OOIR: Observatory of International Research

Papers

(The median citation count of AJIDD-American Journal on Intellectual and Developmental Disabilities is 1. The table below lists those papers that are above that threshold based on CrossRef citation counts [max. 250 papers]. The publications cover those that have been published in the past four years, i.e., from 2021-09-01 to 2025-09-01.)

Article	Citations
CDKL5 Deficiency Disorder: Some Lessons Learned 20 Years After the First Description	302
NIH Toolbox Cognition Battery Feasibility in Individuals With Williams Syndrome	45
Evaluation of a Modified Corsi Task to Assess Visuospatial Short-Term Memory in Young Children With Down Syndrome	32
Child and Family Predictors for Mastery Motivation in Children With Developmental Delays	23
Relationships Between Bioecological Factors and Expectations for Community Living and Participation Outcomes Among Individuals With Intellectual Disability and Families: A Scoping Review	13
Résumés en Français	12
Résumés en Français	10
Reducing Depressive Symptoms Among Latina Mothers of Autistic Children: A Randomized Controlled Trial	10
The Role of Journal Editors in Implementing Equity-Focused Research	9
Urbanicity, Health, and Access to Services for People With Intellectual Disability and Developmental Disabilities	8
Impact of the Great Recession on Adults With Autism and Their Mothers	8
Characterizing Automatically Maintained Self-Injury With the Aberrant Behavior Checklist	7
Effects of Stepped Cognitive Behavioral Therapy on Child Depressive and Externalizing Symptoms in Autistic Children With Anxiety	7
Global Data on Ear and Hearing Screening in an Intellectual Disability Population	7
Medication Management in Adults With Intellectual and Developmental Disabilities: Psychiatric Pharmacists in Primary Care	7
Examining Choice and Control for People With IDD Over Time	7
Diffusion of the Shared Citizenship Paradigm: Strategies and Next Steps	6
Resúmenes al Español	6
Toward Equity in Research on Intellectual and Developmental Disabilities	6
Improving Social and Play Outcomes for Students With Significant Disabilities During Recess	6
Diagnostic Overshadowing of Psychological Disorders in People With Intellectual Disability: A Systematic Review	6
Randomized Behavioral Sleep Clinical Trial to Improve Outcomes in Children With Down Syndrome	6
The Road to Personalized Therapies: Lessons Learned From Angelman Syndrome	6
Successes and Challenges in Treating Severe Communication Disorders	6
A Transdiagnostic Comparison of Mindfulness and Parenting Stress in Mothers of Children With Autism, Developmental Delay, and Fragile X Syndrome	6

Resúmenes al Español	6
The Key Role of Gestures in Spatial Tasks for Students With Intellectual Disability	5
The Effects of Discrete Trial and Natural Environment Teaching on Adaptive Behavior in Toddlers With Autism Spectrum Disorder	5
Résumés en Français	5
Résumés en Français	5
Challenges in Using Parent-Reported Bed and Wake Times for Actigraphy Scoring in Rett-Related Syndromes	5
Résumés en Français	5
Narrative Analysis in Adolescents With Fragile X Syndrome	5
Proxy Responses in Research on COVID-19 Among People With Intellectual and Developmental Disabilities	5
The Executive Function Account of Repetitive Behavior: Evidence From Rubinstein-Taybi Syndrome	4
Examining Phenotypic Differences in Gaze Avoidance Between Autism Spectrum Disorder and Fragile X Syndrome	4
Impact of Educational Placement on the Goal Attainment Outcomes of K–6 Students With Complex Needs Across Academic and Social-Behavioral-Communication Domains	4
Family Perspectives on the Complexities of Pursuing Integrated Employment for Adults With Intellectual and Developmental Disabilities	4
The Power of Partnerships to Identify and Address Mental Health Concerns Experienced by Adults With Intellectual and Developmental Disabilities	4
Validation of the Observer-Reported Communication Ability (ORCA) Measure for Individuals With Angelman Syndrome	4
Neurodevelopmental Outcomes of Pediatric Cardiac Extracorporeal Membrane Oxygenation Survivors With Central Cannulation	4
Resúmenes al Español	4
Résumés en Français	3
Post-High School Transition Outcomes for Young Adults With Down Syndrome	3
Résumés en Français	3
The Work Ahead for Intellectual and Developmental Disabilities Research	3
Plenary Perspectives Special Section	3
Resúmenes al Español	3
Fragile X Syndrome: Supportive Treatment, Unmet Needs, and Paths to Novel Interventions and Disease-Targeted Therapies	3
Psychotropic Medication and Psychosocial Service Use Among Transition Age Youth With Autism Spectrum Disorder	3
Resúmenes al Español	2
The Equity Agenda in Intellectual and Developmental Disabilities Research	2
Resúmenes al Español	2
Resúmenes al Español	2
Resúmenes al Español	2
Bone Mineral Density Screening in People With Epilepsy and Intellectual Disability	2
The Role of Parent Advocacy in Autistic Youths’ Self-Determination	2
Resilience in Families of Autistic Children and Children With Intellectual Disability During the COVID-19 Pandemic	2
Resúmenes al Español	2
Genetic Subtypes of Phelan-McDermid Syndrome Exhibit Similar Rates of Change Despite Differences in Level of Impairment in Developmental Constructs	2
A Systematic Review of Maintenance Measurement in Early Childhood Autism Spectrum Disorder Research	2
Résumés en Français	2
Resúmenes al Español	2
Down Syndrome Cures: Perspectives of People With Down Syndrome and Their Parents	1
Resúmenes al Español	1
Résumés en Français	1
Measurement Invariance in Intellectual and Developmental Disability Research	1
Confronting Epistemic Injustice and Inequity in IDD Research: The Value of Theorizing Beyond Dominant Culture’s Perspective	1
Parental Perceptions of Autism Spectrum Disorder in Latinx and Black Sociocultural Contexts: A Systematic Review	1
The French Version of the DABS: Adaptation Process and Preliminary Field Test	1
On Terms: What's in a Name? Intellectual Disability and “Condition,” “Disorder,” “Syndrome,” “Disease,” and “Disability”	1
Unique Pain Responses in Different Etiological Subgroups of Intellectual and Developmental Disabilities	1
Attitudes, Assumptions, and Beliefs of Obstetric Care Clinicians Regarding Perinatal Care of Women With Intellectual and Developmental Disabilities	1
Quality of Educational Programs for Elementary School-Age Students With Autism	1
Résumés en Français	1

Family Caregivers’ Attitudes and Perspectives About the Sexual and Reproductive Health of Women With Intellectual and Developmental Disabilities: An Online Survey	1
Resúmenes al Español	1
Résumés en Français	1
Understanding Natural Supports in Diverse Adults With Intellectual and Developmental Disabilities Across Life Domains	1
Attention/Deficit Hyperactivity Disorder in Adolescent and Young Adult Males With Fragile X Syndrome	1
Caring for Adults With Significant Levels of Intellectual Disability in Outpatient Settings: Results of a National Survey of Physicians	1
Motor Influences on Communication: Comparisons Between Down Syndrome and Fragile X Syndrome	1
Chronic Health Conditions Among Adults With Intellectual and Developmental Disabilities in a State Medicaid System	1
Postschool Goal Expectations for Youth With Intellectual and Developmental Disabilities	1
Anxiety in Angelman Syndrome	1
Increasing Access to Early Diagnosis and Assessment of Autism Via Biomarker-Based Measurements of Social Visual Engagement	1
Résumés en Français	1
Résumés en Français	1
Modeling the Latent Factor Structure of the “EXcEEDS” (EXecutive function Early Evaluation in Down Syndrome) Battery	1
Scientists Can Do Better Including Those With Intellectual Disability in Clinical Trials	1
Social Anxiety in Neurodevelopmental Disorders: The Case of Fragile X Syndrome	1
Résumés en Français	1
The Mediatory Role of Executive Functioning on the Association Between Sleep and Both Everyday Memory and ADHD Symptoms in Children and Youth With Down Syndrome	1
Using a Delphi Process to Update the Nisonger Child Behavior Rating Form	1
Mindfulness as a Potential Moderator Between Child Behavior Problems and Maternal Well-Being	1