OOIR: Observatory of International Research

Papers

(The median citation count of AJIDD-American Journal on Intellectual and Developmental Disabilities is 1. The table below lists those papers that are above that threshold based on CrossRef citation counts [max. 250 papers]. The publications cover those that have been published in the past four years, i.e., from 2022-01-01 to 2026-01-01.)

Article	Citations
NIH Toolbox Cognition Battery Feasibility in Individuals With Williams Syndrome	54
CDKL5 Deficiency Disorder: Some Lessons Learned 20 Years After the First Description	35
Relationships Between Bioecological Factors and Expectations for Community Living and Participation Outcomes Among Individuals With Intellectual Disability and Families: A Scoping Review	27
Résumés en Français	24
Résumés en Français	17
Child and Family Predictors for Mastery Motivation in Children With Developmental Delays	16
Evaluation of a Modified Corsi Task to Assess Visuospatial Short-Term Memory in Young Children With Down Syndrome	13
Effects of Stepped Cognitive Behavioral Therapy on Child Depressive and Externalizing Symptoms in Autistic Children With Anxiety	10
Reducing Depressive Symptoms Among Latina Mothers of Autistic Children: A Randomized Controlled Trial	10
Global Data on Ear and Hearing Screening in an Intellectual Disability Population	8
The Role of Journal Editors in Implementing Equity-Focused Research	8
Impact of the Great Recession on Adults With Autism and Their Mothers	8
The Road to Personalized Therapies: Lessons Learned From Angelman Syndrome	7
Diffusion of the Shared Citizenship Paradigm: Strategies and Next Steps	7
Resúmenes al Español	7
Examining Choice and Control for People With IDD Over Time	7
Characterizing Automatically Maintained Self-Injury With the Aberrant Behavior Checklist	7
Resúmenes al Español	7
Medication Management in Adults With Intellectual and Developmental Disabilities: Psychiatric Pharmacists in Primary Care	7
Diagnostic Overshadowing of Psychological Disorders in People With Intellectual Disability: A Systematic Review	7
Improving Social and Play Outcomes for Students With Significant Disabilities During Recess	7
Successes and Challenges in Treating Severe Communication Disorders	6
Résumés en Français	6
A Transdiagnostic Comparison of Mindfulness and Parenting Stress in Mothers of Children With Autism, Developmental Delay, and Fragile X Syndrome	6
Proxy Responses in Research on COVID-19 Among People With Intellectual and Developmental Disabilities	6

Toward Equity in Research on Intellectual and Developmental Disabilities	6
Randomized Behavioral Sleep Clinical Trial to Improve Outcomes in Children With Down Syndrome	6
Résumés en Français	6
Neurodevelopmental Outcomes of Pediatric Cardiac Extracorporeal Membrane Oxygenation Survivors With Central Cannulation	5
Résumés en Français	5
The Effects of Discrete Trial and Natural Environment Teaching on Adaptive Behavior in Toddlers With Autism Spectrum Disorder	5
Examining Phenotypic Differences in Gaze Avoidance Between Autism Spectrum Disorder and Fragile X Syndrome	5
Narrative Analysis in Adolescents With Fragile X Syndrome	5
Resúmenes al Español	5
The Key Role of Gestures in Spatial Tasks for Students With Intellectual Disability	5
Challenges in Using Parent-Reported Bed and Wake Times for Actigraphy Scoring in Rett-Related Syndromes	5
Impact of Educational Placement on the Goal Attainment Outcomes of K–6 Students With Complex Needs Across Academic and Social-Behavioral-Communication Domains	4
Résumés en Français	4
The Executive Function Account of Repetitive Behavior: Evidence From Rubinstein-Taybi Syndrome	4
Resúmenes al Español	4
Validation of the Observer-Reported Communication Ability (ORCA) Measure for Individuals With Angelman Syndrome	4
The Power of Partnerships to Identify and Address Mental Health Concerns Experienced by Adults With Intellectual and Developmental Disabilities	3
The Work Ahead for Intellectual and Developmental Disabilities Research	3
Genetic Subtypes of Phelan-McDermid Syndrome Exhibit Similar Rates of Change Despite Differences in Level of Impairment in Developmental Constructs	3
Résumés en Français	3
A Systematic Review of Maintenance Measurement in Early Childhood Autism Spectrum Disorder Research	3
Family Perspectives on the Complexities of Pursuing Integrated Employment for Adults With Intellectual and Developmental Disabilities	3
Psychotropic Medication and Psychosocial Service Use Among Transition Age Youth With Autism Spectrum Disorder	3
Fragile X Syndrome: Supportive Treatment, Unmet Needs, and Paths to Novel Interventions and Disease-Targeted Therapies	3
Resúmenes al Español	3
The Role of Parent Advocacy in Autistic Youths’ Self-Determination	3
Plenary Perspectives Special Section	3
Post-High School Transition Outcomes for Young Adults With Down Syndrome	3
Bone Mineral Density Screening in People With Epilepsy and Intellectual Disability	3
The Equity Agenda in Intellectual and Developmental Disabilities Research	3
Resilience in Families of Autistic Children and Children With Intellectual Disability During the COVID-19 Pandemic	3
Resúmenes al Español	3
Resúmenes al Español	2
Confronting Epistemic Injustice and Inequity in IDD Research: The Value of Theorizing Beyond Dominant Culture’s Perspective	2
The French Version of the DABS: Adaptation Process and Preliminary Field Test	2
Modeling the Latent Factor Structure of the “EXcEEDS” (EXecutive function Early Evaluation in Down Syndrome) Battery	2
Résumés en Français	2
Attention/Deficit Hyperactivity Disorder in Adolescent and Young Adult Males With Fragile X Syndrome	2
Modified Cued Recall Test for the Diagnosis of Alzheimer's Disease in a Greek Sample of Adults With Down Syndrome: A Preliminary Study	2
Scientists Can Do Better Including Those With Intellectual Disability in Clinical Trials	2
Systematic Review of Intervention Programs Designed to Improve the Socioemotional Skills of Children and Adolescents With Prader-Willi Syndrome	2
Résumés en Français	2
On Terms: What's in a Name? Intellectual Disability and “Condition,” “Disorder,” “Syndrome,” “Disease,” and “Disability”	2
Resúmenes al Español	2
Resúmenes al Español	2
Resúmenes al Español	2
Understanding Natural Supports in Diverse Adults With Intellectual and Developmental Disabilities Across Life Domains	2
Résumés en Français	2
Résumés en Français	2
Measurement Invariance in Intellectual and Developmental Disability Research	2

Parental Perceptions of Autism Spectrum Disorder in Latinx and Black Sociocultural Contexts: A Systematic Review	2
Social Anxiety in Neurodevelopmental Disorders: The Case of Fragile X Syndrome	2
Quality of Educational Programs for Elementary School-Age Students With Autism	1
Caring for Adults With Significant Levels of Intellectual Disability in Outpatient Settings: Results of a National Survey of Physicians	1
Mindfulness as a Potential Moderator Between Child Behavior Problems and Maternal Well-Being	1
Résumés en Français	1
Comparing Indicators of Advocacy Ability and Service Access Between Latino and White Families of Transition-Aged Youth With Autism	1
Résumés en Français	1
Chronic Health Conditions Among Adults With Intellectual and Developmental Disabilities in a State Medicaid System	1
Increasing Access to Early Diagnosis and Assessment of Autism Via Biomarker-Based Measurements of Social Visual Engagement	1
Résumés en Français	1
Resúmenes al Español	1
Using a Delphi Process to Update the Nisonger Child Behavior Rating Form	1
Anxiety in Angelman Syndrome	1
Postschool Goal Expectations for Youth With Intellectual and Developmental Disabilities	1
A Call-In for Allyship and Anti-Ableism in Intellectual Disability Research	1
Down Syndrome Cures: Perspectives of People With Down Syndrome and Their Parents	1
The Mediatory Role of Executive Functioning on the Association Between Sleep and Both Everyday Memory and ADHD Symptoms in Children and Youth With Down Syndrome	1
Family Caregivers’ Attitudes and Perspectives About the Sexual and Reproductive Health of Women With Intellectual and Developmental Disabilities: An Online Survey	1
Attitudes, Assumptions, and Beliefs of Obstetric Care Clinicians Regarding Perinatal Care of Women With Intellectual and Developmental Disabilities	1
Unique Pain Responses in Different Etiological Subgroups of Intellectual and Developmental Disabilities	1
Resúmenes al Español	1