OOIR: Observatory of International Research

Papers

(The TQCC of Dementia-International Journal of Social Research and Practice is 6. The table below lists those papers that are above that threshold based on CrossRef citation counts [max. 250 papers]. The publications cover those that have been published in the past four years, i.e., from 2022-01-01 to 2026-01-01.)

Article	Citations
Informal dementia care: The carer’s lived experience at the divides between policy and practice	53
Doing relationship-centered dementia care: Learning from each other for better dementia support	36
The Role of Reminiscence in Arts-Based Interventions for Dementia Care: A Scoping Review	32
Population Attributable Fraction of Modifiable Risk Factors for Dementia in Turkey	29
Understanding dementia care pathways for policy development and service planning in Kenya	26
The influence of Alzheimer’s disease stigma on pain assessment in older persons	26
Influential factors of spousal relationship quality in couples living with dementia – A narrative synthesis systematic review	25
The role and impact of therapeutic counselling on the emotional experience of adults living with dementia: A systematic review	25
Chinese diaspora caregivers’ experiences in dementia care in high-income countries: A systematic review	24
Peer support for people living with rare or young onset dementia: An integrative review	24
Book Review: Understanding young onset dementia: Evaluation, needs and care	23
‘I want every minute to be worthwhile now’: The views and experiences of people living with dementia and their care partners about returning to in-person group meetings after COVID-19 lockdown restric	23
Olfactory stimulation for people with dementia: A rapid review	22
Co-designing a dementia-specific education and training program for home care workers: The ‘Promoting Independence Through Quality Dementia Care at Home’ project	22
Interprofessional collaboration in palliative dementia care through the eyes of informal caregivers	22
Pad cultures: An ethnography of continence care and its consequences for people living with dementia during a hospital admission	20
A pilot study of an intergenerational program for people in residential aged care with cognitive impairment and children from a co-located early learning centre during COVID-19	20
Examining the mediating effect of psychosocial resources on the relationship between ambivalent feelings and depression among Israeli Arab family caregivers of people with dementia	20
The use of technology for arts-based activities in older adults living with mild cognitive impairment or dementia: A scoping review	20
Emotional Intelligence and Cognitive Flexibility are Key Influences in Enabling Staff to Uphold Human Rights Values for People Living With Dementia in Care Homes	18
‘Everyone Needs a Hug’: A Lifeworld-Led Approach to Recognise and Maintain the Person of Care Recipients Living With Advanced Dementia	17
Connecting Today: Feasibility and acceptability of a remote visiting program for people living with dementia in long-term care homes	17
Dementia Risk Reduction Education Programs and Resources for Indigenous Peoples of Canada, Aotearoa New Zealand, United States of America and Australia: A Scoping Review	16
“We will tell everyone!” Capturing the impact of public and patient involvement in music therapy and dementia research through songwriting	16
Creative support: Enhancing well-being in mild and moderate cognitive impairment through museum interventions	16

Self-report instruments measuring aspects of self for people living with dementia: A systematic literature review of psychosocial interventions	15
Book Review: And every morning the way home gets longer and longer: A book review And every morning the way home gets longer and longer: A book review. By BackmanFredrik. Atria Books, 2016, 96 pp. ISB	15
Beliefs and attitudes of family caregivers of People with dementia toward advance care planning: A Q methodology study	15
Exploring the effectiveness and experiences of people living with dementia interacting with digital interventions: A mixed methods systematic review	15
A comparison of written case notes and the delivery of care in dementia specialist mental health wards	15
My experience of person-centered and personalized care in early-stage primary progressive aphasia	15
Views of healthcare professionals on their relationships with families of people living with dementia: A qualitative study	15
How do care partners overcome the challenges associated with falls of community-dwelling older people with dementia? A qualitative study	14
Needs of older people living with dementia in low and middle-income Asian countries: A scoping review	14
A scoping review of dementia education programs to assess for the inclusion of culture	14
Time perception among people living with and without dementia: A scoping review	14
The impact of participatory dementia research on researchers: A systematic review	14
A mixed method study exploring gender differences in dementia caregiving	14
A qualitative study of unpaid caregivers of persons living with dementia and their interactions with health and community-based services and providers	13
“It’s almost like not existing”: Adult children’s experiences of not being recognized and their perceptions of being forgotten by their parents with dementia	13
Using Twitter to understand perspectives and experiences of dementia and caregiving at the beginning of the COVID-19 pandemic	13
Peer support through video meetings: Experiences of people with young onset dementia	13
Validation and expansion of a behavioral framework for dementia care partner resilience (CP-R)	12
Book Review: Joan Colnbrook's Dementia Painting	12
Competency development for a volunteer navigation program to support caregivers of people living with dementia: A modified e-Delphi method	12
The relationship at the heart of the experience of daughter caregivers of a parent with dementia: An interpretative phenomenological analysis	12
Exploring why “memory loss” is a misleading descriptor of people living with dementia and can lead to dysfunctional care	12
Journey to Diagnosis of Young-Onset Dementia: A Qualitative Study of People with Young-Onset Dementia and their Family Caregivers in Australia	12
Participation of persons living with dementia in research: A means to address epistemic injustice	12
Evolving dementia care: An explorative study on the lived experience of older adults living with dementia in nursing homes using observational and biometric sensor data	12
A scoping review: Sensory interventions for older adults living with dementia	12
Delayed Access to Dementia Services: The Experiences of the African Caribbean Community in the UK	11
Navigating memory problems and mild cognitive impairment in later life: A qualitative secondary data analysis	11
Exploring perceived helpfulness of health services in men and women with dementia and care partners: A cross-sectional analysis	11
“Review of ‘Walk with me: Musings through the dementia fog’ by Peter Berry and Deb Bunt”	11
Better spiritual support for people living with early stage dementia: Developing the diamond conversation model	11
Perceptions and Experiences of Dementia-Friendly Education Among Youth in Macao: A Qualitative Study	10
Understanding Capacity and Optimizing Meaningful Engagement among Persons Living with Dementia	10
Strategies and factors to enhance active participation of family caregivers of people with dementia in psychoeducation: A scoping review	10
Blogging with dementia: Writing about lived experience of dementia in the public domain	10
Cognitive assessment of nursing home residents: Survey data on tools used and perceptions of use among social service professionals in one U.S. state	10
‘Do I have the capacity to make capacity judgements?’ Researcher reflections from a person-centred dementia support study	10
Brothers and sisters sharing in the care of a parent with dementia	9
Accessing Dementia Care in Brazil: An Analysis of Case Vignettes	9
Living with Dementia in Aotearoa (LiDiA): A Feasibility Study for a Dementia Prevalence Study in Māori and Non-Māori Living in New Zealand	9
The care experience of people with diagnosed or suspected dementia living in prison: A case study approach	9
Use of adapted or modified methods with people with dementia in research: A scoping review	9
Young onset dementia: implications for employment and finances	9
The experience of lived body as expressed by people with dementia: A systematic meta-synthesis	9
Management of Co-existing Dementia and Hearing Loss in Social Care Settings: A Focus Group Study	9
Cultural adaptations of the WHO iSupport for dementia: A scoping review	9
Understanding, experiences and attitudes of dementia in India: A qualitative study	9
Network analysis approach for exploring dementia representations in the Slovak media	9
What will happen to my mom? A grounded theory on nurses’ support of relatives’ end-of-life decision-making process for residents living with dementia in long-term care homes	9
Long-term care staff ’s positive experiences of caring for people living with dementia: Narratives’ content and lessons learned	9

Caring for an older person with dementia: Behavioral problems in the eyes of family caregivers and migrant home care workers	9
The art of friendliness: Organiser perspectives on curating dementia friendly cultural events	8
Enabling work for people with dementia - Recommendations for interventions: A mixed-methods review	8
Comparing two caregiver-delivered music listening interventions for community-dwelling people with dementia: A randomised controlled crossover pilot trial	8
Care Experiences of Family Caregivers of People with Dementia: A Nationwide Survey Study Comparing Caregivers with Migrant and Native Backgrounds	8
Embedding patient and public involvement in dementia research: Reflections from experiences during the ‘Journeying through Dementia’ randomised controlled trial	8
Exploring Ethical Dilemmas and Concerns in Caring for Persons With Dementia: Insights From Formal Caregivers in Albania	8
Exploring outcome measures with cognitive stimulation therapies and how these relate to the experiences of people with dementia: A narrative literature review	8
Threats to personhood from within the family? A study of family caregivers of people with dementia in the Chinese context	8
The experiences and perceptions of young people and older people living with dementia of participating in intergenerational programmes: A qualitative evidence synthesis	8
The Impact of E-Learning Platforms on Dementia Knowledge Acquisition Among General Public: A Systematic Review	8
Out-of-home participation among people living with dementia: A study in four countries	8
Understanding the lived experiences of family caregivers of individuals with dementia in Soweto, a South African Township	8
Effectiveness of digital technologies to engage and support the wellbeing of people with dementia and family carers at home and in care homes: A scoping review	8
Animal-assisted and robotic animal-assisted interventions within dementia care: A systematic review	8
Anticipated suicidal and death ideation in response to an imagined dementia diagnosis: A qualitative study	8
‘I do Things that I don’t Really Want to do …’: Understanding the Everyday Lives of Family Carers of People With Dementia	7
‘I feel more part of the world’: Participatory action research to develop post-diagnostic dementia support	7
Supporting the Well-Being of People Living With Dementia and Their Family Carers Through Concurrent Arts and Well-Being Community Programs: Qualitative Perspectives of Participants and Facilitators	7
The experience of long-term care staff caring for people with dementia in low- and middle-income Countries (LMICs): A qualitative evidence synthesis	7
Efficacy and impact of spousal support groups in enhancing the well-being of caring in early onset dementia: Lessons learned from the ACE Alzheimer center Barcelona	7
Real-world occupational therapy interventions for early-stage dementia: Characteristics and contextual barriers	7
Carers’ experiences of caring for a friend or family member with dementia during the Covid-19 pandemic	7
The impact of social isolation and loneliness on the well-being of carers of a person with dementia in aotearoa New Zealand	7
Online support groups for carers of people living with dementia: An investigation of videoconferencing support groups in lockdown	7
Experiences of People With Dementia and Their Family Caregivers After Earthquakes: A Qualitative Study	7
Family members’ reasoning in relation to pleasant environments in nursing homes	7
A culturally and linguistically tailored Community-Engaged Dementia Education Program (CEDEP) for the Houston Vietnamese American community	7
Qualitative evaluation of My Life Today - A co-produced personal tool from the IDEAL programme to help people with dementia monitor valued aspects of their lives	7
Living with dementia: Why I am thinking of ‘death’	7
Book Review: Dementia and place: Practices, experiences and connections	7
Exploring the interplay between dementia, multiple health conditions and couplehood: A qualitative evidence review and meta-ethnography	7
Effectiveness of interventions to prevent abuse in people living with dementia in community settings: A systematic review	6
Conceptualizing access to community-based supports from the perspectives of people living with young onset dementia, family members and providers	6
Music in Mind Training: Producing a theory of change model to evaluate the implementation of an improvisation-based music-making training programme for care home staff working with people with dementi	6
Dementia education in a primary school classroom: A pedagogical perspective	6
A mixed methods evaluation of the music and psychology and social connections (MAPS) pilot – A dyadic intervention for couples affected by young-onset dementia	6
Cultural variability in dementia caregiver motivations: Unraveling unique and common drivers	6
‘What are nurses’ and healthcare workers’ cultural understandings of dementia?’ An integrative literature review	6
Implementing reablement for community dwelling people with dementia: A formative evaluation using single-case experimental design	6
Pathways to care for people with dementia in India: An exploratory study using case vignettes	6
Shared decision-making in persons living with dementia: A scoping review	6
The quality of family relationships in dementia: Mixed methods to unravel mixed feelings	6
Cultural and Linguistic Adaptation of the iSupport for Dementia Program: Perspectives From Vietnamese Carers in Australia	6
‘Unalloyed, Uncomplicated Joy’: A Qualitative Study to Understand Dementia Care Partners’ Experiences of Dance/Movement Therapy	6
Transforming dementia research into policy change: A case study of the multi-country STRiDE project	6
Understanding the impact of dementia on spousal relationships: A qualitative study with female spousal carers of people living with dementia	6
Navigating the coronavirus pandemic 2 years on: Experiences of people with dementia from the British IDEAL cohort	6
On becoming a dementia-friendly community: An empirical study of the individual factors that predict openness towards dementia-friendly communities	6