OOIR: Observatory of International Research

Papers

(The TQCC of Pediatric Rheumatology is 6. The table below lists those papers that are above that threshold based on CrossRef citation counts [max. 250 papers]. The publications cover those that have been published in the past four years, i.e., from 2021-04-01 to 2025-04-01.)

Article	Citations
Experiences of sexual and reproductive health screening and counseling in the clinical setting among adolescents and young adults with rheumatic disease	160
A qualitative study exploring experiences of treatment in paediatric rheumatology - children’s, young people’s, parents’ and carers’ perspectives	43
Predictive model based on gene and laboratory data for intravenous immunoglobulin resistance in Kawasaki disease in a Chinese population	42
Proceedings of the 31st European Paediatric Rheumatology Congress: part 2	37
Part 5: Allogeneic HSCT in refractory SJIA with lung disease; recent cases from centers in North America & Europe	36
Effectiveness and safety of canakinumab in cryopyrin-associated periodic syndrome: a retrospective study in China	35
The 4th NextGen therapies for SJIA and MAS: part 3 clinical trials in refractory SJIA: historic controls as an alternative to a withdrawal design study	29
Clinical observations on infliximab treatment of infantile onset Takayasu arteritis	26
Profile of HLA-B27-positive enthesitis/spondylitis-related arthritis in Senegal, West Africa	25
Clinical features and recurrence predictors of histiocytic necrotizing lymphadenitis in Chinese children	25
Clinical features of Kawasaki disease initially mimicking retropharyngeal abscess: a retrospective analysis	22
Thrombotic thrombocytopenic purpura with juvenile systemic lupus erythematosus: successful treatment with caplacizumab and rituximab	22
IgA vasculitis nephritis clinical course and kidney biopsy – national study in children	20
Correction to: Heme oxygenase-1 deficiency presenting with interstitial lung disease and hemophagocytic flares	20
Implementation study of the CARRA Uveitis Consensus Treatment Plans: feasibility for clinical practice and applicability for research	20
Correction: Importance of pediatric rheumatologists and transitional care for juvenile idiopathic arthritis-associated uveitis: a retrospective series of 9 cases	20
Mortality in children and adolescents with autoimmune inflammatory rheumatic diseases admitted to the pediatric intensive care unit	20
Patient with H syndrome, cardiogenic shock, multiorgan infiltration, and digital ischemia	20
Paediatric autoimmune diseases with ELANE mutations associated with neutropenia	19
Subtype frequency, demographic features, treatment and outcome of Juvenile Arthritis in one Centre in Abu Dhabi in the United Arab Emirates	19
Disease relapse rate in children with autoimmune rheumatic diseases after COVID-19 infection and vaccination	19
Discontinuation of biologic DMARDs in non-systemic JIA patients: a scoping review of relapse rates and associated factors	18
Overlap syndrome in a 12-year-old girl with systemic lupus erythematosus and anti-oj antibody-positive polymyositis: a case report	18
Fecal microbiota in children with juvenile idiopathic arthritis treated with methotrexate or etanercept	16
Efficacy and safety of baricitinib in Japanese patients with autoinflammatory type I interferonopathies (NNS/CANDLE, SAVI, And AGS)	16

Bone mineral density and explanatory factors in children and adults with juvenile dermatomyositis at long term follow-up; a cross sectional study	16
Haptoglobin in Juvenile Idiopathic Arthritis	16
Touraine-Solente-Gole syndrome: pathogenic variant in SLCO2A1 presented with polyarthralgia and digital clubbing	16
Clinical characteristics and genetic analysis of A20 haploinsufficiency	15
Outcomes of COVID-19 in a cohort of pediatric patients with rheumatic diseases	15
Intravenous administration of anakinra in children with macrophage activation syndrome	15
Anasarca as the presenting symptom of juvenile dermatomyositis: a case series	15
Tofacitinib effectiveness in Blau syndrome: a case series of Chinese paediatric patients	14
Developmentally appropriate transitional care during the Covid-19 pandemic for young people with juvenile-onset rheumatic and musculoskeletal diseases: the rationale for a position statement	14
Explaining juvenile idiopathic arthritis to paediatric patients using illustrations and easy-to-read texts: improvement of disease knowledge and adherence to treatment	14
A qualitative study of risk and resilience in young adult women with a history of juvenile-onset fibromyalgia	14
Infections and antibiotics during fetal life and childhood and their relationship to juvenile idiopathic arthritis: a prospective cohort study	14
Transition readiness in adolescents and young adults with chronic rheumatic disease in Oman: today’s needs and future challenges	13
Clinical characteristics and COVID-19 outcomes in a regional cohort of pediatric patients with rheumatic diseases	13
Vasculitis in a patient with mevalonate kinase deficiency (MKD): a case report	13
A pilot study of possible anti-inflammatory effects of the specific carbohydrate diet in children with juvenile idiopathic arthritis	12
Distinct phenotypes of multisystem inflammatory syndrome in children: a cohort study	12
Clinical features, treatment, and outcomes of celiac-associated arthritis: a retrospective cohort study	12
‘The current mental health status of children and young people with JIA, and their wider family’: a charity partner collaboration survey	12
Panniculitis with late onset enthesitis-related arthritis: a case report	12
Transition readiness among finnish adolescents with juvenile idiopathic arthritis	12
A narrative review of the literature on illness uncertainty in hypermobile ehlers-danlos syndrome: implications for research and clinical practice	11
Chronic limping in childhood, what else other than juvenile idiopathic arthritis: a case series	11
Mental comorbidities in adolescents and young adults with juvenile idiopathic arthritis: an analysis of German nationwide health insurance data	11
Prevalence of tissue transglutaminase antibodies and IgA deficiency are not increased in juvenile idiopathic arthritis: a case-control study	11
“Online survey of COVID-19 immunization and infection in patients with systemic juvenile idiopathic arthritis and adult-onset still’s disease.”	11
A20 haploinsufficiency in a neonate caused by a large deletion on chromosome 6q	11
Methotrexate inhibits BMP4 and abrogates the hypertrophic chondrocyte phenotype of synovial fibroblasts in juvenile idiopathic arthritis	11
Macrophage activation syndrome in juvenile dermatomyositis: a case report and a comprehensive review of the literature	11
CAR T cell therapy for refractory pediatric systemic lupus erythematosus: a new era of hope?	10
Juvenile eosinophilic fasciitis: a single center case series	10
Establishment and analysis of a novel diagnostic model for systemic juvenile idiopathic arthritis based on machine learning	10
Increase in stress contributes to impaired jaw function in juvenile idiopathic arthritis: a two-year prospective study	10
The assessment of bone health in children with juvenile idiopathic arthritis; comparison of different imaging-based methods	10
Musculoskeletal symptoms and their impact on health-related quality of life in chronic nonbacterial osteomyelitis patients	10
Algorithmic approach in the diagnosis of pediatric uveitis	10
Reverse complete heart block using transcutaneous pacing and repeated plasmapheresis in a neonate with lupus: a case report	10
A quantitative comparison between the essential medicines for rheumatic diseases in children and young people in Africa and the WHO model list	10
Increasing the etanercept dose in a treat-to-target approach in juvenile idiopathic arthritis: does it help to reach the target? A post-hoc analysis of the BeSt for Kids randomised clinical trial	10
Risk perception, well-being, depression and anxiety in children and adolescents with rheumatic diseases during the COVID-19 pandemic - results from the prospective multicenter KICK-COVID study in Germ	10
Level and correlates of physical activity among children and adolescents with juvenile idiopathic arthritis compared to controls: results from a German nationwide prospective observational cohort stud	10
Monogenic systemic lupus erythematosus onset in a 13-year-old boy with Noonan like-syndrome: a case report and literature review	10
Predictors of fibrogenesis in children with JIA: a single-center pilot study	10
Peripheral blood regulatory T cells and disease activity, quality of life, and outcomes in children with juvenile idiopathic arthritis	10
Duration of effect in treatment of methotrexate intolerance in juvenile idiopathic arthritis using Eye Movement Desensitization and Reprocessing (EMDR) can be improved by Bi-lateral Alternating Stimul	10
Towards a histological diagnosis of childhood small vessel CNS vasculitis	9
Pain-coping scale for children and their parents: a cross-sectional study in children with musculoskeletal pain	9
Musculoskeletal involvement in childhood leukemia: Characteristics and survival outcomes	9
Reasons for canakinumab initiation among patients with periodic fever syndromes: a retrospective medical chart review from the United States	9
Bilateral anterior and intermediate uveitis in SARS-CoV-2 associated multisystem inflammatory syndrome in a pediatric patient	9

Capturing critical data elements in Juvenile Idiopathic Arthritis: initiatives to improve data capture	9
Mere coincidence or an association? Case of juvenile idiopathic arthritis in a patient with Klinefelter syndrome	9
ANCA-negative eosinophilic granulomatosis with polyangiitis in a girl misdiagnosed as asthma and pulmonary tuberculosis	9
Efficacy and safety of thalidomide in children with monogenic autoinflammatory diseases: a single-center, real-world-evidence study	9
Glucose metabolism in systemic juvenile idiopathic arthritis	9
Baseline characteristics of children with juvenile dermatomyositis enrolled in the first year of the new Childhood Arthritis and Rheumatology Research Alliance registry	9
Is an association of acro-osteolysis, bone fragility, and enchondromatosis a newfound disease caused by an amplification of PTHLH? A case report	9
Aicardi-Goutières syndrome type 6: report of ADAR variant and clinical outcome after ruxolitinib treatment in the neonatal period	9
Three cases of autoinflammatory disease with novel NLRC4 mutations, and the first mutation reported in the CARD domain of NLRC4 associated with autoinflammatory infantile enterocolitis (AIFEC)	9
Real-world psychosocial impact among patients with juvenile idiopathic arthritis and families in Spain	9
The successes and challenges of harmonising juvenile idiopathic arthritis (JIA) datasets to create a large-scale JIA data resource	9
α2-fraction and haptoglobin as biomarkers for disease activity in oligo- and polyarticular juvenile idiopathic arthritis	9
Successful rituximab treatment for severe rapidly progressive interstitial lung disease with anti-MDA5 antibody-positive juvenile dermatomyositis: a case report and literature review	9
The efficacy and safety of allogeneic stem cell transplantation in Mevalonate Kinase Deficiency	9
Efficacy and safety of canakinumab in systemic juvenile idiopathic arthritis, the first Chinese experience	9
The relation between C-reactive protein and serum amyloid A in patients with autoinflammatory diseases	8
Revising the WHO Essential Medicines List for paediatric rheumatology update	8
Effect of first-line biologic initiation on glucocorticoid exposure in children hospitalized with new-onset systemic juvenile idiopathic arthritis: emulation of a pragmatic trial using observational d	8
Impaired cardiorespiratory and neuromuscular fitness in children and adolescents with juvenile idiopathic arthritis: a cross-sectional case–control study in the era of biologic drug therapies	8
Safety and effectiveness of intravenous abatacept for polyarticular-course juvenile idiopathic arthritis: An all-case postmarketing surveillance study	8
Colchicine treatment can be discontinued in a selected group of pediatric FMF patients	8
Correction: Safety and effectiveness of intravenous abatacept for polyarticular-course juvenile idiopathic arthritis: An all-case postmarketing surveillance study	8
Prevalence of autoantibodies in patients with juvenile idiopathic arthritis: results from the German inception cohort ICON-JIA	8
The patient’s voice: a cross-sectional study of physical health and disability in juvenile idiopathic arthritis	8
Anakinra and hepatotoxicity in pediatric rheumatology: a case series	8
Severe Raynaud’s phenomenon from ethosuximide raised concern over possible onset of systemic vasculitis: a case report	8
Priorities in Chronic nonbacterial osteomyelitis (CNO) – results from an international survey and roundtable discussions	8
The protective effect of COVID-19 vaccines on developing multisystem inflammatory syndrome in children (MIS-C): a systematic literature review and meta-analysis	8
Childhood-Onset ANCA- Associated Vasculitis: single center experience from Central California	8
Proceedings of the 29th European Paediatric Rheumatology Congress	7
In a large Juvenile Idiopathic Arthritis (JIA) cohort, concomitant celiac disease is associated with family history of autoimmunity and a more severe JIA course: a retrospective study	7
Systemic lupus of pediatric onset in Afro-Caribbean children: a cohort study in the French West Indies and French Guiana	7
Natural autoimmunity in oligoarticular juvenile idiopathic arthritis	7
Role of ultrasound and inflammatory factors in the management of pediatric hip joint effusion	7
Epidemiology and demographics of juvenile idiopathic arthritis in Africa and Middle East	7
Dutch patients, caregivers and healthcare professionals generate first nationwide research agenda for juvenile idiopathic arthritis	7
Juvenile dermatomyositis: association between nail fold capillary end row loop– area under the curve– and disease damage indicators	7
Proceedings of the 27th European Paediatric Rheumatology Congress (PReS 2021)	7
Community poverty level influences time to first pediatric rheumatology appointment in Polyarticular Juvenile Idiopathic Arthritis	7
Reducing fatigue in pediatric rheumatic conditions: a systematic review	7
Intraarticular steroids as DMARD-sparing agents for juvenile idiopathic arthritis flares: Analysis of the Childhood Arthritis and Rheumatology Research Alliance Registry	7
Serositis as an indicator of poor prognosis in pediatric systemic lupus erythematosus	7
Towards telehealth delivery in pediatric rheumatology practice	7
T-ing up the storm: pathogenic cycling lymphocytes in the biology of macrophage activation syndrome	7
Mycophenolic acid trough level assessment in patients with lupus nephritis; does it make a difference?	7
Incomplete penetrance of NOD2 C483W mutation underlining Blau syndrome	7
Correction: Intraarticular steroids as DMARD-sparing agents for juvenile idiopathic arthritis flares: Analysis of the Childhood Arthritis and Rheumatology Research Alliance Registry	7
Correction: the characteristics of video capsule endoscopy in pediatric Henoch–Schönlein purpura with gastrointestinal symptoms	7
African guidelines for diagnosis and management of polyarticular juvenile idiopathic arthritis: PAFLAR initiative	7
Diffuse alveolar hemorrhage in children with trisomy 21	7
Barriers to care in juvenile localized and systemic scleroderma: an exploratory survey study of caregivers’ perspectives	7
Predictive value of Albumin-Bilirubin grade for intravenous immunoglobulin resistance in a large cohort of patients with Kawasaki disease: a prospective study	7
Correction to: Juvenile idiopathic arthritis in Harlequin ichthyosis, a rare combination or the clinical spectrum of the disease? Report of a child treated with etanercept and review of the literature	6
Unravelling the clinical heterogeneity of undefined recurrent fever over time in the European registries on Autoinflammation	6
Joint fluid multi-omics improves diagnostic confidence during evaluation of children with presumed septic arthritis	6
Correction: Successful rituximab treatment for severe rapidly progressive interstitial lung disease with anti-MDA5 antibody-positive juvenile dermatomyositis: a case report and literature review	6
An updated overview of Juvenile systemic sclerosis in a French cohort	6
The “Intermediate” CD14 + CD16 + monocyte subpopulation plays a role in IVIG responsiveness of children with Kawasaki disease	6
Differences in rituximab use between pediatric rheumatologists and nephrologists for the treatment of refractory lupus nephritis and renal flare in childhood-onset SLE	6
Non-criteria antiphospholipid antibodies and pediatric rheumatic disease: a case series	6
Necrotizing Funisitis as an Intrauterine manifestation of Cryopyrin-Associated Periodic Syndrome: a case report and review of the literature	6
Resilience and its associations in children with Systemic Lupus Erythematosus and Juvenile Idiopathic Arthritis	6
Age, gender, height and weight in relation to joint cartilage thickness among school-aged children from ultrasonographic measurement	6
What have we learned from long-term studies in juvenile idiopathic arthritis? – Prediction, classification, transition.	6
Pediatric rheumatology in Africa: thriving amidst challenges	6
Correction to: Targeted provider education and pre-visit planning increase rates of formal depression screening in childhood-onset SLE	6
Clinical characteristics and prognostic factor in juvenile dermatomyositis: data of the Spanish registry	6
Evaluation of pediatric rheumatology telehealth satisfaction during the COVID-19 pandemic	6
Biomarkers of lipid metabolism in patients with juvenile idiopathic arthritis: relationship with disease subtype and inflammatory activity	6
Monozygotic twins discordant for juvenile dermatomyositis: clinical, serological and gene expression studies	6
Golimumab in juvenile idiopathic arthritis-associated uveitis unresponsive to Adalimumab	6
Psychiatric disorders in incident patients with juvenile idiopathic arthritis - a case-control cohort study	6