OOIR: Observatory of International Research

Papers

(The TQCC of Journal of Intellectual Disabilities is 2. The table below lists those papers that are above that threshold based on CrossRef citation counts [max. 250 papers]. The publications cover those that have been published in the past four years, i.e., from 2020-05-01 to 2024-05-01.)

Article	Citations
“It’s ok, mom. I got it!”: Exploring the experiences of young adults with intellectual disabilities in a postsecondary program affected by the COVID-19 pandemic from their perspective and their famili	15
Usage of digital media by people with intellectual disabilities: Contrasting individuals’ and formal caregivers’ perspectives	14
Experiences of mental health professionals providing services to adults with intellectual disabilities and mental health problems: A systematic review and meta-synthesis of qualitative research studie	13
Virtual reality and augmented reality as strategies for teaching social skills to individuals with intellectual disability: A systematic review	12
The potential for person-centred planning to support the community participation of adults with an intellectual disability	11
Parental stress and adjustment in the context of rare genetic syndromes: A scoping review	9
Advancing inclusive research with people with profound and multiple learning disabilities through a sensory-dialogical approach	9
External sources promoting resilience in adults with intellectual disabilities: A systematic literature review	9
Functioning of children and adolescents with Down syndrome and the association with environmental barriers and facilitators during the COVID-19 pandemic	9
The importance of supportive relationships with general practitioners, hospitals and pharmacists for mothers who ‘give medicines’ to children with severe and profound intellectual disabilities	8
Establishing a national mortality review programme for people with intellectual disabilities: The experience in England	8
Compassion-focused therapy groups for people with intellectual disabilities: An extended pilot study	8
Promoting physical activity in everyday life of people with intellectual disabilities: An intervention overview	7
Bias in assessment of co-occurring mental disorder in individuals with intellectual disabilities: Theoretical perspectives and implications for clinical practice	6
Transitioning to long-term care for older adults with intellectual disabilities: A concept analysis	6
Down syndrome and breastfeeding: A systematic review	6
Exploring needs, barriers, and facilitators for promoting physical activity for children with intellectual developmental disorders: A qualitative focus group study	6
Ageing people with intellectual disabilities and the association between frailty factors and social care: A Swedish national register study	6
Predictors of access to healthcare professionals for people with intellectual disability in Ireland	6
A systematic review of training methods to increase staff’s knowledge and implementation of positive behaviour support in residential and day settings for individuals with intellectual and development	6
Mingled bodies and voices: Maternal reflections on caregiver expertise and intellectual disability	5
Physical activity promotion and adults with intellectual disabilities: A neglected area	5
Working alongside people with intellectual disabilities who have had difficult experiences: Reflections on trauma-informed care within a service context	5
Cognitive behavioral therapy in 22q11.2 deletion syndrome: A case study of two young adults with an anxiety disorder	5
Examining physical activity and quality of life in adults with autism spectrum disorder and intellectual disability	5

The perspective of emerging adults with Down syndrome – On quality of life and well-being	4
Understanding mental health outcomes related to compassion fatigue in parents of children diagnosed with intellectual disability	4
Irish social policy to family carers of adults with an intellectual disability: A critical analysis	4
Mosaicism in Fragile X syndrome: A family case series	4
“Connectedness” between people with intellectual disabilities and challenging behaviour and support staff: Perceptions of psychologists and support staff	4
Is health a priority? Examining health-related support needs in adults with intellectual disability through a self-determination framework	4
Maternal perspectives: The needs of Saudi families of children with Down’s syndrome	4
‘You are Okay’: Effects of a support and educational program for children with mild intellectual disability and their parents with mental health concerns	4
Family factors associated with physical activity in children with intellectual disability: A systematic review	4
Communication partners experiences of communicating with adults with severe/profound intellectual disability through augmentative and alternative communication: A mixed methods systematic review	4
Following 4 months of social distancing during COVID-19 Pandemic in Brazil did not change aspects of functioning in children and adolescents with developmental disabilities: A longitudinal study	4
Self-management of vocational skills for people with significant intellectual disabilities: A systematic review	4
Stress Levels and Coping Strategies of Families of Adults With Intellectual Disability and Challenging Behaviours During the COVID-19 Pandemic in Qatar	4
The challenges of mental health of staff working with people with intellectual disabilities during COVID-19––A systematic review	4
Development and implementation of a longitudinal clinical database for down syndrome in a large pediatric specialty clinic: Methodology and feasibility	4
Virtual care during the pandemic: Multi-family group sessions for Hong Kong Chinese families of adolescents with intellectual disabilities	4
Factors contributing to antihypertensive medication adherence among adults with intellectual and developmental disability	4
Piloting attachment psychoeducation provided to parents of children with severe disabilities: Testing the feasibility of a digital micro-intervention	3
Defining quality of life for individuals with neurodevelopmental disorders: Challenges within an inpatient population	3
Examining the Impacts of the COVID-19 Pandemic on Service Providers Working with Children and Youth with Neuro-developmental Disabilities and their Families: Results of a Focus Group Study	3
(Extra) ordinary parenting: Parents of children with disabilities in the context of disability stigma and pride	3
Associations between executive functions, intelligence and adaptive behaviour in children and adolescents with mild intellectual disability	3
A scoping review to inform an auditing framework evaluating healthcare environments for inclusion of people with intellectual disability and/or autism	3
Physical health effects of sedentary behaviour on adults with an intellectual disability: A scoping review	3
What do specialist mental health professionals think of the mental health services for people with intellectual disabilities in Singapore?	3
Parenting stress among caregivers of children with neurodevelopmental disorders: A cross-sectional study in Bangladesh	3
Exploring how the diagnostic process stratifies children with intellectual disability navigating the service system in Ontario, Canada	3
Defining breast cancer awareness and identifying barriers to breast cancer awareness for women with an intellectual disability: A review of the literature	3
Including people with intellectual and other cognitive disabilities in research and evaluation teams: A scoping review of the empirical knowledge base	3
Social workers’ perceptions of assessing the parental capacity of parents with intellectual disabilities in child protection investigations	3
“The change was as big as night and day”: Experiences of professors teaching students with intellectual disabilities	3
Using Attachment and Biobehavioral Catch-up with young children with developmental delays: A multiple-baseline trial of attachment, sensitivity, and cortisol	3
The effectiveness of a multisensory traditional storytelling programme on target vocabulary development in children with disabilities accessing English as a second language: A preliminary study	3
When you are not here, I cannot do what I want on the tablet – The use of ICT to promote social participation of young people with intellectual disabilities	3
Rare, epilepsy-related disorder including intellectual disability – A scoping review of caregivers’ identified information needs	3
The effects of easy goals versus difficult goals on acquisition and retention of a sport skill in children with intellectual disability	2
The impact of intellectual disability and sport expertise on cognitive and executive functions	2
Family dynamics, trauma, and child-related characteristics: examining factors associated with co-occurring mental health problems in clinically-referred children with and without an intellectual (and	2
Facilitators of Sense of Belonging Among People With Intellectual and Developmental Disabilities: A Systematic Review	2
Understanding the menopausal experiences of women with intellectual disabilities: A scoping review	2
Stakeholder views on young adults with intellectual disabilities as a workforce: A qualitative study on students’ performance in upper secondary education and their employment potential	2
One School’s Management of Students With Intellectual Disabilities During the COVID-19 Outbreak in Japan: A Study Based on Interviews With Teachers	2
Pushing the boundaries of digital social contact: Experiences of people with disabilities and their social networks during the COVID-19 pandemic	2
A descriptive study on reading instruction provided to students with intellectual disability	2
Support needs of older people with intellectual disabilities: An exploratory study among psychologists in the Netherlands	2
Determination of sexual developmental characteristics of adolescents with intellectual disabilities	2
The Perspective of Administrators of Intellectual Disability Organizations on the COVID-19 Pandemic	2
Assessment of dental pain in children with intellectual disability using the dental discomfort questionnaire	2
Factors that potentially influence successful weight loss for adults with intellectual disabilities: A qualitative comparison	2
“Life-altering”: A qualitative analysis of social media birth stories from mothers of children with Down syndrome	2

Reading outcomes of students with intellectual disability on statewide assessments	2
Quality of life of Brazilian families who have children with Williams syndrome	2
Music-based interventions for people with profound and multiple learning disabilities: A systematic review of the literature	2
A model for fostering community capacity to support adults with intellectual disabilities who engage in challenging behaviour: A scoping review	2
Is epilepsy related to psychiatric disorders in people with intellectual disability? A systematic review	2
Different types of combined training programs to improve postural balance in single and dual tasks in children with intellectual disability	2
Better Health, Better Lives? 10-Years on From the World Health Organization’s Declaration on the Health of Children With Intellectual Disabilities	2
ICT in teaching for children with intellectual disabilities	2
Valuing relationships: The impact of a sensory program on the interactions of adolescents with severe-to-profound intellectual disabilities	2
Knowledge, Attitudes, and Practices Towards Fetal Alcohol Spectrum Disorder in New Zealand Educators: An Online Survey	2
Perceptions and responses of staff to the sexuality of adults with intellectual disabilities at facilities in the Western Cape Province of South Africa	2
Challenging behaviors in adults with autism spectrum disorder and intellectual disability: A differential analysis from a transdiagnostic approach	2
Using a hospital passport from the perspective of adults with intellectual disabilities, family carers and health professionals: A qualitative study	2
Early numeracy profiles in young children with intellectual disabilities: The role of cognitive functions	2