OOIR: Observatory of International Research

Papers

(The TQCC of Pediatric Rheumatology is 6. The table below lists those papers that are above that threshold based on CrossRef citation counts [max. 250 papers]. The publications cover those that have been published in the past four years, i.e., from 2021-11-01 to 2025-11-01.)

Article	Citations
The successes and challenges of harmonising juvenile idiopathic arthritis (JIA) datasets to create a large-scale JIA data resource	48
Predictors of fibrogenesis in children with JIA: a single-center pilot study	43
Increasing the etanercept dose in a treat-to-target approach in juvenile idiopathic arthritis: does it help to reach the target? A post-hoc analysis of the BeSt for Kids randomised clinical trial	38
Algorithmic approach in the diagnosis of pediatric uveitis	37
Clinical features, treatment, and outcomes of celiac-associated arthritis: a retrospective cohort study	30
Peripheral blood regulatory T cells and disease activity, quality of life, and outcomes in children with juvenile idiopathic arthritis	27
Juvenile dermatomyositis: association between nail fold capillary end row loop– area under the curve– and disease damage indicators	24
Experiences of sexual and reproductive health screening and counseling in the clinical setting among adolescents and young adults with rheumatic disease	24
Musculoskeletal symptoms and their impact on health-related quality of life in chronic nonbacterial osteomyelitis patients	23
Serositis as an indicator of poor prognosis in pediatric systemic lupus erythematosus	22
Efficacy and safety of canakinumab in systemic juvenile idiopathic arthritis, the first Chinese experience	20
Efficacy and safety of telitacicept in children with IgA vasculitis and IgA vasculitis nephritis: a single-center retrospective study	20
Three cases of autoinflammatory disease with novel NLRC4 mutations, and the first mutation reported in the CARD domain of NLRC4 associated with autoinflammatory infantile enterocolitis (AIFEC)	20
The protective effect of COVID-19 vaccines on developing multisystem inflammatory syndrome in children (MIS-C): a systematic literature review and meta-analysis	19
Barriers to care in juvenile localized and systemic scleroderma: an exploratory survey study of caregivers’ perspectives	19
Consensus on transition care for juvenile idiopathic arthritis: a Delphi study with youth, caregivers, and health professionals	18
The clinical relevance of different antiphospholipid antibody profiles in pediatric rheumatology patients	18
A randomized controlled educational study to evaluate an e-learning module to teach the physical examination of the temporomandibular joint in juvenile idiopathic arthritis	18
Neurological involvement in children with familial Mediterranean fever: a systematic review	17
Natural autoimmunity in oligoarticular juvenile idiopathic arthritis	17
A roadmap for navigating child health research data sharing across Canada and beyond – building on UCAN CAN-DU	17
Proceedings of the 29th European Paediatric Rheumatology Congress	17
Investigating the association between SARS-CoV-2 infection, COVID-19 vaccination, and autoimmune diseases in a pediatric population: a comprehensive analysis	17
Pediatric immune-mediated necrotizing myopathy with anti-SRP antibodies targeting 19, 68, and 72 kda subunits	17
Therapeutic recreation camps for youth with childhood-onset systemic lupus erythematosus: perceived psychosocial benefits	16

Translating research into practice—implementation recommendations for pediatric rheumatology; Proceedings of the childhood arthritis and rheumatology research alliance 2020 implementation science retr	16
Relationship of regional ultraviolet index data with rash and systemic disease activity in youth with childhood-onset systemic lupus: results from the Childhood Arthritis and Rheumatology Research All	15
Infection with SARS-CoV-2 causes flares in patients with juvenile idiopathic arthritis in remission or inactive disease on medication	15
Adherence, helpfulness and barriers to treatment in juvenile idiopathic arthritis – data from a German Inception cohort	15
Immunoprofiling of active and inactive systemic juvenile idiopathic arthritis reveals distinct biomarkers: a single-center study	15
Meningococcal ACWY conjugate vaccine immunogenicity in adolescents with primary or secondary immune deficiencies, a prospective observational cohort study	15
Looking for the best strategy to treat children with new onset juvenile idiopathic arthritis: presentation of the “comparison of STep-up and step-down therapeutic strategies in childhood ARthritiS” (S	15
Myeloid-related protein 8/14 in plasma and serum in patients with new-onset juvenile idiopathic arthritis in real-world setting in a single center	15
Frequency of remission achievement in the pre-treat-to-target decade in juvenile idiopathic arthritis	15
Cytokines in saliva, serum, and temporomandibular joint synovial fluid in children with juvenile idiopathic arthritis: An explorative cross-sectional study	14
Correction: PSTPIP1-associated myeloid-related proteinaemia inflammatory (PAMI) syndrome; a case presenting as a perinatal event with early central nervous system involvement?	14
14-month-old female with anti-MDA5 juvenile dermatomyositis complicated by liver disease: a case report	14
Body mass index is associated with health-related quality of life and disease characteristics in young adults with juvenile idiopathic arthritis	14
Development of the paediatric society of the African league against rheumatism (PAFLAR) JIA registry and clinical profile of JIA in Africa from the PAFLAR JIA registry	14
Real-world comparison of the effects of etanercept and adalimumab on well-being in non-systemic juvenile idiopathic arthritis: a propensity score matched cohort study	14
Exploring paediatric rheumatology care: a ten-year retrospective analysis of the patient population in Ghana	14
Identification of a variant in NLRP3 gene in a patient with Muckle-Wells syndrome: a case report and review of literature	13
Incidence and reasons for biologic and targeted synthetic DMARD switching in juvenile idiopathic arthritis: a real- life stratified analysis	13
How common is remission in rheumatoid factor-positive juvenile idiopathic arthritis patients? The multicenter Pediatric Rheumatology Academy (PeRA) research group experience	13
Biologic switching patterns among children with non-systemic juvenile idiopathic arthritis	13
Exploring the clinical profiles and management of juvenile dermatomyositis in Africa: a survey of African rheumatology care providers	12
Feasibility of quantitative sensory testing in juvenile idiopathic arthritis	12
Circulating prolactin level in Juvenile Systemic Lupus Erythematosus and its correlation with disease activity: a case control study	12
Juvenile dermatomyositis with Anti-SAE antibodies in a Moroccan child associated with pseudo-angioedema: a case report	12
Tapering of biological treatment in autoinflammatory diseases: a scoping review	12
Long noncoding RNAs (CTC-471J1.2, NeST) as epigenetic risk factors of active juvenile lupus nephritis: a case-control study	12
Developing consensus outcome measures in juvenile systemic sclerosis: a global survey of pediatric rheumatologists and literature review	12
Screening for celiac disease in juvenile idiopathic arthritis	11
An iceberg I can’t handle: a qualitative inquiry on perceptions towards paediatric rheumatology among healthcare workers in Kenya	11
Maternal and infant outcomes of pregnancy associated with anti-SSA/RO antibodies: a systematic review and meta-analysis	11
Subcutaneous tocilizumab in the management of non-infectious uveitis in children: a brief report	11
Predictors of persisting pain in children with Juvenile Idiopathic Arthritis: a case control study nested in the ReACCh-Out cohort	11
Economic evaluation of infliximab, synthetic triple therapy and methotrexate in the treatment of newly diagnosed juvenile idiopathic arthritis	11
Differences between leukemic arthritis and juvenile idiopathic arthritis	11
Longitudinal assessment of preparation for care transition among adolescents and young adults with rheumatologic disease: a single-center pilot study	11
Humoral and cellular immune response to mRNA SARS-CoV-2 BNT162b2 vaccine in adolescents with rheumatic diseases	11
Restricted upper airway dimensions in patients with dentofacial deformity from juvenile idiopathic arthritis	10
A virtual pediatric rheumatology teaching initiative for physicians in Somaliland	10
Management of childhood-onset systemic lupus erythematosus (cSLE) over the last two decades in Spain	10
Epstein–Barr Virus encephalitis associated hemophagocytic lymphohistiocytosis in childhood-onset systemic lupus erythematosus: a case-based review	10
A novel PRKDC mutation caused B lymphocytes V(D)J rearrangement disorder in the SLE-DAH like symptoms patient	10
NLRP12-associated systemic autoinflammatory diseases in children	10
Dengue infection triggered immune mediated necrotizing myopathy in children: a case report and literature review	9
Factors associated with care- and health-related quality of life of caregivers of children with juvenile idiopathic arthritis	9
Structural ultrasound of joints and tendons in healthy children: development of normative data	9
A qualitative evaluation of the specific carbohydrate diet for juvenile idiopathic arthritis based on children’s and parents’ experiences	9
Bone mineral density in egyptian children with juvenile idiopathic arthritis: possible correlation to serum RANKL / osteoprotegerin (OPG) ratio and OPG gene polymorphisms	9
Treatment escalation patterns to start biologics in refractory moderate juvenile dermatomyositis among members of the Childhood Arthritis and Rheumatology Research Alliance	9
Prospective study to characterize adalimumab exposure in pediatric patients with rheumatic diseases	9
Kawasaki disease in Kenya and review of the African literature	9

Chronic non-bacterial osteomyelitis in children- five-year standardized follow-up of a prospective observational cohort in the pre-biological era	9
Hypertension as a prominent manifestation secondary to renal artery lesions in pediatric Behcet’s disease	9
Mitigated suppressive function of regulatory T cells (Treg) upon Th17-inducing cytokines in oligo- and polyarticular Juvenile Idiopathic Arthritis (JIA) patients	9
Monogenic disorders as mimics of juvenile idiopathic arthritis	8
Whole-exome sequencing analysis identifies novel variants associated with Kawasaki disease susceptibility	8
Scurvy masquerading as IgA vasculitis	8
High prevalence of sacroiliitis and early structural changes in the sacroiliac joint in children with enthesitis-related arthritis: findings from a tertiary centre in Hong Kong	8
Changes over time in inflammatory and structural lesions at the sacroiliac joint in children with spondyloarthritis exposed and unexposed to tumor necrosis factor inhibitor	8
Capillary microscopy is a potential screening method for connective tissue disease in children with Raynaud’s phenomenon	8
Correction: Transition readiness among finnish adolescents with juvenile idiopathic arthritis	8
Axial involvement in enthesitis-related arthritis: results from a single-center cohort	8
Utility of patient-reported outcomes for pulmonary symptoms and sleep disturbance and impairment in children with systemic juvenile idiopathic arthritis	8
Clinical outcomes and safety of anakinra in the treatment of multisystem inflammatory syndrome in children: a single center observational study	8
MicroRNA-27a-3p enhances the inflammatory phenotype of Juvenile Idiopathic Arthritis fibroblast-like synoviocytes	8
Depression and anxiety in childhood-onset systemic lupus erythematosus: prevalence, associated factors, and impact on quality of life and family	8
Modified Delphi study to identify priority clinical questions for the Australian living guidelines for the management of Juvenile Idiopathic Arthritis	8
Feasibility of applying infrared thermal imaging for home monitoring of arthritis in children	8
Characterizing lupus in African American children in Southern United States	8
Bone health and physical activity in adolescents with juvenile idiopathic arthritis: a cross-sectional case-control study	8
Assay for interferon gamma release as a novel marker in pediatric patients with systemic lupus erythematosus	8
Mental comorbidities in adolescents and young adults with juvenile idiopathic arthritis: an analysis of German nationwide health insurance data	7
Disease relapse rate in children with autoimmune rheumatic diseases after COVID-19 infection and vaccination	7
Musculoskeletal involvement in childhood leukemia: Characteristics and survival outcomes	7
Part 5: Allogeneic HSCT in refractory SJIA with lung disease; recent cases from centers in North America & Europe	7
Pain-coping scale for children and their parents: a cross-sectional study in children with musculoskeletal pain	7
Implementation study of the CARRA Uveitis Consensus Treatment Plans: feasibility for clinical practice and applicability for research	7
Towards a histological diagnosis of childhood small vessel CNS vasculitis	7
ANCA-negative eosinophilic granulomatosis with polyangiitis in a girl misdiagnosed as asthma and pulmonary tuberculosis	7
Transition readiness in adolescents and young adults with chronic rheumatic disease in Oman: today’s needs and future challenges	7
Paediatric autoimmune diseases with ELANE mutations associated with neutropenia	7
Panniculitis with late onset enthesitis-related arthritis: a case report	7
Overlap syndrome in a 12-year-old girl with systemic lupus erythematosus and anti-oj antibody-positive polymyositis: a case report	7
Discontinuation of biologic DMARDs in non-systemic JIA patients: a scoping review of relapse rates and associated factors	7
High rheumatoid factor does not diminish efficacy of TNF inhibitors in seropositive JIA	7
Correction: Importance of pediatric rheumatologists and transitional care for juvenile idiopathic arthritis-associated uveitis: a retrospective series of 9 cases	7
“I’d like more options!”: Interviews to explore young people and family decision-making needs for pain management in juvenile idiopathic arthritis	6
Unveiling the uncommon: diagnostic journey of camurati-engelmann disease in a pediatric patient	6
Physical (in)activity and screen-based media use of adolescents with juvenile idiopathic arthritis over time - data from a German inception cohort	6
Kawasaki disease with an asymptomatic reversible splenial lesion	6
Non-criteria antiphospholipid antibodies and pediatric rheumatic disease: a case series	6
Accuracy and adequacy of photoprotection in pediatric systemic lupus erythematosus patients, and the effect of education on photoprotection: a prospective study	6
Musculoskeletal pain and its effect on daily activity and behaviour in Icelandic children and youths with juvenile idiopathic arthritis: a cross-sectional case-control study	6
Towards a standardized program of transitional care for adolescents with juvenile idiopathic arthritis for Turkey: a national survey study	6
Bacterial infection in patients with juvenile systemic lupus erythematosus and fever	6
Clinical characteristics and prognostic factor in juvenile dermatomyositis: data of the Spanish registry	6
Effect of exercise training on heath, quality of life, exercise capacity in juvenile idiopathic arthritis: a meta-analysis of randomized controlled trials	6
An updated overview of Juvenile systemic sclerosis in a French cohort	6
Beneficial effects of anti-apolipoprotein A-2 on an animal model for coronary arteritis in Kawasaki disease	6
A case of ANCA-associated vasculitis in a 16-year-old female following SARS-COV-2 infection and a systematic review of the literature	6
Systemic juvenile idiopathic arthritis in French Afro-Caribbean children, a retrospective cohort study	6
PSTPIP1-associated myeloid-related proteinaemia inflammatory (PAMI) syndrome; a case presenting as a perinatal event with early central nervous system involvement?	6
Incidence, prevalence, and comorbidities of juvenile idiopathic arthritis in Germany: a retrospective observational cohort health claims database study	6
What have we learned from long-term studies in juvenile idiopathic arthritis? – Prediction, classification, transition.	6
Prevalence of spine pain among Tunisian children and adolescents and related factors	6
Is an association of acro-osteolysis, bone fragility, and enchondromatosis a newfound disease caused by an amplification of PTHLH? A case report	6
Nodular Regenerative Hyperplasia of the liver in Juvenile Dermatomyositis	6
Correction: Engaging patients and parents to improve mental health intervention for youth with rheumatological disease	6
Nailfold videocapillaroscopy in patients with deficiency of adenosine deaminase 2 (DADA2): a case-control study	6