OOIR: Observatory of International Research

Papers

(The TQCC of Dementia-International Journal of Social Research and Practice is 5. The table below lists those papers that are above that threshold based on CrossRef citation counts [max. 250 papers]. The publications cover those that have been published in the past four years, i.e., from 2020-05-01 to 2024-05-01.)

Article	Citations
Understanding the impact of the COVID-19 pandemic on well-being and virtual care for people living with dementia and care partners living in the community	51
Using touchscreen tablets to support social connections and reduce responsive behaviours among people with dementia in care settings: A scoping review	34
The use of technology in creating individualized, meaningful activities for people living with dementia: A systematic review	32
The use of digital technologies by people with mild-to-moderate dementia during the COVID-19 pandemic: A positive technology perspective	27
Exploring the impact of Covid-19 on the care and quality of life of people with dementia and their carers: A scoping review	26
Effects of a virtual group cycling experience on people living with dementia: A mixed method pilot study	25
Towards an increased understanding of reminiscence therapy for people with dementia: A narrative analysis	23
The use of Twitter by people with young-onset dementia: A qualitative analysis of narratives and identity formation in the age of social media	22
Partnerships in nursing homes: How do family caregivers of residents with dementia perceive collaboration with staff?	22
Themes describing social isolation in family caregivers of people living with dementia: A scoping review	20
Social connectedness and dementia prevention: Pilot of the APPLE-Tree video-call intervention during the Covid-19 pandemic	18
A survey of the experience of living with dementia in a dementia-friendly community	18
Engaging persons with dementia in advance care planning: Challenges and opportunities	17
Robot companion cats for people at home with dementia: A qualitative case study on companotics	17
Resilience and supporting people living with dementia during the time of COVID-19; A qualitative study	16
Accessibility of health care experienced by persons with dementia from ethnic minority groups and formal and informal caregivers: A scoping review of European literature	16
Experiences of people with dementia and their caregivers during the COVID-19 pandemic in India: A mixed-methods study	15
A qualitative exploration of how gender and relationship shape family caregivers’ experiences across the Alzheimer’s disease trajectory	15
Exploring resilience and well-being of family caregivers of people with dementia exposed to mandatory social isolation by COVID-19	15
Dementia stigma reduction (DESeRvE) through education and virtual contact in the general public: A multi-arm factorial randomised controlled trial	15
Stakeholders’ perspectives on adapting the World Health Organization iSupport for Dementia in Australia	15
‘You can’t just put somebody in a situation with no armour’. An ethnographic exploration of the training and support needs of homecare workers caring for people living with dementia	15
The saliency of geographical landmarks for community navigation: A photovoice study with persons living with dementia	14
Specific support needs and experiences of carers of people with frontotemporal dementia: A systematic review	14
How do we provide good mealtime care for people with dementia living in care homes? A systematic review of carer–resident interactions	14

The impact of participatory dementia research on researchers: A systematic review	14
Home care in dementia: The views of informal carers from a co-designed consultation	13
The experiences of those affected by parental young onset dementia: A qualitative systematic literature review	13
Beyond crisis: Enacted sense-making among ethnic minority carers of people with dementia in Australia	13
A qualitative meta-synthesis of common and unique preferences for supportive services among persons with young onset dementia and their caregivers	12
Satisfaction, utilization, and feasibility of a telehealth intervention for in-home dementia care support: A mixed methods study	12
Beyond the project: Building a strategic theory of change to address dementia care, treatment and support gaps across seven middle-income countries	12
Clarifying the information and support needs of family caregivers of nursing home residents with advancing dementia	12
Willingness of family caregivers of people with dementia to undertake Advance Care Planning: Examining an extended model of the Theory of Planned Behavior	12
Healthcare professionals’ perspectives on rehabilitating persons with cognitive impairment	11
Co-designing complex interventions with people living with dementia and their supporters	11
Emotion regulation and decision-making in persons with dementia: A scoping review	11
Emotion work and feeling rules: Coping strategies of family caregivers of people with end stage dementia in Israel—A qualitative study	10
Cultural adaptation of World Health Organization iSupport for Dementia program for Chinese-Australian caregivers	10
Familiarity and participation outside home for persons living with dementia	10
Community participation in activities and places among older adults with and without dementia	10
Using meta-ethnography to understand the care transition experience of people with dementia and their caregivers	10
The changing self: The impact of dementia on the personal and social identity of women (findings from the Improving the Experience of Dementia and Enhancing Active Life programme)	9
Methods and approaches for enhancing communication with people with moderate-to-severe dementia that can facilitate their inclusion in research and service evaluation: Findings from the IDEAL programm	9
The experiences, priorities, and perceptions of informal caregivers of people with dementia in nursing homes: A scoping review	9
What do the public really know about dementia and its risk factors?	9
Everyday experiences of people living with dementia and their carers relating to oral health and dental care	9
The experiences of grandchildren who provide care for a grandparent with dementia: A systematic review	9
Long-term care placement: The transitional support needs and preferences of spousal dementia caregivers	9
Peer support for people living with rare or young onset dementia: An integrative review	9
Free to be: Experiences of arts-based relational caring in a community living and thriving with dementia	9
How do factors of sociodemographic, health literacy and dementia experience influence carers’ knowledge of dementia?	9
Interventions promoting family involvement with care homes following placement of a relative with dementia: A systematic review	9
Opening Minds through Art: A preliminary study evaluating the effects of a creative-expression program on persons living with dementia and their primary care partners	9
Staff perspectives on the role of physical environment in long-term care facilities on dementia care in Canada and Sweden	8
The emotional experience of caregiving in dementia: Feelings of guilt and ambivalence underlying narratives of family caregivers	8
Perceptions and experiences of dementia and its care in rural Kenya	8
The dignity of older individuals with Alzheimer’s disease and related dementias: A scoping review	8
Childrens’ and young adults’ perspectives of having a parent with dementia diagnosis: A scoping review	8
Use of participatory action research approach to develop a self-management resource for persons living with dementia	8
Understanding, experiences and attitudes of dementia in India: A qualitative study	8
Conceptualizing citizenship in dementia: A scoping review of the literature	8
Resilience in older people living with dementia – A narrative analysis	8
Everyday experiences of post-diagnosis life with dementia: A co-produced photography study	7
Using Twitter to understand perspectives and experiences of dementia and caregiving at the beginning of the COVID-19 pandemic	7
Important aspects of home care service: An interview study of persons with dementia	7
The use of technology for arts-based activities in older adults living with mild cognitive impairment or dementia: A scoping review	7
Co-designing a dementia-specific education and training program for home care workers: The ‘Promoting Independence Through Quality Dementia Care at Home’ project	7
The use of everyday technologies to enhance well-being and enjoyment for people living with dementia: A systematic literature review and narrative synthesis	7
A qualitative analysis of virtues and strengths in persons living with early stage dementia informed by the values in action framework	7
Nostalgic conversations: The co-production of an intervention package for people living with dementia and their spouse	7
Tensions in support for family caregivers of people with dementia in Singapore: A qualitative study	7
What are the elements needed to create an effective visual art intervention for people with dementia? A qualitative exploration	7
Understanding the shared experiences of creating a digital life story with individuals with dementia and their spouse	7
Caregiver identity in care partners of persons living with mild cognitive impairment	7

Caregiver–provider communication about pain in persons with dementia	7
What is the present role for general practitioners in dementia care? Experiences of general practitioners, patients and family carers in Portugal	7
Peer support through video meetings: Experiences of people with young onset dementia	7
Embedding patient and public involvement in dementia research: Reflections from experiences during the ‘Journeying through Dementia’ randomised controlled trial	7
Pad cultures: An ethnography of continence care and its consequences for people living with dementia during a hospital admission	7
Family carers’ narratives of the financial consequences of young onset dementia	7
Montessori mealtimes for dementia: A pathway to person-centred care	6
The meaning of autonomy when living with dementia: A Q-method investigation	6
‘Four walls and a garden’: Exploring the experiences of families affected by dementia during the COVID-19 pandemic	6
Prevalence, causes, and consequences of moral distress in healthcare providers caring for people living with dementia in long-term care during a pandemic	6
Personal and complex: The needs and experiences related to technology use for people living with dementia	6
Psychosocial treatment preferences of persons living with young-onset dementia and their partners	6
Influential factors of spousal relationship quality in couples living with dementia – A narrative synthesis systematic review	6
Childhood perspectives of parental young onset dementia: A qualitative data synthesis	6
‘Do I have the capacity to make capacity judgements?’ Researcher reflections from a person-centred dementia support study	6
Dementia-friendly communities: The involvement of people living with dementia	6
Olfactory stimulation for people with dementia: A rapid review	6
Analysing the use of music to facilitate social interaction in care home residents with dementia: Narrative synthesis systematic review	6
Identifying adoption and usability factors of locator devices for persons living with dementia	6
Challenges faced by residential aged care staff in decision-making for residents with dementia	6
Doing their damnedest to seek change: How group identity helps people with dementia confront public stigma and maintain purpose	6
Exploring the feasibility of an individual cognitive stimulation therapy application and related technology for use by people with dementia and carers in Indonesia: A mixed-method study	6
Receiving a diagnosis of young onset dementia: Evidence-based statements to inform best practice	6
Young onset dementia: implications for employment and finances	5
Dementia and its impacts on the intimate, sexual couple relationship: A systematic review of qualitative research studies	5
People living with dementia and their family carers’ adherence to home-based Tai Chi practice	5
A complex reminding: The ethics of poetry writing in dementia care	5
“My quiet times”: Themes of sleep health among people caring for a family member with dementia	5
Couplehood as a compass: Spousal perspectives on the diminished everyday competence of partners	5
Understanding the lived experiences of family caregivers of individuals with dementia in Soweto, a South African Township	5
A labour of love: Reward and satisfaction for nurses: Findings from a grounded theory study in dementia care	5
Dementia families: Relinquishing home care to aged care services: Guilt, traumatic loss and growth	5
Truth, hope and the disclosure of a dementia diagnosis: A scoping review of the ethical considerations from the perspective of the person, carer and clinician	5
Development of health literacy in persons and caregivers living with dementia: A qualitative directed content analysis	5
Resonating moments: Exploring socio-material connectivity through artistic encounters with people living with dementia	5
Communication in dementia care: Experiences and needs of carers	5
‘You come because it is an interesting place’: The impact of attending a heritage programme on the well-being of people living with dementia and their care partners	5
‘It is stressful, almost every hour…’: Experiences of caring for people living with dementia in Kenya—An interpretive phenomenological approach	5
A scoping review: Sensory interventions for older adults living with dementia	5
The affective, behavioural, and cognitive reactions to a diagnosis of Primary Progressive Aphasia: A qualitative descriptive study	5
The experience of bereavement on family caregivers of people with dementia in China	5
Experiences and practices of caregiving for older persons living with dementia in African countries: A qualitative scoping review	5
“I am not a good enough caregiver, and it is my fault”: The complex self-concept of Vietnamese female caregivers in dementia care	5
Cognitive stimulation therapy for dementia: Provision in National Health Service settings in England, Scotland and Wales	5
Lessons learned from the statewide implementation of the Music & Memory program in nursing homes in Wisconsin in the USA	5
Characterizing dementia caregiver style in managing care challenges: Cognitive and behavioral components	5
Me, myself, and nature: living with dementia and connecting with the natural world – more than a breath of fresh air? A literature review	5
Volunteers’ experiences building relationships with long-term care residents who have advanced dementia	5
Meeting own needs and supporting ability to care: Family caregivers’ and health care professionals’ perspectives on professional support provided through a potential mobile application	5
Relating to the end of life through advance care planning: Expectations and experiences of people with dementia and their family caregivers	5
Health promotion initiative: A dementia-friendly local community in Sweden	5
Carers Create: Carer perspectives of a creative programme for people with dementia and their carers on the relationship within the (carer and cared-for) dyad	5
A feasibility study of the impact of a communication-skills course, ‘Empowered Conversations’, for care partners of people living with dementia	5
Exploring how residential care facilities can enhance the autonomy of people with dementia and improve informal care	5
Establishing priorities for psychosocial supports and services among family carers of people with dementia in Ireland	5
Needs-appropriate services for people with young onset dementia: The perspectives of healthcare professionals	5
What influences uptake of psychosocial interventions by people living with early dementia? A qualitative study	5
Stakeholder perspectives of the dementia-friendly hospital: A qualitative descriptive focus group study	5