The family experience of dementia: A reflective workbook for professionals	13
Cultural adaptation of World Health Organization iSupport for Dementia program for Chinese-Australian caregivers	13
What will happen to my mom? A grounded theory on nurses’ support of relatives’ end-of-life decision-making process for residents living with dementia in long-term care homes	13
Family carers and the provision of person-centred dementia care for activities of daily living	13
Enhancing post-diagnostic care in Australian memory clinics: Health professionals’ insights into current practices, barriers and facilitators, and desirable support	13
Book Review: Finding the Right Words: A Story of Literature, Grief, and the Brain	13
Network analysis approach for exploring dementia representations in the Slovak media	13
Framing dementia experiences in a positive light: Conversational practices in one couple living with dementia	12
Embodied meaning-making in the experiences and behaviours of persons with dementia	12
Couples living with Alzheimer’s disease talk about sex and intimacy: A phenomenological qualitative study	12
‘Four walls and a garden’: Exploring the experiences of families affected by dementia during the COVID-19 pandemic	12
The digitalisation of finance management skills in dementia since the COVID-19 pandemic: A qualitative study	12
Threats to personhood from within the family? A study of family caregivers of people with dementia in the Chinese context	12
The role and impact of therapeutic counselling on the emotional experience of adults living with dementia: A systematic review	11
Book Review: Dementia: The International Journal of Social Research and Practice	11
The use of photovoice to explore the physical disability experience in older adults with mild cognitive impairment/early dementia	11
Risk, worry and motivation: How is public knowledge of dementia shaped?	11
Use of tangible, educational and psychological support services among Chinese American dementia caregivers	11
Truth, hope and the disclosure of a dementia diagnosis: A scoping review of the ethical considerations from the perspective of the person, carer and clinician	11
Transitions: Experiences of younger persons recently diagnosed with Alzheimer-type dementia	11
Safer dementia care spaces: Perspectives from LGBTQ+ people with cognitive impairment and caregivers	11
Phenomenology of anxiety in people living with mild to moderate dementia: A conceptual meta-ethnographic review	10
Cultural adaptation of the iSupport online training and support programme for caregivers of people with dementia in Castilla y León, Spain	10
Dementia-friendliness – Inclusion or exclusion: A critical discourse analysis	9
Living with Dementia in Aotearoa (LiDiA): A Feasibility Study for a Dementia Prevalence Study in Māori and Non-Māori Living in New Zealand	9
Advocating for a dementia-inclusive visual communication	9
Health and Social Care System Preparedness for Dementia Care in Mexico: Current Status and Recommendations to Achieve Optimal Care	9
Influential factors of spousal relationship quality in couples living with dementia – A narrative synthesis systematic review	9
“There is always a reason why someone is doing something”: The importance of life history and personhood when supporting people with dementia to “wander” in care homes	9
Reflections on co-production: Developing a dementia research funding application with a diverse lived experience group	9
Doing relationship-centered dementia care: Learning from each other for better dementia support	9
The effect of choir-singing on self-reported embodied cognition in persons with dementia. A pilot study	9
Cultural inclusivity and diversity in dementia friendly communities: An integrative review	9
‘Guid times wi the bad times’: The meanings and experiences of befriending for people living alone with dementia	8
Characteristics and value of ‘meaningful activity’ for people living with dementia in residential aged care facilities: “You’re still part of the world, not just existing”	8
A pilot study of an intergenerational program for people in residential aged care with cognitive impairment and children from a co-located early learning centre during COVID-19	8
Understanding the lived experiences of family caregivers of individuals with dementia in Soweto, a South African Township	8
Identifying adoption and usability factors of locator devices for persons living with dementia	8
Family carers’ narratives of the financial consequences of young onset dementia	8
Delivering person-centred dementia care: Perceptions of radiography practitioners within diagnostic imaging and radiotherapy departments	8
The Co-design of the Dementia Lifestyle Intervention to get healthy together (DELIGHT) program: An authentic partnership approach	8
Supportive care decision-making processes of persons with dementia and their caregivers	8
Effectiveness of digital technologies to engage and support the wellbeing of people with dementia and family carers at home and in care homes: A scoping review	8
Gamification of dementia education in hospitals: a knowledge translation project	8
Preventing risk of placement breakdown and hospital admission in the management of distressed behaviour in dementia care: A qualitative case study with family and care-home staff	7
Transcending inequities in dementia care in Black communities: Lessons from the maximizing independence at home care coordination program	7

Implementation and impact of a Dementia Friends pilot	7
Patient safety for people experiencing advanced dementia in hospital: A video reflexive ethnography	7
The Pocket Guide to Mouth and Dental Hygiene in Dementia Care	7
The experiences of caring for someone with dementia and a learning disability: A qualitative systematic review	7
Animal-assisted and robotic animal-assisted interventions within dementia care: A systematic review	7
“How will I ever know I didn’t bring it on myself?”: Navigating personal responsibility in public health messaging on dementia risk	7
Spousal Caregiver Resilience in A Nutshell: A Directed Content Analysis in the Context of Dementia Caregiving in Vietnam	7
Examining the mediating effect of psychosocial resources on the relationship between ambivalent feelings and depression among Israeli Arab family caregivers of people with dementia	7
Exploring confidence in financial planning topics among care partners of persons living with dementia	7
The use of technology for arts-based activities in older adults living with mild cognitive impairment or dementia: A scoping review	7
End-of-life perspectives according to family caregivers of older adults with dementia: A qualitative study	7
Interprofessional collaboration in palliative dementia care through the eyes of informal caregivers	7
Giving voice to the voiceless: Understanding the perceived needs of dementia family carers in Soweto, a South African township	7
People with dementia and family carers are welcoming of a model of dementia palliative care, but sceptical of its implementation	7
Psychosocial treatment preferences of persons living with young-onset dementia and their partners	7
Book Review: Understanding young onset dementia: Evaluation, needs and care	7
A qualitative meta-synthesis of common and unique preferences for supportive services among persons with young onset dementia and their caregivers	7
Book Review: Dementia in Prisons: An Ethical Framework to Support Research, Practice and Prisoners	7
A qualitative exploration of how gender and relationship shape family caregivers’ experiences across the Alzheimer’s disease trajectory	6
Art box deliveries: The experiences of people with dementia and their carers during the Covid 19 lockdown	6
A feasibility study of the impact of a communication-skills course, ‘Empowered Conversations’, for care partners of people living with dementia	6
Exploring how residential care facilities can enhance the autonomy of people with dementia and improve informal care	6
Experiences and practices of caregiving for older persons living with dementia in African countries: A qualitative scoping review	6
‘I want every minute to be worthwhile now’: The views and experiences of people living with dementia and their care partners about returning to in-person group meetings after COVID-19 lockdown restric	6
Embedding patient and public involvement in dementia research: Reflections from experiences during the ‘Journeying through Dementia’ randomised controlled trial	6
American Dementia: Brain Health in an Unhealthy Society	6
Dementia knowledge among physiotherapists in Nigeria	6
Book Review: Dementia and Place: Practices, Experiences and Connections	6
Book Review: Perspectives on the person with dementia and family caregiving in Ireland	6
Psychodrama with persons with dementia on zoom: Proof of concept	6
Out-of-home participation among people living with dementia: A study in four countries	6
Practice of end-of-life care for patients with advanced dementia by hospital physicians and nurses: Comparison between medical and surgical wards	6
Meaningful co-production to bring meaningful change: Developing the Allied Health Professionals Dementia Framework for Wales together	5
Practitioners’ ability to remotely develop understanding for personalised care and support planning: a thematic analysis of multiple data sources from the feasibility phase of the Dementia Personalise	5
Interventions for mitigating occupational stress for professional dementia caregivers in residential aged care: A systematic review with meta-analysis	5
“It’s Another Feather in My Hat”-Exploring Factors Influencing the Adoption of Apps With People Living With Dementia	5
Book Review: Wendy Mitchell, Somebody I used to know	5
Connecting Today: Feasibility and acceptability of a remote visiting program for people living with dementia in long-term care homes	5
The impact of montessori-based programmes on individuals with dementia living in residential aged care: A systematic review	5
The experiences and perceptions of young people and older people living with dementia of participating in intergenerational programmes: A qualitative evidence synthesis	5
Vascular cognitive impairment: When memory loss is not the biggest challenge	5
Reparations for people living with dementia: Recognition, accountability, change, now!	5
Book review: The loss of small white clouds: Dementia in contemporary performance	5
The feasibility and acceptability of a psychosocial intervention to support people with dementia with Lewy bodies and family care partners	5
“I think I could have coped if I was sleeping better”: Sleep across the trajectory of caring for a family member with dementia	5
Dementia in South Africa: A Situational Analysis	5
The art of friendliness: Organiser perspectives on curating dementia friendly cultural events	5
“You just can’t do that in dementia care”: Barriers to partnership working within dementia services for people from south Asian communities	5
Exploring outcome measures with cognitive stimulation therapies and how these relate to the experiences of people with dementia: A narrative literature review	5
Participation in everyday activities among young adult relatives of parents with dementia – A qualitative study	5
Co-designing a dementia-specific education and training program for home care workers: The ‘Promoting Independence Through Quality Dementia Care at Home’ project	5
Pad cultures: An ethnography of continence care and its consequences for people living with dementia during a hospital admission	5
Organizational narratives in rehabilitation-focused dementia care – Negotiating identities, interventions and personhood	5
Family carers’ expectations regarding dementia care services and support in China: A qualitative study	5
Understanding the subjective experiences of memory concern and MCI diagnosis: A scoping review	5
‘The Jigsaw Culture of Care’: A qualitative analysis of Montessori-Based programming for dementia care in the United Kingdom	5
Metaphor as methodology: Methodological reflections on visualizing the dementia journey	5
Anticipated suicidal and death ideation in response to an imagined dementia diagnosis: A qualitative study	5
“I forgot she used to make chocolate cake”: Digital storytelling supporting person-focussed dementia care: A qualitative thematic analysis	5