OOIR: Observatory of International Research

Papers

(The median citation count of Journal of Policy and Practice in Intellectual Disabilities is 1. The table below lists those papers that are above that threshold based on CrossRef citation counts [max. 250 papers]. The publications cover those that have been published in the past four years, i.e., from 2021-06-01 to 2025-06-01.)

Article	Citations
Issue Information	97
Issue Information	48
As far as possible: The relationship between public awareness, social distance, and stigma towards people with intellectual disability	29
Healthcare of Persons With Complex Developmental Disabilities From Three European Experiences: France, Italy, and Norway	29
Advances and gaps in policy, practice, and research in transition for students with intellectual and developmental disabilities across four countries	21
Parents taking action adapted to parents of Black autistic children: Pilot results	15
Geographical Networks in the Divergence of Australian Positive Behavior Support Policy	13
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Physical activity and physical and mental health in middle‐aged adults with Down syndrome	13
Remote monitoring support services for people with intellectual and developmental disabilities	13
How Mothers of Adults With Profound Intellectual Disabilities Experience Their Everyday Life? A Qualitative Retrospective Study From Poland	12
After us, together with us: Quality of life in adults with disabilities in an inclusive and sustainable future	12
Limits on quality of life: Who has the answer?	11
Issue Information	11
Issue Information	11
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Remote consultation: The experiences of community intellectual disability teams	11
Issue Information	11
How do Fathers With ID Experience Their Children Being Removed from Their Care Through the English Court System?	10
Issue Information	9
Involving and Engaging People With Learning Disabilities in the DECODE* Research Project (*Data‐Driven Machine‐Learning Aided Stratification and Management of Multiple Long‐Term Conditions	8
Emerging from the shadows: Digital stories of self‐advocates with intellectual disabilities	7
Culturally adapting a parent psychoeducational intervention for Chinese immigrant families of young children with autism spectrum disorder	6
The development of a trauma informed care framework for residential services for adults with an intellectual disability: Implications for policy and practice	6
Self‐perceived stigma in Chilean adolescents with intellectual disability	6

Continuing conceptualising QOL through application to lives of young adults with Down syndrome	6
How I got here: Career influences on healthcare professionals who work with persons with intellectual and developmental disabilities	6
Health care for people with intellectual disability in Spain	6
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Enhancing staff capacity to support children with intellectual disability receiving residential services: A realist evaluation of an improvement program	5
Issue Information	5
Parents helping a child with disability learn at home during COVID‐19: Experiences from Slovenia and Canada	5
Best practices in evaluating work integration social enterprises for persons with intellectual disabilities: A scoping review	5
The Quality of Life Supports Model as a major component in applying the quality of life paradigm	5
	5
The ontology and epistemology shaping our understanding of inclusion: A critical review of the research literature on disability and inclusion	5
Documenting the advocacy experiences among eight Latina mothers of children with intellectual and developmental disabilities	5
Reasons for collaborating in inclusive research projects: The perspectives of researchers with experiential knowledge, academic researchers and principal investigators	5
Ireland's approach to health and social care policy and practice for people with intellectual and developmental disabilities	4
Practitioners' experiences of delivering parenting interventions remotely: A mixed‐methods study	4
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Adapting parent‐focused interventions for diverse caregivers of children with intellectual and developmental disabilities: Lessons learned during global crises	4
Connecting locally: An examination of the role of service providers in supporting the social inclusion of adults with intellectual disabilities in their neighbourhoods	4
A national census of forensic in‐patients with intellectual disability and five‐year follow‐up	4
The content validity of the Behavioural Appraisal Scales in people with profound intellectual and multiple disabilities: A Delphi study	4
What are the priorities for health data for adults with intellectual and developmental disabilities? It varies by whom you ask	4
Norwegian perspectives on health care for people with intellectual and developmental disabilities	4
The influence of context on the conceptualization, measurement, and application of the concept of quality of life	3
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Specialized medical care for people with intellectual disabilities: A retrospective cohort study in an outpatient ID practice	3
Issue Information	3
COVID‐19 pandemic experiences of group home residents with intellectual disabilities: Findings from inclusive, qualitative interviews with self‐advocates in Massachusetts	3
Using a self‐guided app to provide communication strategies for caregivers of young children with developmental disorders: A pilot investigation	3
Designing genetic studies for people with intellectual disabilities: Practical lessons from a pilot study	3
Transitional challenges: Psychotropic medication and residential setting among young adults with intellectual disabilities	3
Good health care for a good life? The case of down syndrome	2
State of the Field: The Need for Self‐Report Measures of Health and Quality of Life for People With Intellectual and Developmental Disabilities	2
Speech and language therapy services for people with Down syndrome: The disparity between research and practice	2
Voting status of people with an intellectual disability in four French–speaking cantons of Switzerland: A survey	2
Issue Information	2
Key learnings from COVID‐19 to sustain quality of life for families of individuals with IDD	2
Exploring the implementation of COVID‐19 infection control guidance in congregate living settings supporting those with intellectual and developmental disabilities	2
Self‐determination and quality of life of people with intellectual and developmental disabilities: Past, present, and future of close research paths	2
Supporting the needs of people with intellectual and developmental disabilities 1 year into the COVID‐19 pandemic: An international, mixed methods study of nurses' perspectives	2
Chronicity of Challenging Behaviors in Persons with Severe/Profound Intellectual Disabilities Who Received Active Treatment During a 20‐Year Period	2
Perspectives on healthcare for people with intellectual disabilities in Poland	2
Development and feasibility testing of an evidence‐based occupational therapy program for adults with both Down syndrome and dementia	2
What Are the Experiences of People with Neurodevelopmental Disorders Receiving Outpatient Mental Health Services in Singapore?	2
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Siblings of children with intellectual and developmental disabilities: Quality of life perceptions from Catalonia	2
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Implications of COVID‐19 Regulations for People With Visual and Intellectual Disabilities: Lessons to Learn From Visiting Restrictions	2
Ethics framework and recommendations to support capabilities of people with intellectual and developmental disabilities during pandemics	2
Multilevel Governance and the Implementation of Inclusion Policy for Older Adults With Intellectual and Developmental Disabilities in Canada	2

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Implementation of Annual Health Assessments for Adults With Intellectual Disabilities: An Integrative Review	1
Ten‐year impact of a Down syndrome pediatric clinic	1
Synthesis: International perspectives on healthcare for people with intellectual and developmental disabilities	1
Neighbourhood deprivation and access to early intervention and support for families of children with intellectual and developmental disabilities	1
A perspective on policies and practices regarding access to and quality of healthcare for people with intellectual disabilities in Zambia	1
The Ikigai framework: Supporting meaning in life	1
“Thin markets”: Recruitment and retention of disability staff to support effective post‐parental care planning in rural Australia	1
What Promotes Transfer of Staff Training Related to Challenging Behavior Displayed by Adults With Intellectual Disabilities?	1
Using the quality of life framework to operationalize and assess the CRPD articles and the Sustainable Development Goals	1
Digital inclusion and participation of people with intellectual disabilities during COVID‐19: A rapid review and international bricolage	1
Augmentative and alternative communication continuing education programs for multidisciplinary teams—Does it make a difference?	1
Self‐Determination and Community Inclusion: Exploring Policy Reform in Day Services for Adults With Intellectual and Developmental Disabilities in the Republic of Ireland	1
The Use of Restrictive Measures in Community Services for People With Intellectual Disabilities in Sweden	1
COVID‐19: Evolving challenges and opportunities for residential and vocational intellectual disability service providers	1
A Survey of Befriending Services for People With Intellectual Disabilities in the United Kingdom	1
Health care for persons with intellectual and developmental disabilities in India	1
Health and health care are essential to the quality of life of people with intellectual disability	1
Tribute to Philip W. Davidson (1942‐2022)	1