OOIR: Observatory of International Research

Papers

(The TQCC of Journal of Intellectual Disabilities is 3. The table below lists those papers that are above that threshold based on CrossRef citation counts [max. 250 papers]. The publications cover those that have been published in the past four years, i.e., from 2021-04-01 to 2025-04-01.)

Article	Citations
Information needs of caregivers of adults with intellectual and/or developmental disabilities in India	22
Triple-P: Interaction of mother-adolescent with intellectual and developmental disability	19
Health challenges in South Dakota: Creation of healthcare provider referral list for Special Olympic athletes	18
Can hope and history rhyme?	17
Hardiness as a Resilience Factor for Adaptation in Families of Children With 22q11.2 Deletion Syndrome: A Mixed Methods Study of Parents’ Perspectives	16
Resilience in the face of adversity: How people with intellectual disabilities deal with challenging times	14
The effects of online intervention program implemented during COVID-19 on the quality of life and physical activities of individuals with intellectual disabilities and their mothers	13
Young children with intellectual disabilities and their mathematical attainments: Do parents’ attitudes toward mathematics, home numeracy, and literacy practices matter?	11
Comparison of Menstrual Care Skills Training Programs Provided to Girls with Intellectual Disabilities By a Healthcare Professional and Caregivers: A Randomized Controlled Trial	10
Persevering professionals: dilemmas of relationships and self-determination in work with people with intellectual disability – a multi-method study based on interpersonal process recall	10
Challenges and responsibilities in the medication management process in 24/7 group housing services for adults with intellectual disability: Interviews with nurses	10
“A little bit more challenging, but more rewarding”: Medical-surgical nurses’ perspectives on caring for adults with intellectual disabilities	10
The effect of dance workshops participation on reaction time in persons with moderate intellectual disabilities - pilot study	10
Down syndrome: Parental experiences of a postnatal diagnosis	9
Change in self-determination-related constructs in persons with severe or profound intellectual and multiple disabilities in the context of transitions	9
Inclusive universities for students with intellectual disabilities from a teacher’s perspective	8
The Perspective of Administrators of Intellectual Disability Organizations on the COVID-19 Pandemic	8
Acute service and disability service providers experiences of joint working to improve health care experiences of people with an intellectual disability compared to non-joint working: A mixed-method s	8
Vulnerabilities, care, and exposure to illness risks among people with intellectual disabilities in Brazil during the COVID-19 pandemic (2020-2021)	7
Family dynamics, trauma, and child-related characteristics: examining factors associated with co-occurring mental health problems in clinically-referred children with and without an intellectual (and	7
Mothers’ experience of Intensive Interaction	7
Decoding intervention for young students with mild intellectual disabilities: A single-subject design study	7
Does Employment Complexity Promote Healthy Cognitive Aging in Down Syndrome?	7
Service models for providing sex education to individuals with intellectual disabilities in the United States	7
We have to stand up for ourselves: Barriers to self-determination experienced by Black youth in the transition to adulthood	7

“She just makes it easier…” The impact of having a dedicated nursing role in supporting people with intellectual disability when accessing acute hospitals, from the perspective of their support staff,	6
Is epilepsy related to psychiatric disorders in people with intellectual disability? A systematic review	6
A thin line between consent and abuse - Reflections on sexual experiences among Swedish young adults with intellectual disabilities	6
A roadmap: Social distancing physical activity data collection to protect those with intellectual disabilities	6
Evaluation of factors affecting body mass index of children with intellectual disability	6
“It’s ok, mom. I got it!”: Exploring the experiences of young adults with intellectual disabilities in a postsecondary program affected by the COVID-19 pandemic from their perspective and their famili	6
The characteristics of users of an online screening tool for children and adolescents with intellectual disability and of those being screened	6
Home- vs gym-based exercise delivery modes of two multicomponent intensity training regimes on cardiorespiratory fitness and arterial stiffness in adults with intellectual and developmental disability	5
Rare, epilepsy-related disorder including intellectual disability – A scoping review of caregivers’ identified information needs	5
Challenges and best practices for recruiting families of children with intellectual disabilities for health research	5
Understanding quality of life in people with complex and multiple communicative disabilities: A narrative overview of the empirical research literature	5
A note from the editor	5
Determination of sexual developmental characteristics of adolescents with intellectual disabilities	5
Neuro-Psychomotor intervention in children with neurodevelopmental disorders: An exploratory study by using parent-report tools	5
Evaluating Saudi Parental Interagency on Collaborative Initiatives for Successful Post-Secondary Transition of Students with Intellectual Disabilities	5
Intellectual deficits and restoration to competency to stand trial: An examination of IQ cut off scores	5
Preventive breast health care, an embarrassing subject for women with intellectual disability	5
Reflections of Adult Children of Mothers with Intellectual Disability	5
Increasing Sight-Phrase Reading with an iPad intervention for Two Students with Intellectual Disability	5
Assessing the effectiveness of menstrual health education in Japan: A non-randomized comparative study of adolescent girls with typical development and those with intellectual disabilities and high su	5
Using a community engaged research approach to develop the social skills training program for adults with Williams syndrome	5
A three-years follow-up of extra intensive support for individuals with intellectual disability and severe challenging behaviour in the Netherlands	5
Different types of combined training programs to improve postural balance in single and dual tasks in children with intellectual disability	5
Mosaicism in Fragile X syndrome: A family case series	5
Family quality of life of parents of children with intellectual disability: Do psychological stress and parental involvement matter?	4
The experience of parents of children with intellectual disabilities/autism who experienced the Kahramanmaraş earthquake in Türkiye	4
Assessing inter-rater agreement of the intellectual disability-frailty index short form: A descriptive pilot study	4
Applying theory to overcome internal barriers for healthy behavior change in adults with intellectual disabilities	4
Using a hospital passport from the perspective of adults with intellectual disabilities, family carers and health professionals: A qualitative study	4
Diversity training for health professionals: Preparedness to competently address intellectual disability in the Western Cape Province, South Africa	4
Experiences of mental health professionals providing services to adults with intellectual disabilities and mental health problems: A systematic review and meta-synthesis of qualitative research studie	4
The Trials of Displacement	4
A systematic review of attachment interventions for people with intellectual disability and their caregivers	4
The validity of learning potential for predicting educational adjustment in preschoolers with Down syndrome: A longitudinal study	4
A practical example of an open disclosure process for people with intellectual disabilities in the Republic of Ireland	4
Non-psychologist practitioners’ views of cognitive assessment reports: An evaluation of a learning disability child and adolescent mental health service	4
Functioning of children and adolescents with Down syndrome and the association with environmental barriers and facilitators during the COVID-19 pandemic	4
A scoping review to inform an auditing framework evaluating healthcare environments for inclusion of people with intellectual disability and/or autism	4
Remote cognitive training for children with congenital brain malformation or genetic syndrome: a scoping review	4
The impact of intellectual disability and sport expertise on cognitive and executive functions	4
Caring for a child with a life limiting condition: The experiences of nurses in an intellectual disability service provider	4
Support needs of older people with intellectual disabilities: An exploratory study among psychologists in the Netherlands	4
Understanding how organizational culture shapes the experiences of direct support professionals: A qualitative meta-synthesis from an organizational justice perspective	4
Associations between executive functions, intelligence and adaptive behaviour in children and adolescents with mild intellectual disability	4
“We’re in the same book, but we’re in different parts of the book”: Dominant and sub-group narratives of life following a Down syndrome determination	3
Changing practices, procedures, and perceptions: A multi-year person-centered planning initiative in group homes for residents with intellectual and developmental disabilities	3
A model for fostering community capacity to support adults with intellectual disabilities who engage in challenging behaviour: A scoping review	3
Development and implementation of a longitudinal clinical database for down syndrome in a large pediatric specialty clinic: Methodology and feasibility	3
Understanding the contribution of intellectual disability nurses. Paper 2 of 4 - Survey	3
The use of the cambridge neuropsychological test automated battery for people born with Down syndrome and those born premature: A comparative systematic review	3

Early numeracy profiles in young children with intellectual disabilities: The role of cognitive functions	3
Family physicians’ and trainees’ experiences regarding cancer screening with patients with intellectual disability: An interpretive description study	3
Understanding the contribution of intellectual disabilities nurses. Paper 4 of 4 - Impacts of intellectual disability nursing interventions	3
Qualitative Insights from A Novel Staff-Led Oral Health Champions Program Within a Residential Service For People With Intellectual and Developmental Disability	3
Social-emotional problems of children with mild intellectual disabilities having parents with mental health concerns: A quantitative comparison study	3
Music-based interventions for people with profound and multiple learning disabilities: A systematic review of the literature	3
Psychological interventions for parents of children with intellectual disabilities to enhance child behavioral outcomes or parental well-being: A systematic review, content analysis and effects	3
The effects of UPGRADE your performance on employment soft skills of students with intellectual and developmental disabilities: A pilot study of generalization	3
When you are not here, I cannot do what I want on the tablet – The use of ICT to promote social participation of young people with intellectual disabilities	3
Disability day programs for people with intellectual disability: Characteristics and long-term perspectives	3
Facilitators and impediments in inclusive education for students with intellectual developmental disability: Perceptions of school staff and parents in Israel	3
Family Support for (Increasingly) Older Adults with Down Syndrome: Factors Affecting Siblings’ Involvement	3
MTSS implementation in residential and day habilitation settings: A scoping review	3
COVID 19 Pandemic Experiences Among Caregivers of Persons with Intellectual Disability	3