OOIR: Observatory of International Research

Papers

(The median citation count of Journal of Policy and Practice in Intellectual Disabilities is 1. The table below lists those papers that are above that threshold based on CrossRef citation counts [max. 250 papers]. The publications cover those that have been published in the past four years, i.e., from 2021-11-01 to 2025-11-01.)

Article	Citations
Ageing With Intellectual Disabilities and Complex Age‐Related Conditions in Ireland: In Search of a Model of Care	109
Issue Information	53
Quality of Life as a Paradigm With Multiple Applications in the Field of Intellectual and Developmental Disabilities	33
Issue Information	22
Parents taking action adapted to parents of Black autistic children: Pilot results	19
As far as possible: The relationship between public awareness, social distance, and stigma towards people with intellectual disability	18
Advances and gaps in policy, practice, and research in transition for students with intellectual and developmental disabilities across four countries	17
Remote monitoring support services for people with intellectual and developmental disabilities	16
Impact of the COVID‐19 Pandemic on Service Experiences of Individuals With Intellectual Disability in Sweden: Differences Between Men and Women	14
	14
Physical activity and physical and mental health in middle‐aged adults with Down syndrome	13
After us, together with us: Quality of life in adults with disabilities in an inclusive and sustainable future	13
Issue Information	11
Limits on quality of life: Who has the answer?	11
Remote consultation: The experiences of community intellectual disability teams	11
Issue Information	10
	10
Celebrating Plurality: How to Embed Inclusive Research Structurally and Meaningfully in Research Practice Related to People With Profound Intellectual and Multiple Disabilities	9
Emerging from the shadows: Digital stories of self‐advocates with intellectual disabilities	8
Involving and Engaging People With Learning Disabilities in the DECODE* Research Project (*Data‐Driven Machine‐Learning Aided Stratification and Management of Multiple Long‐Term Conditions	8
	8
Issue Information	8
Health care for people with intellectual disability in Spain	8
Issue Information	8
Culturally adapting a parent psychoeducational intervention for Chinese immigrant families of young children with autism spectrum disorder	8

Issue Information	7
Continuing conceptualising QOL through application to lives of young adults with Down syndrome	7
How I got here: Career influences on healthcare professionals who work with persons with intellectual and developmental disabilities	7
Self‐perceived stigma in Chilean adolescents with intellectual disability	6
Best practices in evaluating work integration social enterprises for persons with intellectual disabilities: A scoping review	6
	6
Reasons for collaborating in inclusive research projects: The perspectives of researchers with experiential knowledge, academic researchers and principal investigators	6
The development of a trauma informed care framework for residential services for adults with an intellectual disability: Implications for policy and practice	6
The ontology and epistemology shaping our understanding of inclusion: A critical review of the research literature on disability and inclusion	6
Practitioners' experiences of delivering parenting interventions remotely: A mixed‐methods study	5
	5
The Quality of Life Supports Model as a major component in applying the quality of life paradigm	5
Parents helping a child with disability learn at home during COVID‐19: Experiences from Slovenia and Canada	5
	5
Enhancing staff capacity to support children with intellectual disability receiving residential services: A realist evaluation of an improvement program	5
Connecting locally: An examination of the role of service providers in supporting the social inclusion of adults with intellectual disabilities in their neighbourhoods	5
Ireland's approach to health and social care policy and practice for people with intellectual and developmental disabilities	5
Documenting the advocacy experiences among eight Latina mothers of children with intellectual and developmental disabilities	5
Palliative and End‐of‐Life Care Needs of People With Intellectual Disabilities: A Meta‐Ethnography	4
Adapting parent‐focused interventions for diverse caregivers of children with intellectual and developmental disabilities: Lessons learned during global crises	4
What are the priorities for health data for adults with intellectual and developmental disabilities? It varies by whom you ask	4
The content validity of the Behavioural Appraisal Scales in people with profound intellectual and multiple disabilities: A Delphi study	4
Using a self‐guided app to provide communication strategies for caregivers of young children with developmental disorders: A pilot investigation	4
Norwegian perspectives on health care for people with intellectual and developmental disabilities	4
	4
Issue Information	3
Designing genetic studies for people with intellectual disabilities: Practical lessons from a pilot study	3
The Shared Citizenship Paradigm and Its Measurement	3
A national census of forensic in‐patients with intellectual disability and five‐year follow‐up	3
Transitional challenges: Psychotropic medication and residential setting among young adults with intellectual disabilities	3
COVID‐19 pandemic experiences of group home residents with intellectual disabilities: Findings from inclusive, qualitative interviews with self‐advocates in Massachusetts	3
Specialized medical care for people with intellectual disabilities: A retrospective cohort study in an outpatient ID practice	3
Ethics framework and recommendations to support capabilities of people with intellectual and developmental disabilities during pandemics	3
	3
The influence of context on the conceptualization, measurement, and application of the concept of quality of life	3
Voting status of people with an intellectual disability in four French–speaking cantons of Switzerland: A survey	2
	2
	2
Supporting the needs of people with intellectual and developmental disabilities 1 year into the COVID‐19 pandemic: An international, mixed methods study of nurses' perspectives	2
Tribute to Philip W. Davidson (1942‐2022)	2
Health and health care are essential to the quality of life of people with intellectual disability	2
Exploring the implementation of COVID‐19 infection control guidance in congregate living settings supporting those with intellectual and developmental disabilities	2
Key learnings from COVID‐19 to sustain quality of life for families of individuals with IDD	2
Development and feasibility testing of an evidence‐based occupational therapy program for adults with both Down syndrome and dementia	2
Good health care for a good life? The case of down syndrome	2
Implementation of Annual Health Assessments for Adults With Intellectual Disabilities: An Integrative Review	2
“Thin markets”: Recruitment and retention of disability staff to support effective post‐parental care planning in rural Australia	2
Siblings of children with intellectual and developmental disabilities: Quality of life perceptions from Catalonia	2
Issue Information	2
Perspectives on healthcare for people with intellectual disabilities in Poland	2

Speech and language therapy services for people with Down syndrome: The disparity between research and practice	2
Self‐determination and quality of life of people with intellectual and developmental disabilities: Past, present, and future of close research paths	2
Augmentative and alternative communication continuing education programs for multidisciplinary teams—Does it make a difference?	2
	2
Synthesis: International perspectives on healthcare for people with intellectual and developmental disabilities	1
Health care for persons with intellectual and developmental disabilities in India	1
Digital inclusion and participation of people with intellectual disabilities during COVID‐19: A rapid review and international bricolage	1
Neighbourhood deprivation and access to early intervention and support for families of children with intellectual and developmental disabilities	1
Self‐Determination and Community Inclusion: Exploring Policy Reform in Day Services for Adults With Intellectual and Developmental Disabilities in the Republic of Ireland	1
The Ikigai framework: Supporting meaning in life	1
Using the quality of life framework to operationalize and assess the CRPD articles and the Sustainable Development Goals	1
“It does change the narrative for health and social care” views of clinical and homeless service staff about the use of intellectual disability screening tools within homeless support pathways in the	1
Providers' Perspectives on Resources Needed for Disseminating and Implementing Evidence‐Based Practices for Autism: A Qualitative Study	1
Ten‐year impact of a Down syndrome pediatric clinic	1
The Use of Restrictive Measures in Community Services for People With Intellectual Disabilities in Sweden	1
COVID‐19: Evolving challenges and opportunities for residential and vocational intellectual disability service providers	1
Physicians’ Readiness to Treat Children With Autism Spectrum Disorders: A Focus on Orthopedics and Ophthalmology	1
“Navigating Social Security Employment Supports: The Experiences of Young Adults With Intellectual Disabilities Who Want to Work”	1
Advancing Trauma‐Informed Care System‐Change in Disability Organizations: A National Learning Collaborative	1
A perspective on policies and practices regarding access to and quality of healthcare for people with intellectual disabilities in Zambia	1